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Raising Emily

A Father's Journey Through Infantile Spasms. Wednesday, March 31, 2010. He Loves Her More Than I Do! Sometimes it's easy for me to forget that Jesus loves Emily more than I do. Especially when things are hard and bad things are happening to her that I don't understand or can't explain. When those things happen it's easy for me to lose focus and think of the issue/issues at hand. And that is where the mistake is made. Compared to how much God loves them! And that is something you can always fall back on!

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Raising Emily | princessemilyjean.blogspot.com Reviews

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A Father's Journey Through Infantile Spasms. Wednesday, March 31, 2010. He Loves Her More Than I Do! Sometimes it's easy for me to forget that Jesus loves Emily more than I do. Especially when things are hard and bad things are happening to her that I don't understand or can't explain. When those things happen it's easy for me to lose focus and think of the issue/issues at hand. And that is where the mistake is made. Compared to how much God loves them! And that is something you can always fall back on!

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Raising Emily | princessemilyjean.blogspot.com Reviews

https://princessemilyjean.blogspot.com

A Father's Journey Through Infantile Spasms. Wednesday, March 31, 2010. He Loves Her More Than I Do! Sometimes it's easy for me to forget that Jesus loves Emily more than I do. Especially when things are hard and bad things are happening to her that I don't understand or can't explain. When those things happen it's easy for me to lose focus and think of the issue/issues at hand. And that is where the mistake is made. Compared to how much God loves them! And that is something you can always fall back on!

INTERNAL PAGES

princessemilyjean.blogspot.com

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Raising Emily: March 2010

http://www.princessemilyjean.blogspot.com/2010_03_01_archive.html

A Father's Journey Through Infantile Spasms. Wednesday, March 31, 2010. He Loves Her More Than I Do! Sometimes it's easy for me to forget that Jesus loves Emily more than I do. Especially when things are hard and bad things are happening to her that I don't understand or can't explain. When those things happen it's easy for me to lose focus and think of the issue/issues at hand. And that is where the mistake is made. Compared to how much God loves them! And that is something you can always fall back on!

2

Raising Emily: I Love You More Today Than Yesterday...

http://www.princessemilyjean.blogspot.com/2010/03/i-love-you-more-today-than-yesterday.html

A Father's Journey Through Infantile Spasms. Wednesday, March 17, 2010. I Love You More Today Than Yesterday. May I use this blog for something other than Infantile Spasms for a moment? Yesterday was a very special day for the Rollins family. It was the 6th anniversary of the most wonderful marriage in the world! Think that's a pretty big statement? Please, allow me to provide you with. Erica is my soul-mate and A person can't say they've truly lived until they've found and lived with their soul mate.

3

Raising Emily: Nightmares and Dreamscapes

http://www.princessemilyjean.blogspot.com/2010/03/nightmares-and-dreamscapes.html

A Father's Journey Through Infantile Spasms. Monday, March 15, 2010. This week has been really rough. We are back in the hospital for what will make a full week today. Emily started having her "big seizures" at home last Monday and we ended up back in the ER which then led to a week long. Stay Which also then led into surgery (G-tube placement), a Lumbar Puncture (Spinal Tap), another MRI, Starting the Ketogenic. Diet and another EEG. Isn't that enough already? So what we can still hope for is. This week...

4

Raising Emily: Persistence

http://www.princessemilyjean.blogspot.com/2010/03/persistence.html

A Father's Journey Through Infantile Spasms. Sunday, March 21, 2010. So how in the world does a person get through all this when all they want to do sometimes is throw in the towel? I've found that being persistent is key. It's not easy but if you stay persistent things tend to work themselves out. The Parable of the Persistent Widow. 1 Then Jesus told his disciples a parable to show them that they should always pray and not give up. Will he keep putting them off? 8 I tell you, he will see that they get ...

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Raising Emily: He Loves Her More Than I Do!!!

http://www.princessemilyjean.blogspot.com/2010/03/he-loves-her-more-than-me.html

A Father's Journey Through Infantile Spasms. Wednesday, March 31, 2010. He Loves Her More Than I Do! Sometimes it's easy for me to forget that Jesus loves Emily more than I do. Especially when things are hard and bad things are happening to her that I don't understand or can't explain. When those things happen it's easy for me to lose focus and think of the issue/issues at hand. And that is where the mistake is made. Compared to how much God loves them! And that is something you can always fall back on!

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ourbeautifulemily.blogspot.com

our journey with infantile spasms: He is officially in the Navy!

http://ourbeautifulemily.blogspot.com/2013/01/he-is-officially-in-navy.html

Our journey with infantile spasms. Our beautiful daughter, Emily, was diagnosed with infantile spasms in dec, 09. Our world has been turned upside down and this is our story. Thursday, January 24, 2013. He is officially in the Navy! Joe had his swearing in ceremony today around 10am. His roommate took a few pics for him so we could all see! He is on the plane right now on his way to Chicago. I have been able to talk and text with him all day which helps a ton! This was from his going away party. Thats aw...

ourbeautifulemily.blogspot.com

our journey with infantile spasms: So it begins.....

http://ourbeautifulemily.blogspot.com/2013/01/so-it-begins.html

Our journey with infantile spasms. Our beautiful daughter, Emily, was diagnosed with infantile spasms in dec, 09. Our world has been turned upside down and this is our story. Wednesday, January 23, 2013. I am home.without joe. :(. It has been on of the hardest things I have done. We all hugged and cried together. Emily kept saying her version on dad. He will stay the night in the hotel again and get up around 4am to head over to the meps center to have his swearing in ceremony. I am so proud of Joe.

ourbeautifulemily.blogspot.com

our journey with infantile spasms: December 2011

http://ourbeautifulemily.blogspot.com/2011_12_01_archive.html

Our journey with infantile spasms. Our beautiful daughter, Emily, was diagnosed with infantile spasms in dec, 09. Our world has been turned upside down and this is our story. Tuesday, December 20, 2011. I did not abandon my blog. Just needed a break. Losing your home, moving into a temporary apartment, then moving into a rental house will do that to you. I guess I have not really told anyone and since my blog is private I can share with you all. I was hard, heartbreaking and very humbling.. She is takin...

ourbeautifulemily.blogspot.com

our journey with infantile spasms: May 2011

http://ourbeautifulemily.blogspot.com/2011_05_01_archive.html

Our journey with infantile spasms. Our beautiful daughter, Emily, was diagnosed with infantile spasms in dec, 09. Our world has been turned upside down and this is our story. Monday, May 30, 2011. Something is wrong with my blog. It is not allowing people to comment normally. To comment you have to select anonymous and just type your name in the comment. I was wondering why no one was commenting on my last 3 posts. :). Links to this post. Sunday, May 29, 2011. Guess what Emily did today! Here is the link.

ourbeautifulemily.blogspot.com

our journey with infantile spasms: January 2012

http://ourbeautifulemily.blogspot.com/2012_01_01_archive.html

Our journey with infantile spasms. Our beautiful daughter, Emily, was diagnosed with infantile spasms in dec, 09. Our world has been turned upside down and this is our story. Friday, January 27, 2012. I am doing most of my updates about Emily on a facebook page for her. It is much easier to keep up with. I can text pictures and info in without having to log onto a computer. Https:/ www.facebook.com/pages/For-the-love-of-Emily/365099180170471. Links to this post. Subscribe to: Posts (Atom).

ourbeautifulemily.blogspot.com

our journey with infantile spasms: September 2011

http://ourbeautifulemily.blogspot.com/2011_09_01_archive.html

Our journey with infantile spasms. Our beautiful daughter, Emily, was diagnosed with infantile spasms in dec, 09. Our world has been turned upside down and this is our story. Thursday, September 22, 2011. Kind of a big deal! Emily literally just began to bear weight on her legs this past week. We do lots of practicing with it. So tonight I stood her up and tada.she took a few steps towards me! I yelled for Joe to grab the camera and we did it again. She is so amazing! Links to this post. She is so silly!

ourbeautifulemily.blogspot.com

our journey with infantile spasms: January 2013

http://ourbeautifulemily.blogspot.com/2013_01_01_archive.html

Our journey with infantile spasms. Our beautiful daughter, Emily, was diagnosed with infantile spasms in dec, 09. Our world has been turned upside down and this is our story. Friday, January 25, 2013. Joe called me at 1:30am to let me know he is there safely. It was a quick call. He said he could call again in 2 weeks. Emily won't sleep at night and wakes up crying. Normally, Joe would get up with her and go in the living room and hold her. It was their alone time. I can't do it like he does apparently.

ourbeautifulemily.blogspot.com

our journey with infantile spasms: June 2011

http://ourbeautifulemily.blogspot.com/2011_06_01_archive.html

Our journey with infantile spasms. Our beautiful daughter, Emily, was diagnosed with infantile spasms in dec, 09. Our world has been turned upside down and this is our story. Sunday, June 19, 2011. Father's Day is very bitter sweet for me. I love it because I get to celebrate the wonderful father that Joe is. Emily is lucky to have such a devoted and loving daddy. My step-dad, Mark, came into our lives when I was just 7. He really is the only father I have ever known. BUT, he was always there for us!

ourbeautifulemily.blogspot.com

our journey with infantile spasms: September 2012

http://ourbeautifulemily.blogspot.com/2012_09_01_archive.html

Our journey with infantile spasms. Our beautiful daughter, Emily, was diagnosed with infantile spasms in dec, 09. Our world has been turned upside down and this is our story. Thursday, September 27, 2012. It's been a while. I haven't blogged since February! Many things have happened since then. Pneumonia.twice, RSV, moved.twice, 3rd birthday, and now the NAVY! Joe, Emily's dad, has enlisted in the Navy. Boot camp is March 12th. We will, of course, miss our family and friends. She started therapy in a new...

ourbeautifulemily.blogspot.com

our journey with infantile spasms: August 2011

http://ourbeautifulemily.blogspot.com/2011_08_01_archive.html

Our journey with infantile spasms. Our beautiful daughter, Emily, was diagnosed with infantile spasms in dec, 09. Our world has been turned upside down and this is our story. Monday, August 22, 2011. Well friends, I did it! I successfully went out of town, stayed the night, enjoyed myself, and came home to what I left. I was so very nervous, more than I am afraid to admit. I have never left Emily overnight. Tried once last year, it ended in failure and a trip to the er. All the things I worry about.

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Raising Emily

A Father's Journey Through Infantile Spasms. Wednesday, March 31, 2010. He Loves Her More Than I Do! Sometimes it's easy for me to forget that Jesus loves Emily more than I do. Especially when things are hard and bad things are happening to her that I don't understand or can't explain. When those things happen it's easy for me to lose focus and think of the issue/issues at hand. And that is where the mistake is made. Compared to how much God loves them! And that is something you can always fall back on!

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Shhh! Secret Life of a Princess

Secret Life of a Princess. Random, provoking thoughts from a self-confessed princess : with focus on motivational learnings from the media. I hope to inspire everyone to be the best they can be. Monday, December 09, 2013. My current favorite song at the moment as I am going through some very trying times. Sung by Eason Chan but written for him by non other than my favorite: Jay Chou. Thank God for packaging so much talent, emotions and wit into one person who is willing to present it to the world. Someti...