Welcome to the Parry-Romberg Syndrome Resource, Inc. website. We are a unique nonprofit organization dedicated to providing awareness of Parry-Romberg Disease. The goal of our site is to provide comprehensive and current information to support and educate the community, particularly Parry-Romberg patients, their families, and medical professionals.
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Parry-Romberg Syndrome Resource, Inc.
crystal mcdowell
4815 Cr●●●●●●●ver Ct.
Indi●●●●olis , Indiana, 46240
United States
View this contact
Parry-Romberg Syndrome Resource, Inc.
crystal mcdowell
4815 Cr●●●●●●●ver Ct.
Indi●●●●olis , Indiana, 46240
United States
View this contact
Parry-Romberg Syndrome Resource, Inc.
crystal mcdowell
4815 Cr●●●●●●●ver Ct.
Indi●●●●olis , Indiana, 46240
United States
View this contact
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Home page of Parry-Romberg Syndrome Resource, Inc. | prsresource.com Reviews
https://prsresource.com
Welcome to the Parry-Romberg Syndrome Resource, Inc. website. We are a unique nonprofit organization dedicated to providing awareness of Parry-Romberg Disease. The goal of our site is to provide comprehensive and current information to support and educate the community, particularly Parry-Romberg patients, their families, and medical professionals.
thehankchronicles.blogspot.com
The Hank Chronicles: November 2009
http://thehankchronicles.blogspot.com/2009_11_01_archive.html
Hank In The News. Hope for Hank" Fundraiser Photos. Wear GREEN for Hank. Wednesday, November 25, 2009. One week from today, Hank will be in surgery! Can't believe it's here! How quickly the last five months have passed. Weren't we just there? But I think the stress is getting to me. Tears are flowing. After a year of holding it together, I no longer can. Why now? Hank has been his usual stoic self. When I ask him how he feels about surgery, he gives me a big smile and a thumbs up. “Good! And was pointing...
thehankchronicles.blogspot.com
The Hank Chronicles: December 2009
http://thehankchronicles.blogspot.com/2009_12_01_archive.html
Hank In The News. Hope for Hank" Fundraiser Photos. Wear GREEN for Hank. Sunday, December 6, 2009. It's Sunday, late morning and I am in the playroom watching Lucy play pretend and Hank and Charlie play video games. Just a normal weekend in the Gibbs' household. Except it's anything, but "normal". This isn't our playroom.and those aren't our video games.and this isn't the Gibbs' household! He said to Hank, as they gave each other a high-five. "How are you feeling? Hank replied. "You look great! I smiled ...
thehankchronicles.blogspot.com
The Hank Chronicles: May 2010
http://thehankchronicles.blogspot.com/2010_05_01_archive.html
Hank In The News. Hope for Hank" Fundraiser Photos. Wear GREEN for Hank. Monday, May 17, 2010. I call it the "let down". You go, go, go.and then STOP! But we can't stop. Hank has a progressive illness.and we need to stay diligent, watchful, and. Aware And so we prepare to head back to NYC this summer.for a follow-up appointment and 3rd (minor) revision. In the meantime, we are so grateful to have Dr. John Siebert.the man who truly gave us hope through all of this. The man who made a huge diff...Even so, ...
thehankchronicles.blogspot.com
The Hank Chronicles: July 2009
http://thehankchronicles.blogspot.com/2009_07_01_archive.html
Hank In The News. Hope for Hank" Fundraiser Photos. Wear GREEN for Hank. Thursday, July 30, 2009. Three weeks post-surgery. Has it. Time seems to be suspended as we eagerly watch Hank's face for signs that he is healing. Each day he looks. More and more like his old self.after getting used to the atrophy on the left side of his face, we are now trying to get used to the fuller-than-full left side of his face. He has lots of energy and wants to be outside and doing things! Before he ever had the surgery?
thehankchronicles.blogspot.com
The Hank Chronicles: Wear GREEN for Hank
http://thehankchronicles.blogspot.com/p/wear-green-for-hank.html
Hank In The News. Hope for Hank" Fundraiser Photos. Wear GREEN for Hank. Wear GREEN for Hank. On Surgery Day, June 19, 2014, we asked everyone to wear GREEN. For Hank and show their support. It meant to world to us, that so many people were thinking about, praying for, and took the time to not only wear green, but send and post their photos. We are still showing him the photos and the greetings! Subscribe to: Posts (Atom). The students at OMS wearing green for Rare Disease Day 2015. STUDENT OF THE MONTH!
Kealy's Journey with Linear Scleroderma from Mom's Perspective: Follow up Visit
http://kealyona.blogspot.com/2012/04/follow-up-visit.html
Kealy's Journey with Linear Scleroderma from Mom's Perspective. A journey with linear scleroderma, en coup de sabre, Parry Romberg syndrome or whatever you want to call it. Note: All images/videos throught out this blog are the property of Terry Bullard, and cannot be used without my consent. Thanks! Wednesday, April 4, 2012. Thank you to the Church of Christ family in Skiatook for their support, the funds they provided will sponsor most all of this next trip. We love you guys. And I didn't wait ...And j...
thehankchronicles.blogspot.com
The Hank Chronicles: April 2009
http://thehankchronicles.blogspot.com/2009_04_01_archive.html
Hank In The News. Hope for Hank" Fundraiser Photos. Wear GREEN for Hank. Tuesday, April 21, 2009. Ten weeks until we are back in New York for Hank's surgery. Time is flying! Hank talked about the trip and the surgery the other day. He is looking forward to the trip and understands about the surgery, but the poor little guy has no idea what the recovery will be like! And that's good.we NEED Jeff to be busy, but bad timing to be away for two weeks. Not thrilled about being in New York by myself, but I am g...
thehankchronicles.blogspot.com
The Hank Chronicles: Hank In The News
http://thehankchronicles.blogspot.com/p/hank-in-news.html
Hank In The News. Hope for Hank" Fundraiser Photos. Wear GREEN for Hank. Hank In The News. In our effort to raise awareness of Parry Romberg Syndrome as well as our fundraising efforts for Hank's surgeries.Hank has had some news coverage. You can read the stories and watch the news clips by clicking on the links below. While in NYC, we were interviewed by FOX News. Read the article here:. Http:/ www.foxnews.com/story/0,2933,598207,00.html. Fox 40 News Boy-Afflicted-With-Disease-You-Have-Never-Heard-Of.
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Home page of Parry-Romberg Syndrome Resource, Inc.
Welcome to the Parry-Romberg Syndrome Resource, Inc. website. We are a unique nonprofit organization dedicated to providing awareness of Parry-Romberg Disease. The goal of our site is to provide comprehensive and current information to support and educate the community, particularly Parry-Romberg patients, their families, and medical professionals.
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