ourjourneywithdoose.blogspot.com ourjourneywithdoose.blogspot.com

ourjourneywithdoose.blogspot.com

Our Journey With Doose Syndrome

Sunday, August 24, 2014. Second Grade looks good to me! Tomorrow is the big day! First day of school! I think he's a little excited. He woke up telling us, "Don't say anything about what tomorrow is." :) But as the day has gone on, I think he's excited to see his friends again. I just know it's going to be a great year! Who said he could grow up? They are so big! Let's hope they are this excited after the first week. :). Thanks Angie for the pics! Sunday, August 10, 2014. We've had quite a few conversati...

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Our Journey With Doose Syndrome | ourjourneywithdoose.blogspot.com Reviews
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Sunday, August 24, 2014. Second Grade looks good to me! Tomorrow is the big day! First day of school! I think he's a little excited. He woke up telling us, Don't say anything about what tomorrow is. :) But as the day has gone on, I think he's excited to see his friends again. I just know it's going to be a great year! Who said he could grow up? They are so big! Let's hope they are this excited after the first week. :). Thanks Angie for the pics! Sunday, August 10, 2014. We've had quite a few conversati...
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Our Journey With Doose Syndrome | ourjourneywithdoose.blogspot.com Reviews

https://ourjourneywithdoose.blogspot.com

Sunday, August 24, 2014. Second Grade looks good to me! Tomorrow is the big day! First day of school! I think he's a little excited. He woke up telling us, "Don't say anything about what tomorrow is." :) But as the day has gone on, I think he's excited to see his friends again. I just know it's going to be a great year! Who said he could grow up? They are so big! Let's hope they are this excited after the first week. :). Thanks Angie for the pics! Sunday, August 10, 2014. We've had quite a few conversati...

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ourjourneywithdoose.blogspot.com ourjourneywithdoose.blogspot.com
1

Our Journey With Doose Syndrome: Today is a no-helmet day!

http://ourjourneywithdoose.blogspot.com/2012/01/today-is-no-helmet-day.html

Saturday, January 7, 2012. Today is a no-helmet day! January 7, 2012 at 4:27 PM. January 7, 2012 at 7:38 PM. January 7, 2012 at 8:04 PM. Thankful for every good thing, every bit of respite; thankful for Gods goodness and provision. April 30, 2012 at 4:16 PM. WOW YOU HAVE A AMAZING LITTLE BOY! Subscribe to: Post Comments (Atom). Ben was diagnosed with Myoclonic Astatic Epilepsy of Doose (also referred to as Doose Syndrome) in August of 2011. This blog documents our experiences with this syndrome. Its the ...

2

Our Journey With Doose Syndrome: What does Doose look like? {video footage}

http://ourjourneywithdoose.blogspot.com/p/what-does-doose-look-like.html

What does Doose look like? There are many types of seizures. Before we started on this journey, I was only aware of two. I watched a classmate have a 'grand mal' seizure in high school. I had heard that sometimes when people appear to be daydreaming, it could be a seizure (absence seizures). Ben has 3 different types of seizures. Used to be referred to as 'grand mal'; lots of convulsions; most often he completely stops breathing; usually sleeps for at least an hour after each one. The promise we cling to.

3

Our Journey With Doose Syndrome: July 5, 2011 - the day everything changed

http://ourjourneywithdoose.blogspot.com/p/july-5-2011-day-everything-changed.html

July 5, 2011 - the day everything changed. Ben at the 4th of July parade. My best friend, Angie called me and invited us to go to Chuck E Cheese with her and Nathan. I waited to tell Ben until after his nap and he was thrilled! There were many toys in the living room that I was nagging him to clean up. We heard Angie's van pull into the driveway and he started picking the toys up faster than ever. At the follow up appointment, Dr. Perry casually mentioned that he could have something called Myoclonic...

4

Our Journey With Doose Syndrome: Medications

http://ourjourneywithdoose.blogspot.com/p/medications.html

We started off on Trileptal. Before we got the Doose diagnosis. The first med we tried was Zonegran. It was his first time to swallow pills and he did great! Then we moved on to Keppra. I was very scared of the side effects of this medication. We didn't see any for the time we were on it. But it didn't help at all. We started using Clonazapam. On a regular basis rather than just as a rescue med. It seemed like he continually built up a tolerance to this one. Then we tried Topamax. We are currently on the...

5

Our Journey With Doose Syndrome: the plan

http://ourjourneywithdoose.blogspot.com/2012/01/plan.html

Thursday, January 5, 2012. I'm not really sure where to start. This post may be a bit fragmented as I'm still trying to piece together all of the information we received today. On a great note, Ben has had a great day! We've noticed a big improvement as the day has gone along. He's having a few myoclonic or drop seizures every hour instead of a few every 10 minutes. But it doesn't negate the fact that we still need to try something new. We have to stay focused on now. But that's very hard to do. He said ...

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Bella AND Lyla are the FRUIT of my womb!: March 2014

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Bella AND Lyla are the FRUIT of my womb! Psalm 24:1 The earth is the LORD'S, and the fullness thereof; the world, and they that dwell therein. Friday, March 14, 2014. We couldn't take it anymore, just couldn't take it! We left JFK at 7 am and looked like this by 130 pm - a direct 3.5 hour flight cannot be beat. I've never seen more beautiful water than here, it even beat Bora Bora. It was shockingly clear. The view from the lobby. Hanging with my BFF. There were beautiful flower like this EVERYWHERE.

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Bella AND Lyla are the FRUIT of my womb!: When did she turn 5.

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Bella AND Lyla are the FRUIT of my womb! Psalm 24:1 The earth is the LORD'S, and the fullness thereof; the world, and they that dwell therein. Wednesday, October 09, 2013. When did she turn 5. My precious little baby girl is now FIVE.YEARS.OLD. How did that happen so quickly? 5 year old check up. Last night of being 4. She never uses covers - - just like her daddy. Those pigtails are delicious. A glimpse into her sense of humor. Subscribe to: Post Comments (Atom). Some Cool Places to Check Out.

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Bella AND Lyla are the FRUIT of my womb!: Busy Time of Life

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Bella AND Lyla are the FRUIT of my womb! Psalm 24:1 The earth is the LORD'S, and the fullness thereof; the world, and they that dwell therein. Sunday, December 01, 2013. Busy Time of Life. Id love to follow you on instagram - Im laurieannes. :) blogging is hard sometimes! Subscribe to: Post Comments (Atom). Some Cool Places to Check Out. Best Photographer in Minneapolis. Exceedingly, Abundantly, Above. View my complete profile. Just a quick thought of Lyla. Busy Time of Life.

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Bella AND Lyla are the FRUIT of my womb!: Happy 7th my sweet Bella

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Bella AND Lyla are the FRUIT of my womb! Psalm 24:1 The earth is the LORD'S, and the fullness thereof; the world, and they that dwell therein. Friday, March 14, 2014. Happy 7th my sweet Bella. Theme: Obviously My Little Pony. The star of the party. Daddy made this beautiful fruit platter - other food was fries, chicken nuggets and cones from Chicken Joes YUM! Mommy made the rainbow, it didn't turn out exactly as I had pictured, but I was please nonetheless. The room ready for the little monkeys to arrive.

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Bella AND Lyla are the FRUIT of my womb!: May 2013

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Bella AND Lyla are the FRUIT of my womb! Psalm 24:1 The earth is the LORD'S, and the fullness thereof; the world, and they that dwell therein. Thursday, May 30, 2013. Family room - we played so many games here this last weekend because we have poor cell service and the wireless is weak - HANDS FREE BABY. Lyla helping clean the deck. The view from the dock. Lyla checking out the scenery with the binoculars backwards. Fresh flowers in my redneck vase. A nice stream we found on our walk. Ready for a cook out.

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Bella AND Lyla are the FRUIT of my womb!: June 2013

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Bella AND Lyla are the FRUIT of my womb! Psalm 24:1 The earth is the LORD'S, and the fullness thereof; the world, and they that dwell therein. Tuesday, June 18, 2013. My sweet, precious, little ladies - Mommy is so proud of you as you recently completed your first year at Greenwich Spanish School. You both thrived there and it was just as your daddy and I hoped and prayed it would be. The last day of school. This picture is one of my all time favorites - it captures just who she is. Getting ready to sing.

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Bella AND Lyla are the FRUIT of my womb!: 7 Things I love

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Bella AND Lyla are the FRUIT of my womb! Psalm 24:1 The earth is the LORD'S, and the fullness thereof; the world, and they that dwell therein. Friday, March 14, 2014. 7 Things I love. Bella, for your 7th birthday 7 things I love about you:. 3) the way you tell me every single detail about your school days the minute you step off the bus. 4) the wonderful friend you are to Lyla. 5) you are a peacemaker. 6) the way your face lights up anytime you receive a gift - large or small. View my complete profile.

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Bella AND Lyla are the FRUIT of my womb!: September 2013

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Bella AND Lyla are the FRUIT of my womb! Psalm 24:1 The earth is the LORD'S, and the fullness thereof; the world, and they that dwell therein. Tuesday, September 24, 2013. First Day of School Skirt. One of the back to school traditions I've implemented with Bella is seeing how many years she can wear the little polka dot skirt below for her first day. I have to give a shout out here to Mini Boden clothing, it is durable and quality and even after 3 years still looks brand new. 4 years old - Nursery School.

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Bella AND Lyla are the FRUIT of my womb!: December 2013

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Bella AND Lyla are the FRUIT of my womb! Psalm 24:1 The earth is the LORD'S, and the fullness thereof; the world, and they that dwell therein. Thursday, December 19, 2013. Just a quick thought of Lyla. Monday, December 02, 2013. Sunday, December 01, 2013. Busy Time of Life. Subscribe to: Posts (Atom). Some Cool Places to Check Out. Best Photographer in Minneapolis. Exceedingly, Abundantly, Above. View my complete profile. Just a quick thought of Lyla. Busy Time of Life.

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4 Paws For Mia: Mia's Friends

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4 Paws For Mia. Another chapter in our journey with epilepsy. Mia and Epic her service dog! 4 Paws For Ability. Mia's Story and Donation Info. As we've been going through our journey with dealing with everything that comes with epilepsy, I've come across some amazing families who share t heir stories through blogging. I am thankful for them and their willingness to share so openly and honestly about what they go th rough. The hardships, the vict o ries and the miracles! Beat ing E pilepsy- Cole. Mia was ...

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Our Journey With Doose Syndrome

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