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8th International Costello Conference, Orlando, FL 2013 | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/2013/08/10/8th-international-costello-conference-orlando-fl-2013
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. 8th International Costello Conference, Orlando, FL 2013. August 10, 2013. In 2013 Costello Conference. Thank you so much to everyone who helped get us to the Costello conference in Florida! Thank you to ...
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Dental & Nutrition Workshops- 2013 Orlando FL Costello Conference | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/2013/08/08/dental-nutrition-workshops-2013-orlando-fl-costello-conference
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. Dental and Nutrition Workshops- 2013 Orlando FL Costello Conference. August 8, 2013. In 2013 Costello Conference. By Dr Skip Dolt, DDS RASodontis. Challenges to CS teeth:. Tooth enamel dissolves below 5&...
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Zane is doing soooo well! | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/2014/04/30/zane-is-doing-soooo-well
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. Zane is doing soooo well! April 30, 2014. I am so sorry I have not updated Zane’s webpage in a very long time! Then I had issues with my battery cord not working! I thought we would never see the dayR...
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ShannonK | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/author/zanesmom
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. OMSLife Foundation Conference in Cinncinati, OH 2015. April 13, 2015. Read Article →. Zane is doing soooo well! April 30, 2014. I am so sorry I have not updated Zane’s webpage in a very long time! These ...
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NICU | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/nicu
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. Zane spent his first month of life in St. Joe’s NICU… mostly trying to eat. Then we met Dr. Robey! At that time which is a floppy larynx. Click HERE to read more about Laryngo and Trachea Malacia. We had...
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OMSLife Foundation Conference in Cinncinati, OH 2015 | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/2015/04/13/omslife-foundation-conference-in-cinncinati-oh-2015
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. OMSLife Foundation Conference in Cinncinati, OH 2015. April 13, 2015. I don’t know. No one has the answer still. Could it have been OMS/OMA? Thank you Mike and the doctors who came to speak to us! You ar...
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Gtube & Acid Reflux | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/gtube-acid-reflux
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. Gtube and Acid Reflux. They also decided to scope his throat and called an ENT in. Thats when we met Dr. Robey! He was our first specialist! He scoped and said Zane has laryngo malacia. Sadly after his n...
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Special features | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/special-features
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. Our mutated lil fellar has a few unique features that have been noted:. 8220;he is beefy” – noted by an endocrinologist on his medical record. It literally says BEEFY. interesting. He has a lot of rolls!
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Awareness Gear | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/awareness-gear
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. 8211; a portion benefits Zane’s fund. Neuroblastoma- The Sierra Rayn Foundation. Silicone wristbands, car decals, car magnets, tumbler, tshirt. Coping with Laryngomalacia, Inc. Leave a Reply Cancel reply.
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the Pregnancy | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/the-pregnancy
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. Everything I invested in and tried to relieve PUPPS itching:. What ended up working:. From 32 weeks on , I went did Non Stress Tests twice a week… all coming up normal. At 35 weeks… we did another ...