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Amazing Adventures of Ayden Jane

Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Sunday, August 9, 2015. This post is one of those that is rattling around in my head. Parts of it are clear and parts of it make me feel awkward. Here we go anyway. Is there a track to jump? How exactly did we make the leap? She is different. It will echo with me for a while as I try to understand the full extent of that simple statement. Saturday, August 1, 2015. So I watch in awe ...

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Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Sunday, August 9, 2015. This post is one of those that is rattling around in my head. Parts of it are clear and parts of it make me feel awkward. Here we go anyway. Is there a track to jump? How exactly did we make the leap? She is different. It will echo with me for a while as I try to understand the full extent of that simple statement. Saturday, August 1, 2015. So I watch in awe ...

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Amazing Adventures of Ayden Jane | pwsgulley.blogspot.com Reviews

https://pwsgulley.blogspot.com

Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Sunday, August 9, 2015. This post is one of those that is rattling around in my head. Parts of it are clear and parts of it make me feel awkward. Here we go anyway. Is there a track to jump? How exactly did we make the leap? She is different. It will echo with me for a while as I try to understand the full extent of that simple statement. Saturday, August 1, 2015. So I watch in awe ...

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pwsgulley.blogspot.com

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Amazing Adventures of Ayden Jane: May 2015

http://pwsgulley.blogspot.com/2015_05_01_archive.html

Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Sunday, May 31, 2015. PWS Awareness month - wrap up. As this years edition of PWS posts come to a close, what is most on my mind is how much less I have to say about PWS at this point. Wait. Maybe it's not less as I have tons of information packed in this head of mine that has been acquired over the past 7 years. Maybe it's just different? The waiting to see which of the long list o...

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Amazing Adventures of Ayden Jane: Cranking up the Carnitine

http://pwsgulley.blogspot.com/2015/07/cranking-up-carnitine.html

Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Thursday, July 30, 2015. Cranking up the Carnitine. So as usual, I was not satisfied with things going well. I needed to know if they could be even better! I did the math and decided I was going to go for a third dose of carnitine. It will put Ayden Jane at a total of about 46 mg/kg. Subscribe to: Post Comments (Atom). View my complete profile. Cranking up the Carnitine.

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Amazing Adventures of Ayden Jane: She is Different

http://pwsgulley.blogspot.com/2015/08/she-is-different.html

Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Sunday, August 9, 2015. This post is one of those that is rattling around in my head. Parts of it are clear and parts of it make me feel awkward. Here we go anyway. Is there a track to jump? How exactly did we make the leap? She is different. It will echo with me for a while as I try to understand the full extent of that simple statement. Subscribe to: Post Comments (Atom).

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Amazing Adventures of Ayden Jane: Perspective

http://pwsgulley.blogspot.com/2015/08/perspective.html

Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Saturday, August 1, 2015. I watched Ayden Jane play at the beach today. More specifically, I watched her work crazy hard to keep up with twins one year older (who are very athletic). She rode boogie boards with them. The waves were big and the current strong but she kept at it. She was a part of the gang and she was very happy to be with them. Subscribe to: Post Comments (Atom).

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Amazing Adventures of Ayden Jane: PWS month - Siblings

http://pwsgulley.blogspot.com/2015/05/pws-month-siblings.html

Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Wednesday, May 13, 2015. PWS month - Siblings. No doubt being a sibling to a medically complicated/special needs (PWS or otherwise) child is challenging. It's not something the sibling asked for any more than the kiddo with PWS. I struggle with the ways that Ayden Jane has taken away from her siblings. Subscribe to: Post Comments (Atom). View my complete profile. PWS month - Siblings.

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bringingupbagleys.blogspot.com

Bringing UP Bagleys: March 2012

http://bringingupbagleys.blogspot.com/2012_03_01_archive.html

I hate to brag but,. no I don't! Although my life has been very hectic and overwhelming these days there is one thing I can always count on, the unconditional love and support of my husband. I am so in love with you Mitchell, more than ever before. Thank you for all that you are and all that you do for me and our family. You are my PERFECT match! A Mom Needing to Vent. It has been way to long since I have released these thoughts going through my head. I want so badly to be the mom my kids look at and say...

bringingupbagleys.blogspot.com

Bringing UP Bagleys: February 2011

http://bringingupbagleys.blogspot.com/2011_02_01_archive.html

I am so proud to be her mom, though I feel incapable most days. One Week and Counting. Ann Margret has been on Growth Hormone for one week. Surprisingly the shots are getting easier even at this point and she doesn't seem to be bothered much by them. We have seen some improvement in movement though minimal, its improvement. Subscribe to: Posts (Atom). View my complete profile. Mitchell (My Main Squeeze! Miles (My First Born! Ann Margret (Our Precious Gift! Amazing Adventures of Ayden Jane. A Leap Of Faith.

bringingupbagleys.blogspot.com

Bringing UP Bagleys: August 2011

http://bringingupbagleys.blogspot.com/2011_08_01_archive.html

Long Time No Post! It has been too long. A lot has been going on which explains my absence. I hope to update on everything that has been happening within the next few days (with pictures). Subscribe to: Posts (Atom). I am a wife, mom, nurse and most importantly a child of Jesus. I have a wonderful husband who puts up with more that he should and three amazing kids, which i am doing my best to "bring up.". View my complete profile. Mitchell (My Main Squeeze! Miles (My First Born! Diving Into the Waves.

bringingupbagleys.blogspot.com

Bringing UP Bagleys: January 2012

http://bringingupbagleys.blogspot.com/2012_01_01_archive.html

I am so glad God chose us to be his parents and am excited to see what this year holds. I hope its less whining and more cleaning. hey, I can hope, right? Subscribe to: Posts (Atom). I am a wife, mom, nurse and most importantly a child of Jesus. I have a wonderful husband who puts up with more that he should and three amazing kids, which i am doing my best to "bring up.". View my complete profile. Mitchell (My Main Squeeze! Miles (My First Born! Ann Margret (Our Precious Gift! Diving Into the Waves.

bringingupbagleys.blogspot.com

Bringing UP Bagleys: November 2013

http://bringingupbagleys.blogspot.com/2013_11_01_archive.html

There must be a spiritual emphasis here. There is, upon pointing out this thought to my husband, God reveals this: when your eyes are focused away from the Son (light), evil (darkness) doesn't seem so evil (dark). Likewise, when we are focused on the Son (light) the dark is DARK. AND SCARY. While I'm glad that the light being covered on the beach revealed that it was safe to keep my spot by the ocean, I'm afraid at what dark paths I might be taking in life because my eyes aren't on Jesus. This is the man...

breadandotherprovisions.blogspot.com

Bread and Other Provisions: December 2014

http://breadandotherprovisions.blogspot.com/2014_12_01_archive.html

Bread and Other Provisions. For I know that through your prayers and God’s provision of the Spirit of Jesus Christ what has happened to me will turn out for my deliverance." Philippians 1:19. Monday, December 22, 2014. It's been a while since I've posted but the Fall was busy with finalizing paperwork. We were DTC (paperwork sent to China) 11/13/14. We were LID (Logged into their system) 11/21/14. Then OOT (out of Translation) 12/4/14. And of course we have financial things to take care of in the meantime.

tippetytappity.blogspot.com

Say What You Need to Say: July 2013

http://tippetytappity.blogspot.com/2013_07_01_archive.html

Say What You Need to Say. Sunday, July 21, 2013. The "slippery-slope" of gene therapy. First, to understand what I'm talking about, read this article:. Http:/ www.dailymail.co.uk/health/article-2368276/Scientists-switch-extra-chromosome-causes-Downs-Syndrome.html. Here is one quote from the article (but, you should really click on the link and read the whole thing):. If this plan of action became available - what would society feel about parents who chose NOT to have their unborn child's genes geneticall...

tippetytappity.blogspot.com

Say What You Need to Say: July 2011

http://tippetytappity.blogspot.com/2011_07_01_archive.html

Say What You Need to Say. Saturday, July 16, 2011. I know, I'm a little late to the party, oh well! 1 If you knew your best friend's spouse was cheating on her or him, would you tell her (him)? YES I know it would be a hard thing to do, but for that kind of behavior to continue hurts everyone involved. It would be hard for me to have someone tell. 2 Soda in a can or a bottle? 3 What do you wash first, hair or body? Hair And lately, every time I wash my hair (which is every day of course! Oh, and also, do...

tippetytappity.blogspot.com

Say What You Need to Say: September 2011

http://tippetytappity.blogspot.com/2011_09_01_archive.html

Say What You Need to Say. Sunday, September 11, 2011. I know many people will have much to say, today. It is hard to believe that it has been 10 years since we watched the terrible and unthinkable play across our t.v. screens and our newspapers and our computer screens. I was 28 at the time. My world had taken a monumental turn when I became a parent.that day, that morning, I think the entire universe shifted for many, many people. I have to admit, I have been trying. Subscribe to: Posts (Atom). Little B...

diaryofapwsmom.wordpress.com

More PWS Sources | Diary of a PWS Mom

https://diaryofapwsmom.wordpress.com/prader-willi-syndrome/more-pws-sources

Diary of a PWS Mom. Here are some great sources to become informed:. Foundation for Prader-Willi Research. Just about every state has a local chapter you can get involved in. Here are some great blogs to follow, ranging from eating healthy to living with PWS everyday:. Http:/ divingintothewaves.blogspot.com. Http:/ www.pwsgulley.blogspot.com. Http:/ www.savorysolutions.blogspot.com. Http:/ stayinghealthywhenhungerstrikes.wordpress.com. Leave a Reply Cancel reply. Enter your comment here.

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Amazing Adventures of Ayden Jane

Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Sunday, August 9, 2015. This post is one of those that is rattling around in my head. Parts of it are clear and parts of it make me feel awkward. Here we go anyway. Is there a track to jump? How exactly did we make the leap? She is different. It will echo with me for a while as I try to understand the full extent of that simple statement. Saturday, August 1, 2015. So I watch in awe ...

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