rettgirl.blogspot.com

Rett Girl Blog

Saturday, June 20, 2015. Looking Forward with Hope. Just because these girls have Rett Syndrome does not mean they are not still "Daddy's Little Girl" . times one million! To all the Rett Dads - thank you for your special role in raising these very special girls. My wife and I, in periods of Rett difficulty, will remind each other that "we will win this." I look forward to the time when I can correct that mantra. Someday, it'll be nice to say "we won.". Girl Power 2 Cure. This guy. Who wants to burp ...

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Saturday, June 20, 2015. Looking Forward with Hope. Just because these girls have Rett Syndrome does not mean they are not still Daddy's Little Girl . times one million! To all the Rett Dads - thank you for your special role in raising these very special girls. My wife and I, in periods of Rett difficulty, will remind each other that we will win this. I look forward to the time when I can correct that mantra. Someday, it'll be nice to say we won.. Girl Power 2 Cure. This guy. Who wants to burp ...

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Rett Girl Blog | rettgirl.blogspot.com Reviews

https://rettgirl.blogspot.com

Saturday, June 20, 2015. Looking Forward with Hope. Just because these girls have Rett Syndrome does not mean they are not still "Daddy's Little Girl" . times one million! To all the Rett Dads - thank you for your special role in raising these very special girls. My wife and I, in periods of Rett difficulty, will remind each other that "we will win this." I look forward to the time when I can correct that mantra. Someday, it'll be nice to say "we won.". Girl Power 2 Cure. This guy. Who wants to burp ...

INTERNAL PAGES

rettgirl.blogspot.com

1

Rett Girl Blog: November 2014

http://rettgirl.blogspot.com/2014_11_01_archive.html

Tuesday, November 11, 2014. 2014 Rett Girl Holiday Gift Guide. The wait is over! RettGirl.org's 6th Annual Holiday Gift Guide. Each year, since 2009, we have scoured online to find products we hope that special Rett Girl in your life will love! We are Rett parents, too, and know how hard it can be to shop for our girls. Please pass this guide on to friends and family who are searching for that perfect gift for our girls! This year we continue the gift giving philosophy from year's past:. There are lots o...

2

Rett Girl Blog: June 2015

http://rettgirl.blogspot.com/2015_06_01_archive.html

Saturday, June 20, 2015. Looking Forward with Hope. Just because these girls have Rett Syndrome does not mean they are not still "Daddy's Little Girl" . times one million! To all the Rett Dads - thank you for your special role in raising these very special girls. My wife and I, in periods of Rett difficulty, will remind each other that "we will win this." I look forward to the time when I can correct that mantra. Someday, it'll be nice to say "we won.". Girl Power 2 Cure. This guy. Who wants to burp ...

3

Rett Girl Blog: February 2015

http://rettgirl.blogspot.com/2015_02_01_archive.html

Monday, February 2, 2015. How I Saved Over $27,000 Last Year. Special Guest Blogger: Syndi Knowlton, Rett mom and couponing expert. There is predictability in most things you purchase for your home. I am attaching a list here. To see a more complete list. A lot of it is common sense. We all make New Year’s Resolutions. Many of them include losing weight and getting healthier. This is a great time to purchase your exercise equipment and stock up on vitamins. You are also half way through the winter. Scan ...

4

Rett Girl Blog: Holiday Tips from Girl Power 2 Cure!

http://rettgirl.blogspot.com/2010/12/holiday-tips-from-girl-power-2-cure.html

Monday, December 20, 2010. Holiday Tips from Girl Power 2 Cure! With the Holidays upon us we wanted to give some advice for Parents, Friends and Families of RettGirls. On how to handle the holidays,visiting,gifting and including the girls in your life! Year after year we hear stories from parents who are just beside themselves with the stress of the holidays. From family who don't. Our Mother site Girl Power 2 cure. The biggest thing to overcome during the holidays is just pure stress. Everyone. Handling...

5

Rett Girl Blog: Looking Forward with Hope

http://rettgirl.blogspot.com/2015/06/looking-forward-with-hope.html

Saturday, June 20, 2015. Looking Forward with Hope. Just because these girls have Rett Syndrome does not mean they are not still "Daddy's Little Girl" . times one million! To all the Rett Dads - thank you for your special role in raising these very special girls. My wife and I, in periods of Rett difficulty, will remind each other that "we will win this." I look forward to the time when I can correct that mantra. Someday, it'll be nice to say "we won.". Girl Power 2 Cure. Girl Power 2 Cure.

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Product Reviews « Rett Girl

http://rettgirl.org/product-reviews

Follow us on twitter. Friend us on facebook. Take a look around! We have a ton to share with you! And please share with us! Everything here is hopefully something that will help your little girl fight a stronger fight against Rett Syndrome. Check out our product reviews, tips from other families, resource guides and doctor/therapist list! Girl Power 2 Cure items. Gluten and Dairy Free Recipes. Holiday Gift Ideas – 2009. Holiday Gift Ideas – 2010. Holiday Gift Ideas – 2011. Holiday Gift Ideas – 2012.

rettgirl.org

Resources « Rett Girl

http://rettgirl.org/resources

Follow us on twitter. Friend us on facebook. Take a look around! We have a ton to share with you! And please share with us! Everything here is hopefully something that will help your little girl fight a stronger fight against Rett Syndrome. Check out our product reviews, tips from other families, resource guides and doctor/therapist list! Girl Power 2 Cure items. Gluten and Dairy Free Recipes. Holiday Gift Ideas – 2009. Holiday Gift Ideas – 2010. Holiday Gift Ideas – 2011. Holiday Gift Ideas – 2012.

rettgirl.org

Doctors/Therapists « Rett Girl

http://rettgirl.org/doctorstherapists

Follow us on twitter. Friend us on facebook. Take a look around! We have a ton to share with you! And please share with us! Everything here is hopefully something that will help your little girl fight a stronger fight against Rett Syndrome. Check out our product reviews, tips from other families, resource guides and doctor/therapist list! Girl Power 2 Cure items. Gluten and Dairy Free Recipes. Holiday Gift Ideas – 2009. Holiday Gift Ideas – 2010. Holiday Gift Ideas – 2011. Holiday Gift Ideas – 2012.

mysilentangelsfight.blogspot.com

My Silent Angel's Fight: Pre-School Awareness Letter

http://mysilentangelsfight.blogspot.com/2013/08/pre-school-awareness-letter.html

Oaklynn's Story - Video. The 4 Stages of RS. Monday, August 12, 2013. The following is a letter I typed up and then had the teacher put in all the kids backpacks. I think it is important to spread awareness and not be shy about your child being "special". More moms need to speak up about their child so that others feel comfortable around them too. ENJOY! Our daughter Oaklynn is in Ms. Melanie’s. Preschool class with your child. We wanted to introduce her to you! If you (or your child) have ANY questions ...

mysilentangelsfight.blogspot.com

My Silent Angel's Fight: My Vinyl Business

http://mysilentangelsfight.blogspot.com/p/my-vinyl-business.html

Oaklynn's Story - Video. The 4 Stages of RS. Check out my Etsy shop. www.etsy.com/shop/uniquevinyldesigns4u. Like" us on Facebook! Sweet and happy family.Really the designs are unique and the rest been said by the pics. April 18, 2013 at 5:56 AM. Subscribe to: Posts (Atom). 365 Days of Gifts from My Nonverbal Daughter. Girl Power 2 Cure. Runner Spotlight: Kelly O'Donahoe. My Morning Glories, all of them. Rett Mom's Crafty Side Helps Daughter and Others! Special Mommy x 2. Quest for a Cure 2013!

mysilentangelsfight.blogspot.com

My Silent Angel's Fight: Oaklynn's Story - Video

http://mysilentangelsfight.blogspot.com/p/oaklynns-story-video.html

Oaklynn's Story - Video. The 4 Stages of RS. Oaklynn's Story - Video. Oaklynn is a doll! I just ran across your family this morning while shopping at Cents of Style. I dont have a lot of followers yet, but Ill share her story with everyone I can. Ill remember to pray for your angel and will rock my Love necklace with pride! October 10, 2012 at 8:52 AM. September 27, 2013 at 5:24 AM. This is beautiful. God bless you, as a mommy and daddy you seem to be doing a super job! January 28, 2014 at 8:36 AM.

mysilentangelsfight.blogspot.com

My Silent Angel's Fight: Blue Sky Girls Speech

http://mysilentangelsfight.blogspot.com/2014/10/blue-sky-girls-speech.html

Oaklynn's Story - Video. The 4 Stages of RS. Saturday, October 11, 2014. Blue Sky Girls Speech. Today I got to address a large crowd and talk about Rett Syndrome and my view of it as her mom. Here is my speech. It wasn't until a week after her diagnosis that I stopped researching Rett Syndrome and decided to stop focusing on what the medical books told me my daughter wouldn't do and start focusing on what she can do and enjoy each and every day I was able to spend with her. There was so much about her th...

mysilentangelsfight.blogspot.com

My Silent Angel's Fight: What is RS?

http://mysilentangelsfight.blogspot.com/p/about-rett-syndrome.html

Oaklynn's Story - Video. The 4 Stages of RS. I found this explanation of Rett syndrome for children but I think it's GREAT for adults too:. Most people have never heard of Rett syndrome. But you. Might know a girl with Rett syndrome! She may live in your. Neighborhood or attend your school. You probably noticed. Right away that she makes special movements with her hands. Almost all the time. Do you wonder why? It is because she has. A condition called Rett syndrome that affects her brain. She loses the a...

mysilentangelsfight.blogspot.com

My Silent Angel's Fight: Button panick

http://mysilentangelsfight.blogspot.com/2013/11/button-panick.html

Oaklynn's Story - Video. The 4 Stages of RS. Thursday, November 7, 2013. I sat Oaklynn down in her "happy chair" to watch some Mickey Mouse in her room before her Occupational Therapist got here. Therapy came and she left Oaklynn in the same chair to work on eating and playing with some other things. About 40 minutes into therapy, the OT stood her up to move her to another position and when she stood her up, she noticed that a button (g-tube) was sitting on her chair. I checked out her old button and the...

rettnews.blogspot.com

Rett Syndrome News: Special Successes over Autism: Autism-Rett Syndrome Connection

http://rettnews.blogspot.com/2011/01/special-successes-over-autism-autism.html

News about Rett syndrome. Jan 10, 2011. Special Successes over Autism: Autism-Rett Syndrome Connection. Special Successes over Autism: Autism-Rett Syndrome Connection. This is a continuation of my previous post: Understanding Autism-“The” Causes. In the last paragraph, I mentioned that the types of r. The Trouble with Rett Syndrome. After my last post, my father-in-law called and said, "I'm confused! You wrote that Abby is having a good summer and Rob said she was having all kinds of m. Hey Everybody&#4...

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rettgirl.blogspot.com

Rett Girl Blog

Saturday, June 20, 2015. Looking Forward with Hope. Just because these girls have Rett Syndrome does not mean they are not still "Daddy's Little Girl" . times one million! To all the Rett Dads - thank you for your special role in raising these very special girls. My wife and I, in periods of Rett difficulty, will remind each other that "we will win this." I look forward to the time when I can correct that mantra. Someday, it'll be nice to say "we won.". Girl Power 2 Cure. This guy. Who wants to burp ...

rettgirl.org

About Us « Rett Girl

Follow us on twitter. Friend us on facebook. Take a look around! We have a ton to share with you! And please share with us! Everything here is hopefully something that will help your little girl fight a stronger fight against Rett Syndrome. Check out our product reviews, tips from other families, and even our own little Rett-"bay" where you can find/sell/donate used items. Girl Power 2 Cure items. Gluten and Dairy Free Recipes. Holiday Gift Ideas – 2009. Holiday Gift Ideas – 2010. Welcome to Rett Girl!

rettgive.org

RettGive | Crowdfunding for Rett Research

Our global community is united by a common bond: the urgent desire to cure our children. RettGive, our own crowd funding platform, turns your passion into personalized virtual fundraising events. Empowering you to be part of the solution, right now, wherever you are. Let’s make Rett history, together. You asked, we answered! Our community has been looking for an attractive, economical and easy way to help raise crucial research funds for Rett Syndrome. We’re proud to introduce RettGive. We made it easy.

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Rett Goings Web & Graphic Design | Under Construction

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The Law Office of Rett Gray P.C. Call Now: 214.800.2880. Pricing and Payment plans. Been accused of a crime in Texas, call us today. Principle office 6060 N. Central Expy. suite 560 Dallas, Texas 75219. Top Attorney Criminal Defense.

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14ο Πανελλήνιο Παιδονευρολογικό Συνέδριο. Ημερίδα Autism Awareness Πανεπιστήμιο Μακεδονίας. RSE 2014 Συνάντηση της Ευρώπης στη Βιέννη. 3ο Πανελλήνιο Συνέδριο Ασθενών. 1st Galien Think Tank Greece Forum. 2ο Πανελλήνιο Συνέδριο Ασθενών. 6o Συνέδριο Π.Ε.Σ.ΠΑ. 3ο Ευρωπαϊκό Συνέδριο για το Σύνδρομο Rett. Ενημέρωση Υψηλού Κινδύνου - ΜΜΕ and Δημόσια Υγεία. Σεμινάριο για τα Οικονομικά της Υγείας. Παγκόσμια Ημέρα Σπάνιων Παθήσεων. 1o Πανελλήνιο Συνέδριο Ασθενών. Μαραθώνιος Μέγας Αλέξανδρος Θεσ/νίκη 2015. Ενιαίος ...