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Neuroblastoma Forum

A community / support group about neuroblastoma cancer.

http://www.nbforum.org/

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Neuroblastoma Forum | nbforum.org Reviews

https://nbforum.org

A community / support group about neuroblastoma cancer.

LINKS TO THIS WEBSITE

beatnb.org beatnb.org

Beat Nb - beating neuroblastoma.

https://beatnb.org/media-library

Beat Nb in Wicked Local Braintree. It’s the start of a long-awaited weekend for Beat NB Cancer Foundation, as our annual event, Cure Me…I’m Irish, is happening tomorrow night! We’re looking forward to an evening of entertainment, St. Patrick’s Day festivities, and coming together to help KIDS beat cancer. Enjoy the read, and we hope to see everyone at Cure Me tomorrow night at 8pm at Lombardo’s in Randolph! Read the article here. The Because of Ezra story on WFLA with Stacie Schaible. We’ve become ...

beatnb.org beatnb.org

Beat Nb - beating neuroblastoma.

https://beatnb.org/our-story

Exists because of two sons. Will. Was diagnosed with stage 4 neuroblastoma at 8 months old,. And his family was told there was no chance for survival. 9 years later, Will is playing hockey, largely due to the research Beat Nb. Was diagnosed at 13 months old, and loved trains and dancing. He died the next year, only living 800 days. To change the story for the next family, his parents have been beating nb by passionately driving research ever since. They were joined through our Because of.

beatnb.org beatnb.org

Beat Nb - beating neuroblastoma.

https://beatnb.org/neuroblastoma

Most common cancer in infants. 650 cases per year in the US. Solid mass cancer (tumor). Nearly half of kids diagnosed are under two years old. Nearly half of kids who reach remission relapse. There is no cure for relapsed neuroblastoma. Neuroblastoma is one of 12 types of childhood cancer. 2016 Beat Nb Cancer Foundation Inc (813) 586-3972. We are a 501(c)(3) tax-exempt organization with the Internal Revenue Service Our EIN is 27-2314549.

beatnb.org beatnb.org

Beat Nb - beating neuroblastoma.

https://beatnb.org/insatiable

1 not satiable; incapable of being satisfied or appeased. Voracious, unquenchable, bottomless. Over the past 10 years I have learned things about myself that I never knew before having children. In particular as it relates to my son who has had so much taken from him and the subsequent quest to uncover research dollars I find that I am insatiable. I have impossibly high expectations. I will never be satisfied. Always pushing for the impossible. But we will help fund the work that will do this. We have to...

beatnb.org beatnb.org

Beat Nb - beating neuroblastoma.

https://beatnb.org/delivering-on-our-promise

Delivering on our promise. On Saturday night we’ll host our 8th annual event to help raise money to save KIDS with cancer. From our first event until today your unwavering support has allowed us to fund truly groundbreaking work. This is not hyperbole – your money has created treatment options that real children are accessing and that are alive because of it. Infants, toddlers and children robbed first of their childhood and then their lives. All of these kids are gone – taken by neuroblastoma. And I wan...

beatnb.org beatnb.org

Beat Nb - beating neuroblastoma.

https://beatnb.org/events

Has events all across the country to support our research. Click the one you’re interested in for more information! Falmouth Road Race (Boston, August 21). Karaoke for the Kure (Tampa, September 24). Karaoke for the Kure (NYC, September 27). Karaoke for the Kure (Denver, October 21). Golf Fore Kids Sake (Tampa, December 2nd). 2016 Beat Nb Cancer Foundation Inc (813) 586-3972. We are a 501(c)(3) tax-exempt organization with the Internal Revenue Service Our EIN is 27-2314549.

beatnb.org beatnb.org

Beat Nb - beating neuroblastoma.

https://beatnb.org/donate

This is a story of helping others. Beat Nb is a constantly growing fist in the face of childhood cancer. Thank you for your support! We’d love to add your voice to our shout and your hands to the battle. We need your help to continue funding innovative research and raising awareness. Give to Beat Nb. Make this Donation Monthly. This is a secure SSL encrypted payment. Name on the Card *. Zip / Postal Code *. British Indian Ocean Territory. Congo, Democratic People's Republic. Congo, Republic of.

beatnb.org beatnb.org

Beat Nb - beating neuroblastoma.

https://beatnb.org/dfmo_hope

What follows is a guest post from NB Mom Shelly Gegen about her son John and DFMO. My husband and I had never heard of neuroblastoma, but we quickly came to hate it and the horrific statistics that come with it. During John’s road map of treatment following the COG protocol, we did our best to avoid the dismal statistics of our child’s 40% or less chance of long term survival. (Can you ever imagine reading that number in regard to your child’s life? What about that dismal 40% survival rate? We still worr...

beatnb.org beatnb.org

Beat Nb - beating neuroblastoma.

https://beatnb.org/our-board

Kyle serves as Executive Director, while Pat is President of the Board. Both are fathers of sons with neuroblastoma, and directed two separate nonprofits with a shared mission before merging in June of 2016. Their shared passion has driven nearly $5m in research dollars, changing the nb story with novel treatments and innovative options. Pat and Kyle work closely with doctors, researchers, families, and advocates across the world to Beat Nb. Chief Investment Officer, Csenge Advisory Group. Trademark Para...

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