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1 main navigation
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3 about ryven
4 our mission
5 wiskott aldrich syndrome
6 donations
7 events
8 ryven foundation
9 for all donations
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1

Our Mission

http://www.ryvenfoundation.com/Our_Mission.php

A foundation for Wiskott-Aldrich Patients. The Ryven Foundation is a not-for-profit organisation that aims to assist Australian children and their families diagnosed with Wiskott-Aldrich Syndrome (WAS). The Ryven Foundation will. Be actively involved in promoting blood donations, and bone marrow registrations. Help to assist WAS families in need of emotional and financial support. Help to raise awareness of rare diseases in Australia. Supporting families throughout the transplant process.

2

Home Page

http://www.ryvenfoundation.com/Home_Page.php

A foundation for Wiskott-Aldrich Patients. To donate through PayPal use the Donate button Below. Or make a donation to the following account:. ACCOUNT NAME: Rally For Ryven Fundraising Lunch. For all enquirers contact: kntodd@bigpond.com.

3

Wiskott-Aldrich Syndrome

http://www.ryvenfoundation.com/Wiskott-Aldrich_Syndrome.php

A foundation for Wiskott-Aldrich Patients. Wiskott-Aldrich Sydrome (WAS) is a rare X-linked recessive disease characterised by eczema, thrombocytopenia (low platelet count), immune deficiency, and bloody diarrhea (secondary to the thrombocytopenia).1 WAS occurs only in males and appears mostly in children. With good supportive care some boys with milder forms of WAS can live into adulthood.2 There is a 1 in 1 million chance for an Australian child being diagnosed with WAS. WAS Family Guide Final.pdf.

4

Events

http://www.ryvenfoundation.com/Events.php

A foundation for Wiskott-Aldrich Patients. The International Bone Marrow Registry of 15 million people returned no matches for 5 month old Baby Ryven who suffers from Wiskott-Aldrich Syndrome. A life threatening disease cured by Bone Marrow Transplant. Ryven’s father Robert and many athletes are doing Ironman 70.3 Mooloolaba on September 15 in an effort to promote awareness of the Bone Marrow Registry. Ironman 70.3 is a swim of 1.9km, Bike 90km and Run 21.1km. Simply nominate any athlete through.

5

Donations

http://www.ryvenfoundation.com/Donations.php

A foundation for Wiskott-Aldrich Patients. To donate through PayPal use the Donate button Below. Or make a donation to the following account:. ACCOUNT NAME: Rally For Ryven Fundraising Lunch. For all enquirers contact:. Ryven's Bone Marrow Match. Robert Harris (Ryven's father). Http:/ www.abmdr.org.au/pdf/dynamic pages/3/92447657 N1177%20ABMDR%20DL%208pp%20October%202012%20LR.pdf. Most people are able to give blood if they:. Are fit, healthy and not suffering from any illness in the previous 7 days;.

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A foundation for Wiskott-Aldrich Patients. To donate through PayPal use the Donate button Below. Or make a donation to the following account:. ACCOUNT NAME: Rally For Ryven Fundraising Lunch. For all enquirers contact: kntodd@bigpond.com.

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