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A Piece of Kate

One family's journey with Pierre Robin Sequence

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A Piece of Kate | pieceofkateb.blogspot.com Reviews
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One family&#39;s journey with Pierre Robin Sequence
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A Piece of Kate | pieceofkateb.blogspot.com Reviews

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One family&#39;s journey with Pierre Robin Sequence

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1

A Piece of Kate: Two years

http://pieceofkateb.blogspot.com/2010/07/two-years.html

A Piece of Kate. One family's journey with Pierre Robin Sequence. Sunday, July 4, 2010. That's right - 2 years since the piece of silicone in her neck was removed. A tiny piece of equipment that kept her alive, and created more drama in 2 years than I'd seen in my 40 years. The sense of relief didn't kick in til much much later. Shock was a more accurate description for B. and I since it wasn't where we'd thought we'd be, nor how we'd expected her decannulation to take place. Jennifer M. Spear. Join the ...

2

A Piece of Kate: June 2010

http://pieceofkateb.blogspot.com/2010_06_01_archive.html

A Piece of Kate. One family's journey with Pierre Robin Sequence. Wednesday, June 30, 2010. She likes to swim, she takes ballet, she loves princesses and pink and she drives me absolutely mad some days. Subscribe to: Posts (Atom). Pierre Robin.what's that? Kate was born with Pierre Robin Sequence. Never heard of it? This is our story. Cleft Lip and Palate Assoc. Kaptured by Kate photography. Children's Hospital of Philadelphia. Kate at 2 1/2. Watermark template. Powered by Blogger.

3

A Piece of Kate: Cleft Palate Clinic

http://pieceofkateb.blogspot.com/2009/11/cleft-palate-clinic.html

A Piece of Kate. One family's journey with Pierre Robin Sequence. Monday, November 16, 2009. The first person to see Kate was a speech therapist. She asked Kate to repeat several words and phrases to her, held a mirror under Kate's nose and told us Kate was doing well. (Really? Well golly we had NO idea - insert eye roll emoticon here). She said it was important that no air escape through Kate's nose during speech - - but didn't say why. Ok then. Wow what a day! Its nice having them group the apointments...

4

A Piece of Kate: November 2009

http://pieceofkateb.blogspot.com/2009_11_01_archive.html

A Piece of Kate. One family's journey with Pierre Robin Sequence. Monday, November 16, 2009. The first person to see Kate was a speech therapist. She asked Kate to repeat several words and phrases to her, held a mirror under Kate's nose and told us Kate was doing well. (Really? Well golly we had NO idea - insert eye roll emoticon here). She said it was important that no air escape through Kate's nose during speech - - but didn't say why. Ok then. Subscribe to: Posts (Atom). Pierre Robin.what's that?

5

A Piece of Kate: test

http://pieceofkateb.blogspot.com/2012/08/test.html

A Piece of Kate. One family's journey with Pierre Robin Sequence. Tuesday, August 7, 2012. It is health that is real wealth and not pieces. Of gold and silver. See the link below for more info. March 31, 2015 at 10:07 PM. Reading your article is such a privilege. It does inspire me,. I hope that you can share more positive thoughts. Visit my site too. The link is posted below. July 28, 2016 at 9:25 PM. Subscribe to: Post Comments (Atom). Pierre Robin.what's that? This is our story. Kate at 2 1/2.

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Ellie Rose: Goodbye GI!

http://llewellynrose.blogspot.com/2013/10/goodbye-gi.html

Friday, October 4, 2013. Jennifer M. Spear. Subscribe to: Post Comments (Atom). Http:/ http:/ health.groups.yahoo.com/group/pierrerobin/messages. Another PRS Princess- Moriah. Elijah's Caring Bridge page. Http:/ www.caringbridge.org/visit/elijahandco. A Piece of Kate. Another PRS baby and mom. Jennifer M. Spear. Law school graduate and mommy to a special needs girl. View my complete profile. Ethereal template. Powered by Blogger.

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Ellie Rose: October 2013

http://llewellynrose.blogspot.com/2013_10_01_archive.html

Wednesday, October 16, 2013. Last week she started speaking in 2-3 word sentences and expanding her vocabulary. Her teacher also noticed it and today at the speech therapist we were told how great her speech is coming along. So far she has said, mama sit; no, ellie eat; sid, where are you (Sid is our foster pup)? She's also managed to say off/on when she wants the lights or tv off or on. She's also currently obsessed with "Wheels on the Bus." I'm starting to really hate that song. Jennifer M. Spear.

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Ellie Rose: Big picture update

http://llewellynrose.blogspot.com/2014/07/big-picture-update.html

Tuesday, July 29, 2014. She can follow most directions (the attitude is still present). She has definitely matured, however, as we have fewer and fewer tantrums over nothing. She rides the school bus this year. We sign her up on Friday. There's just so much more I can't even list it all here. Jennifer M. Spear. Subscribe to: Post Comments (Atom). Http:/ http:/ health.groups.yahoo.com/group/pierrerobin/messages. Another PRS Princess- Moriah. Elijah's Caring Bridge page. A Piece of Kate.

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Ellie Rose: April 2013

http://llewellynrose.blogspot.com/2013_04_01_archive.html

Friday, April 19, 2013. I say, "Okay? Jennifer M. Spear. Thursday, April 11, 2013. Does this mean feeding tube? Jennifer M. Spear. Subscribe to: Posts (Atom). Http:/ http:/ health.groups.yahoo.com/group/pierrerobin/messages. Another PRS Princess- Moriah. Elijah's Caring Bridge page. Http:/ www.caringbridge.org/visit/elijahandco. A Piece of Kate. Another PRS baby and mom. Jennifer M. Spear. Law school graduate and mommy to a special needs girl. View my complete profile.

llewellynrose.blogspot.com llewellynrose.blogspot.com

Ellie Rose: December 2013

http://llewellynrose.blogspot.com/2013_12_01_archive.html

Wednesday, December 25, 2013. Jennifer M. Spear. Subscribe to: Posts (Atom). Http:/ http:/ health.groups.yahoo.com/group/pierrerobin/messages. Another PRS Princess- Moriah. Elijah's Caring Bridge page. Http:/ www.caringbridge.org/visit/elijahandco. A Piece of Kate. Another PRS baby and mom. Jennifer M. Spear. Law school graduate and mommy to a special needs girl. View my complete profile. Ethereal template. Powered by Blogger.

llewellynrose.blogspot.com llewellynrose.blogspot.com

Ellie Rose: March 2014

http://llewellynrose.blogspot.com/2014_03_01_archive.html

Sunday, March 30, 2014. Big Girl and FAQ STATS. She had her ENT check up. Weighed in at 25.2. her height was just under 38 inches. Her talking is amazing. She's using 3-4 word sentences, with great understanding. June she started Crawling July first unassisted steps August sitting and straw September - cruising. Jennifer M. Spear. Subscribe to: Posts (Atom). Big Girl and FAQ STATS. Http:/ http:/ health.groups.yahoo.com/group/pierrerobin/messages. Another PRS Princess- Moriah. Elijah's Caring Bridge page.

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Ellie Rose: June 2013

http://llewellynrose.blogspot.com/2013_06_01_archive.html

Friday, June 28, 2013. Jennifer M. Spear. Thursday, June 6, 2013. It's been a while. Jennifer M. Spear. Subscribe to: Posts (Atom). Its been a while. Http:/ http:/ health.groups.yahoo.com/group/pierrerobin/messages. Another PRS Princess- Moriah. Elijah's Caring Bridge page. Http:/ www.caringbridge.org/visit/elijahandco. A Piece of Kate. Another PRS baby and mom. Jennifer M. Spear. Law school graduate and mommy to a special needs girl. View my complete profile. Ethereal template. Powered by Blogger.

llewellynrose.blogspot.com llewellynrose.blogspot.com

Ellie Rose: Merry Christmas!

http://llewellynrose.blogspot.com/2013/12/merry-christmas.html

Wednesday, December 25, 2013. Jennifer M. Spear. Subscribe to: Post Comments (Atom). Http:/ http:/ health.groups.yahoo.com/group/pierrerobin/messages. Another PRS Princess- Moriah. Elijah's Caring Bridge page. Http:/ www.caringbridge.org/visit/elijahandco. A Piece of Kate. Another PRS baby and mom. Jennifer M. Spear. Law school graduate and mommy to a special needs girl. View my complete profile. Ethereal template. Powered by Blogger.

llewellynrose.blogspot.com llewellynrose.blogspot.com

Ellie Rose: July 2014

http://llewellynrose.blogspot.com/2014_07_01_archive.html

Tuesday, July 29, 2014. She can follow most directions (the attitude is still present). She has definitely matured, however, as we have fewer and fewer tantrums over nothing. She rides the school bus this year. We sign her up on Friday. There's just so much more I can't even list it all here. Jennifer M. Spear. Subscribe to: Posts (Atom). Http:/ http:/ health.groups.yahoo.com/group/pierrerobin/messages. Another PRS Princess- Moriah. Elijah's Caring Bridge page. A Piece of Kate. Another PRS baby and mom.

llewellynrose.blogspot.com llewellynrose.blogspot.com

Ellie Rose: It's been a while

http://llewellynrose.blogspot.com/2014/02/its-been-while.html

Wednesday, February 19, 2014. It's been a while. Jennifer M. Spear. Subscribe to: Post Comments (Atom). Its been a while. Http:/ http:/ health.groups.yahoo.com/group/pierrerobin/messages. Another PRS Princess- Moriah. Elijah's Caring Bridge page. Http:/ www.caringbridge.org/visit/elijahandco. A Piece of Kate. Another PRS baby and mom. Jennifer M. Spear. Law school graduate and mommy to a special needs girl. View my complete profile. Ethereal template. Powered by Blogger.

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