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Australian Neuromuscular Disorders Registry

Australian Neuromuscular Disorders Registry. Welcome to the Australian Neuromuscular Disorders Registry. Recent scientific and medical advances have lead to substantial changes in the treatment of many neuromuscular diseases (NMD). New therapeutic strategies are being developed and, for some of these treatments, plans for large studies involving patients from more than one country are already in place. To improve opportunities for international collaboration by facilitating and accelerating the recruitme...

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Australian Neuromuscular Disorders Registry | nmdregistry.com.au Reviews
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Australian Neuromuscular Disorders Registry. Welcome to the Australian Neuromuscular Disorders Registry. Recent scientific and medical advances have lead to substantial changes in the treatment of many neuromuscular diseases (NMD). New therapeutic strategies are being developed and, for some of these treatments, plans for large studies involving patients from more than one country are already in place. To improve opportunities for international collaboration by facilitating and accelerating the recruitme...
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3 useful information
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5 duchenne muscular dystrophy
6 spinal muscular atrophy
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Australian Neuromuscular Disorders Registry | nmdregistry.com.au Reviews

https://nmdregistry.com.au

Australian Neuromuscular Disorders Registry. Welcome to the Australian Neuromuscular Disorders Registry. Recent scientific and medical advances have lead to substantial changes in the treatment of many neuromuscular diseases (NMD). New therapeutic strategies are being developed and, for some of these treatments, plans for large studies involving patients from more than one country are already in place. To improve opportunities for international collaboration by facilitating and accelerating the recruitme...

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nmdregistry.com.au nmdregistry.com.au
1

Rare Disease Registry Framework

https://nmdregistry.com.au/rdrf/DM1

Rare Disease Registry Framework. Australian National Myotonic Dystrophy Registry. Recent scientific and medical advances have led to substantial changes in the treatment of many neuromuscular diseases (NMD). New therapeutic strategies are being developed and, for some of these treatments, plans for large studies involving patients from more than one country are already in place. The Australian National Myotonic Dystrophy (DM1) Registry has been developed to collate a patient’s DM1 gene sequence and clini...

2

Australian Neuromuscular Disorders Registry

https://nmdregistry.com.au/index.html

Australian Neuromuscular Disorders Registry. Welcome to the Australian Neuromuscular Disorders Registry. Recent scientific and medical advances have lead to substantial changes in the treatment of many neuromuscular diseases (NMD). New therapeutic strategies are being developed and, for some of these treatments, plans for large studies involving patients from more than one country are already in place. To improve opportunities for international collaboration by facilitating and accelerating the recruitme...

3

Australian National Duchenne Muscular Dystrophy Registry —

https://nmdregistry.com.au/dmd

Australian National Duchenne Muscular Dystrophy Registry. Recent scientific and medical advances have led to substantial changes in the treatment of many neuromuscular diseases (NMD). New therapeutic strategies are being developed and, for some of these treatments, plans for large studies involving patients from more than one country are already in place. The Australian National Duchenne Muscular Dystrophy (DMD) Registry has been developed to collate a patient's DMD gene sequence and clinical information...

4

Australian Spinal Muscular Atrophy Registry —

https://nmdregistry.com.au/sma

Australian Spinal Muscular Atrophy Registry. Recent scientific and medical advances have led to substantial changes in the treatment of many neuromuscular diseases (NMD). New therapeutic strategies are being developed and, for some of these treatments, plans for large studies involving patients from more than one country are already in place. To provide Australian Spinal Muscular Atrophy families with an opportunity to improve the outcomes of individuals affected by SMA. The Australian National SMA Regis...

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New Zealand Neuromuscular Disease Registry. Welcome to the New Zealand Neuromuscular Disease Registry. Welcome to the New Zealand Neuromuscular Disease Registry. If you have been assigned a log in and wish to enter data please click on the neuromuscular disease type you would like to enter details into:. For information and enrolment forms for the New Zealand Neuromuscular Disease Registry please visit the Muscular Dystrophy Association of New Zealand website. And the Office of Population Health Genomics.

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Australian Neuromuscular Disorders Registry

Australian Neuromuscular Disorders Registry. Welcome to the Australian Neuromuscular Disorders Registry. Recent scientific and medical advances have lead to substantial changes in the treatment of many neuromuscular diseases (NMD). New therapeutic strategies are being developed and, for some of these treatments, plans for large studies involving patients from more than one country are already in place. To improve opportunities for international collaboration by facilitating and accelerating the recruitme...

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