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PAP Foundation (Pulmonary Alveolar Proteinosis)

The PAP Foundation is a non-profit advocacy organization dedicated to finding a cure and improving lives of those affected by Pulmonary Alveolar Proteinosis.

http://www.papfoundation.org/

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CONTACTS AT PAPFOUNDATION.ORG

The PAP Foundation Inc

The PAP Foundation Inc

10453 ●●●●●● Court

Nor●●●enn , CO, 80233

US

1.51●●●●4183
no●●●●●●●●●●●●@worldnic.com

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The PAP Foundation Inc

The PAP Foundation Inc

10453 ●●●●●● Court

Nor●●●enn , CO, 80233

US

1.51●●●●4183
no●●●●●●●●●●●●@worldnic.com

View this contact

The PAP Foundation Inc

The PAP Foundation Inc

10453 ●●●●●● Court

Nor●●●enn , CO, 80233

US

1.51●●●●4183
no●●●●●●●●●●●●@worldnic.com

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PAP Foundation (Pulmonary Alveolar Proteinosis) | papfoundation.org Reviews
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The PAP Foundation is a non-profit advocacy organization dedicated to finding a cure and improving lives of those affected by Pulmonary Alveolar Proteinosis.
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PAP Foundation (Pulmonary Alveolar Proteinosis) | papfoundation.org Reviews

https://papfoundation.org

The PAP Foundation is a non-profit advocacy organization dedicated to finding a cure and improving lives of those affected by Pulmonary Alveolar Proteinosis.

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papfoundation.org papfoundation.org
1

PAP Foundation - Pulmonary Alveolar Proteinosis

https://www.papfoundation.org/forhealthprofessionals.html

For Individuals with PAP. Please select a section below:. Shortness of breath at rest or with exercise. Unexplained, diffuse infiltrates on the chest x-ray. Levels in the blood ( hypoxemia. Fever, if secondary infection is present. Clubbing of the fingers (advanced disease). Bluish hue of the fingernails (advanced disease). A diagnosis of PAP can be established in most patients by a combination of a typical history of symptoms, radiographic abnormalities, hypoxemia. Of the lung. A computed tomography.

2

PAP Foundation - Pulmonary Alveolar Proteinosis

https://www.papfoundation.org/aboutus.html

For Individuals with PAP. Please select a section below:. Medical and Scientific Advisory Board. The PAP Foundation is dedicated to worldwide collaboration among patients, clinicians and scientists that will increase awareness, research and understanding, improve health, and hasten development of effective therapy of pulmonary alveolar proteinosis. Bruce C. Trapnell, M.D. Medical and Scientific Advisory Board. Bruce C. Trapnell, M.D. (Chair). Mani Kavuru, M.D. John Seymour, M.D. Michael Beers, M.D.

3

PAP Foundation - Pulmonary Alveolar Proteinosis

https://www.papfoundation.org/forthemedia.html

For Individuals with PAP. Please select a section below:. What is Pulmonary Alveolar Proteinosis? In normal lungs, specialized immune cells called alveolar macrophages swallow and remove inhaled particles and excess surfactant from the alveoli. In the most common form of PAP, it has been suggested that the alveolar macrophages do not function properly and consequently cannot break-down and remove the material they swallow. They become inefficient at clearing material from the lungs. PAP may progress in s...

4

PAP Foundation - Pulmonary Alveolar Proteinosis

https://www.papfoundation.org/forvolunteers.html

For Individuals with PAP. How can I help the PAP Foundation? You can help the PAP Foundation is several important ways. You can become a volunteer. We need help with fundraising. You can make a donation yourself. You can help in the development of educational materials about PAP. You can help raise awareness about PAP. Please contact us if you have questions or would like to discuss other ways in which you can help. TEL: 513-513-4813 FAX: 513-636-3723. Powered by Network Solutions.

5

PAP Foundation - Pulmonary Alveolar Proteinosis

https://www.papfoundation.org/home.html

For Individuals with PAP. Is a life-threatening lung disorder that affects men, women, and children. Is a non-profit patient advocacy organization dedicated to finding a cure and to improving the lives of those affected by PAP. Through advocacy and collaboration, we promote research on PAP and provide information and support for PAP patients, healthcare professionals, and the public. International PAP Scientific Research Meeting, May 15, 2010, New Orleans, LA, USA. TEL: 513-513-4813 FAX: 513-636-3723.

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lysinuricproteinintolerance.blogspot.com lysinuricproteinintolerance.blogspot.com

James' Story: June 2007

http://lysinuricproteinintolerance.blogspot.com/2007_06_01_archive.html

LPI, PAP, and our family. Saturday, 30 June 2007. Pictures - It's been a while! This was James a few minutes before he pulled out his first J-tube. He was having great fun under the car fixing it . just like daddy does. Thursday at his appointment. Althought feeling awful after his nap he so badly wanted to play with the toys . such a trooper! James new bed and room. Behind me is the bathroom (a full bathroom - tub and shower) and my sleeping area, as well as some proper storage area too. The doctor sat ...

lysinuricproteinintolerance.blogspot.com lysinuricproteinintolerance.blogspot.com

James' Story: July 2007

http://lysinuricproteinintolerance.blogspot.com/2007_07_01_archive.html

LPI, PAP, and our family. Wednesday, 25 July 2007. Today we have been blessed with the birth of our son Matthew. Born by scheduled C-section 2 weeks early, he tipped the scale at 7lbs 9oz, the heaviest of our children. So far he eats well, and sleeps good. He loves to squirm around and is persistant to have his hands free. Tuesday, 24 July 2007. Opposite, I'm not counting on it! We carry on . one day at a time! And maybe some day, some year I'll be able to actually get some sleep again :). On the good si...

lysinuricproteinintolerance.blogspot.com lysinuricproteinintolerance.blogspot.com

James' Story: December 2007

http://lysinuricproteinintolerance.blogspot.com/2007_12_01_archive.html

LPI, PAP, and our family. Saturday, 15 December 2007. Wednesday, December 15, 2004. London Health Sciences Centre. Friday, November 23, 2007. Hospital for Sick Children. On Wednesday, December 15, 2004 at 9:58am the Lord blessed our family with what was deemed to be healthy baby boy. T. His was a great relief. Losing James older brother Justin, due to pregnancy complication and prematurity (born at 27. Many times we are a. He was held he was often happier, and so we wrote him off as another. Would have a...

lysinuricproteinintolerance.blogspot.com lysinuricproteinintolerance.blogspot.com

James' Story: Happy Birthday - James is 2!!

http://lysinuricproteinintolerance.blogspot.com/2006/12/happy-birthday-james-is-2.html

LPI, PAP, and our family. Friday, 15 December 2006. Happy Birthday - James is 2! Wow, what a year! I was looking at James' birthday pictures from last year a few days ago and thought to myself "I had no idea what the year would bring." But I suppose we can look at most years and think that in some way shape or form . so we'll see what I think next year when I look back at this years pictures. Jotting down some thoughts. It was funky hair day. I think this one was the. Favourite toy of the day. God's bles...

lysinuricproteinintolerance.blogspot.com lysinuricproteinintolerance.blogspot.com

James' Story: James' Multipersonality Friend

http://lysinuricproteinintolerance.blogspot.com/2007/02/james-multipersonality-friend.html

LPI, PAP, and our family. Friday, 9 February 2007. In the last blog, we made mention of James' dear and faithful friend Teddy. Now isn't that an original name for a teddy bear? Well, there's a story to how Teddy got his name. Way back in the fall, James began to covet Rebecca's stuffed puppy named Spot. (can you guess.it has spots! What a strange surprise! Then we recalled that Freddy originally had had a tag on him, (note the pluperfect tense: had had, meani. Oh that is so cute! This blog has been set u...

lysinuricproteinintolerance.blogspot.com lysinuricproteinintolerance.blogspot.com

James' Story: Thank-you All

http://lysinuricproteinintolerance.blogspot.com/2007/12/its-hard-to-believe-that-its-only.html

LPI, PAP, and our family. Friday, 14 December 2007. It's hard to believe that it's only a little over a year ago that I began this blog. But as we read the purpose on the side of the blog (and here. Medical information. Even though we were not writing to entertain readers, we became mindful of this, and posted relevant links from which anybody read up on if so inclined. At times we summarized the big picture or made analogies. So that all our readers could understand what was going on. In spite. As paren...

lysinuricproteinintolerance.blogspot.com lysinuricproteinintolerance.blogspot.com

James' Story: In Loving Memory

http://lysinuricproteinintolerance.blogspot.com/2007/12/in-loving-memory.html

LPI, PAP, and our family. Saturday, 15 December 2007. Wednesday, December 15, 2004. London Health Sciences Centre. Friday, November 23, 2007. Hospital for Sick Children. On Wednesday, December 15, 2004 at 9:58am the Lord blessed our family with what was deemed to be healthy baby boy. T. His was a great relief. Losing James older brother Justin, due to pregnancy complication and prematurity (born at 27. Many times we are a. He was held he was often happier, and so we wrote him off as another. Would have a...

lysinuricproteinintolerance.blogspot.com lysinuricproteinintolerance.blogspot.com

James' Story: LPI Explained by Wikipedia

http://lysinuricproteinintolerance.blogspot.com/2006/11/lpi-explained-by-wikipedia.html

LPI, PAP, and our family. Wednesday, 29 November 2006. LPI Explained by Wikipedia. Lysinuric protein intolerance (LPI), also named hyperdibasic aminoaciduria type 2 or familial protein intolerance, is an autosomal recessive disorder of diamino acid transport. About 100 patients have been reported, almost half of them of Finnish origin. Treatment of LPI consists of protein-restricted diet and supplementationwith oral citrulline. Citrulline is a neutral amino acid that improves the function of the urea...

lysinuricproteinintolerance.blogspot.com lysinuricproteinintolerance.blogspot.com

James' Story: September 2007

http://lysinuricproteinintolerance.blogspot.com/2007_09_01_archive.html

LPI, PAP, and our family. Sunday, 30 September 2007. Friday, 28 September 2007. Although there still remain risks with doing the Partial Lavage, the doctors are confident that things will go well and that James will make it through okay and recuperate quickly. They are still saying that he will likely be able to go home after a couple days, and we hope they are right. Thursday, 27 September 2007. Although nothing has really changed the doctors are still very busy and likely we will be busy later today or...

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