missmollyb.com
MissMollyB.com - HomeInformation on Hurler Syndrome and profile of Molly B
http://www.missmollyb.com/
Information on Hurler Syndrome and profile of Molly B
http://www.missmollyb.com/
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MissMollyB.com - Home | missmollyb.com Reviews
https://missmollyb.com
Information on Hurler Syndrome and profile of Molly B
missmollyb.com
Molly's Photo Album
http://www.missmollyb.com/photo.html
Click an album page to view photos:. January 2007 - April 2009.
missmollyb.com - Information on Hurler Syndrome
http://www.missmollyb.com/hurler.html
What is Hurler Syndrome? The information provided here is our understanding of Hurler Syndrome. For more information, contact the MPS Society at www.mpssociety.org.
missmollyb.com - Information on Hurler Syndrome
http://www.missmollyb.com/index.html
September 1, 2012. I'm Miss Molly. I am a happy 12 year-old, 11 years post-transplant for Hurler Syndrome. This website was developed to share some information with you about Hurler Syndrome and my life. Thanks so much for taking an interest in me, and reading my updates. Please feel free to sign the guestbook. Your support means a lot to my family. You can also download the article by clicking here. Very large Adobe PDF file: 840KB). The Wall Street Journal published a story on the decision we faced onc...
missmollyb.com - Friends with Hurler Syndrome
http://www.missmollyb.com/hurlerlinks.html
Friends With Hurler Syndrome. Molly has made lots of little friends who share similar struggles in their plight against Hurler Syndrome. Please visit their websites, by clicking on the pictures below, and keep them in your prayers. Parents of Hurler kiddos: please email. Us a jpeg picture of your child and a website address to link to. We'll gladly place additions to Molly's Hurler friends! No website available at this time). No website available at this time). No website available at this time).
missmollyb.com - Information on Hurler Syndrome
http://www.missmollyb.com/guestbook.html
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TOTAL PAGES IN THIS WEBSITE
9
Forever Mighty Max: August 2003
http://mighty-max.blogspot.com/2003_08_01_archive.html
Born in July of 2002, our son Max was soon diagnosed with Hurler Syndrome, a rare genetic disorder. Our beautiful boy passed away from complications with a stem cell transplant in November of 2003. This site's purpose is to update our family and friends on our progress of grief. And the continued celebration of the memory of our courageous son. Sunday, August 31, 2003. Day 16, 17. Sunday, August 31. Keep rooting for our guy! Posted by Mike Ciacciarelli. Links to this post. Saturday, August 30, 2003.
Mighty-Max: Friends with Hurlers
http://www.mighty-max.com/friends.html
How Can I Help? Tommy and Kaitlyn Ries. Anthony Cimarrusti (Tony the Tigre).
Forever Mighty Max: October 2003
http://mighty-max.blogspot.com/2003_10_01_archive.html
Born in July of 2002, our son Max was soon diagnosed with Hurler Syndrome, a rare genetic disorder. Our beautiful boy passed away from complications with a stem cell transplant in November of 2003. This site's purpose is to update our family and friends on our progress of grief. And the continued celebration of the memory of our courageous son. Friday, October 31, 2003. Day 78 - Happy Halloween! Posted by Mike Ciacciarelli. Links to this post. Thursday, October 30, 2003. Please think about Max's little b...
Forever Mighty Max: June 2003
http://mighty-max.blogspot.com/2003_06_01_archive.html
Born in July of 2002, our son Max was soon diagnosed with Hurler Syndrome, a rare genetic disorder. Our beautiful boy passed away from complications with a stem cell transplant in November of 2003. This site's purpose is to update our family and friends on our progress of grief. And the continued celebration of the memory of our courageous son. Monday, June 30, 2003. We've decided on Minnesota. 3 On a less significant note, MN is closer to home, making it easier for travel and for people to visit us.
Mighty-Max: What is Hurler?
http://www.mighty-max.com/hurlers.html
How Can I Help? MPS I (historically known as Hurler, Hurler-Scheie, and Scheie Syndromes) is an inherited lysosomal storage disorder caused by the deficiency of an enzyme called alpha-L-iduronidase. As Max grows older, you can see the changes in his. Appearance as the disease progresses. Hurler children are. Said to have coarse facial features, including. Widely spaced eyes,. Depressed nose bridge,. Bushy eyebrows, turned up noses,short necks and large heads. Modified July 3, 2003 2:19 PM.
Forever Mighty Max: September 2003
http://mighty-max.blogspot.com/2003_09_01_archive.html
Born in July of 2002, our son Max was soon diagnosed with Hurler Syndrome, a rare genetic disorder. Our beautiful boy passed away from complications with a stem cell transplant in November of 2003. This site's purpose is to update our family and friends on our progress of grief. And the continued celebration of the memory of our courageous son. Tuesday, September 30, 2003. Thanks for reading this far, and thanks for supporting us. Posted by Mike Ciacciarelli. Links to this post. Sunday, September 28, 2003.
Forever Mighty Max: July 2003
http://mighty-max.blogspot.com/2003_07_01_archive.html
Born in July of 2002, our son Max was soon diagnosed with Hurler Syndrome, a rare genetic disorder. Our beautiful boy passed away from complications with a stem cell transplant in November of 2003. This site's purpose is to update our family and friends on our progress of grief. And the continued celebration of the memory of our courageous son. Thursday, July 31, 2003. Posted by Mike Ciacciarelli. Links to this post. Wednesday, July 30, 2003. Please pray for Grace's new friend Kendall who was admitted to...
Forever Mighty Max: What Is Hurler Syndrome?
http://mighty-max.blogspot.com/2003/08/what-is-hurler-syndrome.html
Born in July of 2002, our son Max was soon diagnosed with Hurler Syndrome, a rare genetic disorder. Our beautiful boy passed away from complications with a stem cell transplant in November of 2003. This site's purpose is to update our family and friends on our progress of grief. And the continued celebration of the memory of our courageous son. Thursday, May 15, 2003. What Is Hurler Syndrome? Photos are 1, 6, 8, and 11 months old). More information on the different MPS orders, and current news regarding ...
Forever Mighty Max: May 2003
http://mighty-max.blogspot.com/2003_05_01_archive.html
Born in July of 2002, our son Max was soon diagnosed with Hurler Syndrome, a rare genetic disorder. Our beautiful boy passed away from complications with a stem cell transplant in November of 2003. This site's purpose is to update our family and friends on our progress of grief. And the continued celebration of the memory of our courageous son. Wednesday, May 21, 2003. Dear Max Fans,. Less severe forms of Hurlers Syndrome, whose intelligence is not as affected. 1 Grace is a donor match (and does not have...
TOTAL LINKS TO THIS WEBSITE
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missmollyandaspergers.blogspot.com
Miss Molly and Aspergers
Welcome to Miss Molly and Aspergers! Hello there, welcome to my blog Miss Molly and Aspergers! My name is Molly and I am a teenage girl with Aspergers Syndrome. I have created this blog to help create awareness of Autism Spectrum Disorder. Search Aspergers on Facebook and you will find dozens of amazing communities and support networks! If you choose to interact in one of these communities, you may even make some great friends who are also Aspies, like I have. Why you may find use in my blog:. 169; Molly...
missmollyandfriends.blogspot.com
Miss Molly and Friends
Miss Molly and Friends. Friday, August 7, 2015. Caroline took a little trip to the library to catch up on her summer reading. I hope they have a good selection of American Girl books.". Looks like she scored! She couldn't wait to start reading! Nothing like reading your favorite book outdoors on a relaxing Summer afternoon. Caroline's dress available in my etsy shop. Tuesday, July 28, 2015. A Girl and Her Dog. Sometimes a girl needs some quiet time alone with just a book and her dog for company. Okay, ev...
missmollyandgraciegirl.blogspot.com
Miss Molly and Gracie Girl
Miss Molly and Gracie Girl. Sunday, September 11, 2011. Driving to Broadway Elementary on the first day of school. Molly is lucky enough to be going to school with her buddy Ella. Molly and Ella have been good pals since they were two and their connection takes some of the stress away of being thrown into a second language. It's making it easier on the girls and the parents,. It's so much easier to jump into this with a good friend! Thank you to Principle Wang who agreed to put the girls in the same class.
Miss Molly & Me
Theatertour Bonnie and Clyde. Lieve vrienden, we gaan weer op pad! Er moet muziek gemaakt worden. Er zal muziek gemaakt worden. Miss Molly and Me ontmoeten Bonnie and Clyde. Een concert, een verhaal, een. Bonnie and Clyde, crimineel goed (Recensie). Op 23 mei 1934 vindt het legendarische gangster duo Bonnie and Clyde tijdens hun arrestatie de dood. Het radioverslag van deze arrestatie is de opening van het nieuwe theaterprogramma Bonnie and Clyde van Miss Molly. MM&M bij Domien (3FM). Lieve MM&M vri...
MissMollyB.com - Home
Molly and Mom's Blog. Molly and Mom's Blog. 8203; Meet Miss Molly B. I'm Miss Molly. I am a happy 12 year-old, 11 years post-transplant for Hurler Syndrome. This website was developed to share some information with you about Hurler Syndrome and my life. What is Hurler Syndrome? Learn about Hurler Syndrome. Mom and Molly's Blog. Read the latest updates on Miss Molly B and discussions about Hurler Syndrome. Create a free website.
Miss Molly Band | Home
Miss Molly Band: Mette Larsen - vocal,. Mads Byskov - guitar, Mads Abrahamsen - drums,. Henrik Jarltoft - bass,. And Peter Brun Madsen - keys. We can always offer you great music at any time - but our price is always dependant on terms. Plaease contact us for a great offer on your next party. We can bring you anything in light and sound. Hot Stuff : : : Breathless : : : Jeg vil la' lyset brænde : : : Varje Gång jag ser dig : : :.
Miss Molly Band | Bandet
Miss Molly Band spiller til alle slags fester - ingen fest for lille og intet job for stort. Miss Molly Band er det kendte band fra København, der spiller alle de populære og dansevenlige hits fra de seneste 7 årtier, med alt fra de glade 60'ere og frem til det allernyeste. Miss Molly Band består af forsanger Ann Carina Tetschner, der sammen med de 4 erfarne musikere: Hans Brewaeys på bas, Torben Steen Andersen på guitar, Mikkel Skovgaard Hviid på trommer og Peter Brun Madsen på keys.
Miss Molly Bell
Missmollycares's Blog | Just another WordPress.com weblog
Just another WordPress.com weblog. Thoughts on Martin Luther King’s Birthday. January 17, 2011 in Uncategorized. Can’t we find ways to be funny without putting someone else down? I hope the pendulum can swing back to treating each other with Love, understanding and kindness. Take some time today and every day to be kind and loving to all you meet. A bit of history…. March 12, 2010 in Uncategorized. Well I thought my mother was going to slug him with the look she gave him, by the way she was also extremel...
