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My Bout with BOOP

Living with a rare lung disease.

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My Bout with BOOP | myboutwithboop.blogspot.com Reviews
<META>
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Living with a rare lung disease.
<META>
KEYWORDS
1 oldest
2 taking woodstock
3 we lost it
4 posted by
5 boop blogger
6 8 comments
7 t i m e
8 minyan
9 kaddish
10 no comments
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oldest,taking woodstock,we lost it,posted by,boop blogger,8 comments,t i m e,minyan,kaddish,no comments,see me now,2 comments,ad on prednisone,nanowrimo,1 comment,sleepy time woman,tiredness,sleeping,lethargy,4 comments,older posts,favorite quotes,october
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My Bout with BOOP | myboutwithboop.blogspot.com Reviews

https://myboutwithboop.blogspot.com

Living with a rare lung disease.

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1

My Bout with BOOP: Back to the Blog

http://myboutwithboop.blogspot.com/2010/01/back-to-blog.html

My Bout with BOOP. Living with a rare lung disease. Tuesday, January 19, 2010. Back to the Blog. Here's me, now, all dressed up for a family party. No longer a "blown up grown up.". It's been two months since I last "blogged." As stated previously, coming of. F the prednisone has been a real shock to my system - or I should say being on and t hen gettin. G off prednisone has had significant effects on my life. Also, ten hours a night of sleep is the norm now. I have neither the focus nor the energ y I h.

2

My Bout with BOOP: September 2009

http://myboutwithboop.blogspot.com/2009_09_01_archive.html

My Bout with BOOP. Living with a rare lung disease. Thursday, September 24, 2009. It's Been a While. I've been tired and out of it. But, there's only a few more days to go. And then I'll be done with prednisone. This is me 9/22/09. This is me 7/25/09. Sorry the photos aren't professional quality, and my wardrobe could be upgraded, but I think you get the general idea. It's been quite a trip. G'mar Hatimah Tova - May you be inscribed for a good year! Wednesday, September 9, 2009. Weaning - Weeks 7 and 8.

3

My Bout with BOOP: Eczema, Hematoma & the World Series

http://myboutwithboop.blogspot.com/2009/11/eczema-hematoma-world-series.html

My Bout with BOOP. Living with a rare lung disease. Thursday, November 5, 2009. Eczema, Hematoma and the World Series. If the last two weeks all I did was sleep in and drag myself around, this week the tiredness is spread out differently. Now I get up and out of bed at a decent hour, but I kind of move slowly and need to go to bed early. I'll discuss it with my pulmonologist the next time I see him. I have a hematoma the size of my hand. It ain't pretty. The prednisone is partly to blame for that...Also,...

4

My Bout with BOOP: June 2009

http://myboutwithboop.blogspot.com/2009_06_01_archive.html

My Bout with BOOP. Living with a rare lung disease. Tuesday, June 30, 2009. My Conversation with Dr. Gary Epler. Several weeks ago, I tried to reach Dr. Gary Epler, the reseacher who identified BOOP back in 1985, via email. I never got a response. Today, I called his office directly, leaving a message saying I had been responding well to therapy, but I had some questions. He called back about a half hour later. A low saturated fat, low sugar diet with lots of vegetables and chicken. Finally, the Forum pa...

5

My Bout with BOOP: January 2010

http://myboutwithboop.blogspot.com/2010_01_01_archive.html

My Bout with BOOP. Living with a rare lung disease. Thursday, January 28, 2010. Did I mention I was losing my hair? This has been going on since November. Not clumps, but strands. After every shampoo there's a big shmooshy mound of hair at the drain. I can even see my scalp now, which I barely could before. GoodFriend suggested I take the issue to a dermatologist. I went earlier this week and should get blood test results back by Friday. Interestingly, folks at synagogue have stopped by over past few wee...

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