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nirdp.org.uk

stronger together | Northern Ireland Rare Disease Partnership

http://www.nirdp.org.uk/tag/stronger-together

Advocating, educating, and innovating for those living or working with rare diseases in NI. Living Every Day with Rare Disease. Tag Archives: stronger together. Good News on access to drugs for rare conditions: Thank you, Minister! July 20, 2016. Click to email this to a friend (Opens in new window). Click to share on Facebook (Opens in new window). Click to share on Twitter (Opens in new window). Click to share on Google (Opens in new window). Rare Disease Implementation Plan. June 1, 2015. May 10, 2015.

nirdp.org.uk

care | Northern Ireland Rare Disease Partnership

http://www.nirdp.org.uk/tag/care

Advocating, educating, and innovating for those living or working with rare diseases in NI. Living Every Day with Rare Disease. Living Life with Rare Disease: Taking the scare out of Palliative Care. June 1, 2015. It’s time for our Summer Meeting! This year, we are holding it, on Friday 26 June, in the Day Room at the Foyle Hospice, 61 Culmore Road, L/Derry. Our theme is “Taking the scare out of Palliative Care”. Palliative care … Continue reading →. Click to email this to a friend (Opens in new window).

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Christine | Northern Ireland Rare Disease Partnership

http://www.nirdp.org.uk/author/christine

Advocating, educating, and innovating for those living or working with rare diseases in NI. Living Every Day with Rare Disease. Making our voices heard. August 4, 2016. We know that if something isn’t counted, it doesn’t count… And we all want to use our experiences and our knowledge to make positive change happen in our health and social care system. So we are working to make sure … Continue reading →. Click to email this to a friend (Opens in new window). Click to share on Facebook (Opens in new window).

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awareness | Northern Ireland Rare Disease Partnership

http://www.nirdp.org.uk/tag/awareness

Advocating, educating, and innovating for those living or working with rare diseases in NI. Living Every Day with Rare Disease. Living Life with Rare Disease: Taking the scare out of Palliative Care. June 1, 2015. It’s time for our Summer Meeting! This year, we are holding it, on Friday 26 June, in the Day Room at the Foyle Hospice, 61 Culmore Road, L/Derry. Our theme is “Taking the scare out of Palliative Care”. Palliative care … Continue reading →. Click to email this to a friend (Opens in new window).

nirdp.org.uk

events | Northern Ireland Rare Disease Partnership

http://www.nirdp.org.uk/tag/events-2

Advocating, educating, and innovating for those living or working with rare diseases in NI. Living Every Day with Rare Disease. Rare Disease Day 2016 Patient Voice and Empowerment. February 21, 2016. Rare Disease Day 29 February is getting close! Here are the full programmes for the Conference in Riddel Hall, and for the Reception in the Long Gallery at Stormont; follow the links in the post below to register NOW The … Continue reading →. Click to email this to a friend (Opens in new window). June 1, 2015.

nirdp.org.uk

Our Vision | Northern Ireland Rare Disease Partnership

http://www.nirdp.org.uk/our-aims

Advocating, educating, and innovating for those living or working with rare diseases in NI. Living Every Day with Rare Disease. No one is disadvantaged because of the rarity of their condition. Our Aim is to catalyse transformational change by working with and for people affected by a rare disease, their dependants, carers, and those treating them. We will achieve this by:. Outreach to the rare disease community in Northern Ireland. Tackling disadvantage and inequality. Strong cohesive and coherent voices.

nirdp.org.uk

Join Us | Northern Ireland Rare Disease Partnership

http://www.nirdp.org.uk/join-us

Advocating, educating, and innovating for those living or working with rare diseases in NI. Living Every Day with Rare Disease. Please state disease or suspected disease:. Please state which one:. What activities / information are you interested in? All activities including meetings. Email / web-based information and activities. Paper-based information and activities. Please give a few words about yourself, the particular interest you have in the NIRDP and what you hope it will achieve:. End of life care.

nirdp.org.uk

Events | Northern Ireland Rare Disease Partnership

http://www.nirdp.org.uk/category/events

Advocating, educating, and innovating for those living or working with rare diseases in NI. Living Every Day with Rare Disease. Rare Disease Day 2016 Patient Voice and Empowerment. February 21, 2016. Rare Disease Day 29 February is getting close! Here are the full programmes for the Conference in Riddel Hall, and for the Reception in the Long Gallery at Stormont; follow the links in the post below to register NOW The … Continue reading →. Click to email this to a friend (Opens in new window). Minister Si...

nirdp.org.uk

Living Life with Rare Disease: Taking the scare out of Palliative Care | Northern Ireland Rare Disease Partnership

http://www.nirdp.org.uk/living-life-with-rare-disease-taking-the-scare-out-of-palliative-care

Advocating, educating, and innovating for those living or working with rare diseases in NI. Living Every Day with Rare Disease. Palliative Care: The Lets Talk About Survey. NIRDP’s South Down Group →. Living Life with Rare Disease: Taking the scare out of Palliative Care. June 1, 2015. It’s time for our Summer Meeting! This year, we are holding it, on Friday 26 June, in the Day Room at the Foyle Hospice, 61 Culmore Road, L/Derry. Our theme is “Taking the scare out of Palliative Care”. 1105-11.25 Dr D...