A journal of living with Multiple System Atrophy. How we, a 58 year old woman and a 62 year old man, laugh, cry and love our way through Dennis' latest symptoms and newest diagnosis of MSA.
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Multiple System Atrophy and Shy-Drager | multiplesystematrophyandshy-drager.blogspot.com Reviews
https://multiplesystematrophyandshy-drager.blogspot.com
A journal of living with Multiple System Atrophy. How we, a 58 year old woman and a 62 year old man, laugh, cry and love our way through Dennis' latest symptoms and newest diagnosis of MSA.
multiplesystematrophyandshy-drager.blogspot.com
Multiple System Atrophy and Shy-Drager: Is it Parkinson's or MSA or SDS?
http://multiplesystematrophyandshy-drager.blogspot.com/2008/07/is-it-parkinsons-or-msa-or-sds.html
Multiple System Atrophy and Shy-Drager. A journal of living with Multiple System Atrophy. How we, a 58 year old woman and a 62 year old man, laugh, cry and love our way through Dennis' latest symptoms and newest diagnosis of MSA. Monday, July 7, 2008. Is it Parkinson's or MSA or SDS? Now, since this blog is not about the past, but the present, I will not bore you with stories of how fast his Parkinson's seemed to be progressing. I will tell you, however, that he did qualify for social security disabi...
Multiple System Atrophy and Shy-Drager: Dennis' New Bed
http://multiplesystematrophyandshy-drager.blogspot.com/2011/01/dennis-new-bed.html
Multiple System Atrophy and Shy-Drager. A journal of living with Multiple System Atrophy. How we, a 58 year old woman and a 62 year old man, laugh, cry and love our way through Dennis' latest symptoms and newest diagnosis of MSA. Wednesday, January 5, 2011. Our new hospice organization already supplied Dennis with a new bed. It is a pressure guard mattress. Since I can't explain it well, I have put the link to the particular mattress that he has right here. December 30, 2012 at 10:50 AM. Subscribe to: Po...
Multiple System Atrophy and Shy-Drager: My Parents
http://multiplesystematrophyandshy-drager.blogspot.com/2008/08/my-parents.html
Multiple System Atrophy and Shy-Drager. A journal of living with Multiple System Atrophy. How we, a 58 year old woman and a 62 year old man, laugh, cry and love our way through Dennis' latest symptoms and newest diagnosis of MSA. Tuesday, August 19, 2008. Now it is eight weeks later, her cast was off, she has completed some physical therapy, her teeth are fixed and there is only a tiny bruise remaining on her lip. She looked good and could eat her entire meal. I am fortunate to have both of my parents st...
Multiple System Atrophy and Shy-Drager: Hospice, Part III
http://multiplesystematrophyandshy-drager.blogspot.com/2011/01/hospice-part-iii.html
Multiple System Atrophy and Shy-Drager. A journal of living with Multiple System Atrophy. How we, a 58 year old woman and a 62 year old man, laugh, cry and love our way through Dennis' latest symptoms and newest diagnosis of MSA. Tuesday, January 4, 2011. Hospice, Part III. We found the right hospice. Do you know that feeling, when someone walks in the room, that the decision is really already made? It wasn't quite that easy, or that swift, but it was close. We met with them today and after ALL of our qu...
Multiple System Atrophy and Shy-Drager: July 2011
http://multiplesystematrophyandshy-drager.blogspot.com/2011_07_01_archive.html
Multiple System Atrophy and Shy-Drager. A journal of living with Multiple System Atrophy. How we, a 58 year old woman and a 62 year old man, laugh, cry and love our way through Dennis' latest symptoms and newest diagnosis of MSA. Sunday, July 31, 2011. Http:/ onepartwidow.blogspot.com/. Saturday, July 30, 2011. Thank you to each of you for following my blog. It was written with love, pain and frustration. I started a new blog, Life After Care-giving, but it did not have the right feel for me. Dennis woke...
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nolongeracaregiver.blogspot.com
Life After Caregiving: January 2011
http://nolongeracaregiver.blogspot.com/2011_01_01_archive.html
Friday, January 28, 2011. Okay, a disclaimer first. Some of you will think I am nuts (I'm not) and some of you will just say it's her imagination. Or perhaps, it's what she wants to be true. And some of you will relate. Either way, this is my story. Two nights ago, I woke again at 3 AM. I played some games on my IPad to get myself out of my head. Soon, I was relaxed again, and closed my eyes to sleep. It wasn't there long. But it was Dennis' eye. I would know his eyes anywhere, any day, any time. Then I ...
nolongeracaregiver.blogspot.com
Life After Caregiving: Tear Tsunami
http://nolongeracaregiver.blogspot.com/2011/02/tear-tsusami.html
Friday, February 11, 2011. A wave, more like a tsunami, of tears hit me today. In fact I am trying to write my way through them. My therapist, doctor and friends warmed me about these waves of grief. I wish they were done. I don't like these feelings. I have eaten. I managed to go to the grocery store and purchase ready made comfort food - potatoes, turkey and gravy. Maybe too many carbs? But at least I am eating. All of this is simple life, I know that. And I also know that I have to face all of it,...
nolongeracaregiver.blogspot.com
Life After Caregiving: July 2011
http://nolongeracaregiver.blogspot.com/2011_07_01_archive.html
Sunday, July 31, 2011. Http:/ onepartwidow.blogspot.com/. Saturday, July 30, 2011. It has been a very long while since I have written. My therapist suggested that grief makes it very difficult to concentrate. I think she was right, but now that I find many of my everyday needs being met once again, I feel ready to write. I even painted a little a few weeks back. Thank you for being a part of my life. I hope that you choose to continue reading my musings. Subscribe to: Posts (Atom).
nolongeracaregiver.blogspot.com
Life After Caregiving: A Walk in the Graveyard
http://nolongeracaregiver.blogspot.com/2011/03/walk-in-graveyard.html
Sunday, March 13, 2011. A Walk in the Graveyard. I am back from a very helpful visit with my sister and brother-in-law in London. Jane and Ralph took great, nurturing care of me - feeding me, letting me be lazy, making plans for going places that I would enjoy, and taking long (for me, not for them) walks in various neighborhoods in London. For the first time in 2 or 3 years I let someone else take care of me. She was not able to remember much either, but did remember him both being aggravating by his ov...
nolongeracaregiver.blogspot.com
Life After Caregiving: Anger
http://nolongeracaregiver.blogspot.com/2011/03/anger.html
Sunday, March 20, 2011. I am angry today. The county wants every penny back that Dennis received for care. Yes, he had money left and I was afraid this would happen, but I am still angry that it has happened. I am angry at the social worker for not telling us that the help was simply a loan. I am angry that Dennis had to work to receive this loan. I am angry at Dennis for not gifting me the money like we discussed. I am angry at myself for being angry. Labels: Life after caregiving.
nolongeracaregiver.blogspot.com
Life After Caregiving
http://nolongeracaregiver.blogspot.com/2011/07/httponepartwidow.html
Sunday, July 31, 2011. Http:/ onepartwidow.blogspot.com/. Subscribe to: Post Comments (Atom). Dennis yells at his brain to behave! Dennis is returning as a pelican. If you are ever around any pelicans, call out Daniellito and see what happens. Maybe, just maybe. The Original Story of Dennis and Ann Living with MSA. Minneapolis, MN, United States. View my complete profile. Http:/ onepartwidow.blogspot.com/. Watermark template. Powered by Blogger.
nolongeracaregiver.blogspot.com
Life After Caregiving: March 2011
http://nolongeracaregiver.blogspot.com/2011_03_01_archive.html
Sunday, March 20, 2011. I am angry today. The county wants every penny back that Dennis received for care. Yes, he had money left and I was afraid this would happen, but I am still angry that it has happened. I am angry at the social worker for not telling us that the help was simply a loan. I am angry that Dennis had to work to receive this loan. I am angry at Dennis for not gifting me the money like we discussed. I am angry at myself for being angry. Labels: Life after caregiving. This week I took care...
nolongeracaregiver.blogspot.com
Life After Caregiving: MSA Awareness
http://nolongeracaregiver.blogspot.com/2011/02/msa-awareness.html
Wednesday, February 9, 2011. As many of you know, Dennis died of a rare neurological disorder called Multiple System Atrophy. This disease is considered an orphan disease, meaning it is so rare that it affects too few people to be given much thought by the medical community, politicians, and funding for research. Labels: Multiple System Atrophy Awareness. February 9, 2011 at 7:14 PM. I have signed the petition, Ann.wonderful idea. and quite a few people have seen it. Subscribe to: Post Comments (Atom).
nolongeracaregiver.blogspot.com
Life After Caregiving: February 2011
http://nolongeracaregiver.blogspot.com/2011_02_01_archive.html
Friday, February 11, 2011. A wave, more like a tsunami, of tears hit me today. In fact I am trying to write my way through them. My therapist, doctor and friends warmed me about these waves of grief. I wish they were done. I don't like these feelings. I have eaten. I managed to go to the grocery store and purchase ready made comfort food - potatoes, turkey and gravy. Maybe too many carbs? But at least I am eating. All of this is simple life, I know that. And I also know that I have to face all of it,...
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Home - Multiple System Atrophy Information
Multiple System Atrophy (MSA) is a disease that progressively damages areas of the brain affecting multiple functions in the body. MSA can result in a wide range of symptoms that vary from person to person making diagnosis notoriously difficult. Because of the difficulty differentiating MSA from other disorders (e.g., Parkinson's disease, pure autonomic failure, and other rare disorders), many patients with MSA do not receive the correct diagnosis in their lifetime. Multiple System Atrophy guide.
The MSA Coalition: Support, Educate, Advocacy & Encouraging Research
Skip to primary content. Skip to secondary content. Business & Financial Documents. Plan an MSA Fundraising Event. Join the Global MSA Registry. Call for Pre-Proposal Applications. Don Summers Travel Award. Principles of Autonomic Medicine. 2016 MSA Patient & Family Conference Recording. Find MSA Clinical Trials. MSA Stories at The Mighty. Business & Financial Documents. Plan an MSA Fundraising Event. Join the Global MSA Registry. Call for Pre-Proposal Applications. Don Summers Travel Award. Multiple Sys...
multiplesystematrophyandshy-drager.blogspot.com
Multiple System Atrophy and Shy-Drager
Multiple System Atrophy and Shy-Drager. A journal of living with Multiple System Atrophy. How we, a 58 year old woman and a 62 year old man, laugh, cry and love our way through Dennis' latest symptoms and newest diagnosis of MSA. Sunday, July 31, 2011. Http:/ onepartwidow.blogspot.com/. Saturday, July 30, 2011. Thank you to each of you for following my blog. It was written with love, pain and frustration. I started a new blog, Life After Care-giving, but it did not have the right feel for me. Dennis woke...
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Multiple System Atrophy MSA Patients' Advisory Council - Welcome to the MSA Patients'Advisory Council (MSAPAC)-
Multiple System Atrophy MSA Patients' Advisory Council. News and Upcoming Events. Welcome to the MSA Patients Advisory. The MSAPAC is open. To individuals currently living with MSA and to caregivers of patients who may be disabled. And unable to speak for themselves. A) to provide and elevate the voices of PLWMSA to provide essential information to medical professionals, service providers, etc. with regard to research, education. B) to establish and maintain data from PLWMSA with regard to early symptoms.
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