sarahmatheson.blogspot.com

Sarah Matheson

Sarah Matheson suffers from Lennox Gastaut a difficult epilepsy syndrome, this is her story. Sunday, 24 February 2013. Two months into 2013 already. 2013 began for Sarah on rather a poorer health note! Last summer we had a fantastic holiday to. When as a family we were able to travel and have fun in the sun all together! Sarah coped very well. It is a bigger challenge taking Sarah on travels now but one we longed to do and she kept well untill the last day of it. At the moment we are using this drug to g...

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Sarah Matheson | sarahmatheson.blogspot.com Reviews

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Sarah Matheson suffers from Lennox Gastaut a difficult epilepsy syndrome, this is her story. Sunday, 24 February 2013. Two months into 2013 already. 2013 began for Sarah on rather a poorer health note! Last summer we had a fantastic holiday to. When as a family we were able to travel and have fun in the sun all together! Sarah coped very well. It is a bigger challenge taking Sarah on travels now but one we longed to do and she kept well untill the last day of it. At the moment we are using this drug to g...

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Sarah Matheson | sarahmatheson.blogspot.com Reviews

https://sarahmatheson.blogspot.com

Sarah Matheson suffers from Lennox Gastaut a difficult epilepsy syndrome, this is her story. Sunday, 24 February 2013. Two months into 2013 already. 2013 began for Sarah on rather a poorer health note! Last summer we had a fantastic holiday to. When as a family we were able to travel and have fun in the sun all together! Sarah coped very well. It is a bigger challenge taking Sarah on travels now but one we longed to do and she kept well untill the last day of it. At the moment we are using this drug to g...

INTERNAL PAGES

sarahmatheson.blogspot.com

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Sarah Matheson: April 2011

http://sarahmatheson.blogspot.com/2011_04_01_archive.html

Sarah Matheson suffers from Lennox Gastaut a difficult epilepsy syndrome, this is her story. Tuesday, 26 April 2011. Sarah very disoriented and wobbly today due to yesterdays IV medicines, leaving her tired and very irritiable for most of the day and into the evening. Her seizures have for now calmed but we will know more in next 48 hours if these recent seizure types (tonic seizures) are still there. Easter Friday arrived and six weeks since Sarah was last in Hospital. Steriods are now being weaned and ...

2

Sarah Matheson: The return of NCS - Late May 2012

http://sarahmatheson.blogspot.com/2012/05/return-late-may-2012.html

Sarah Matheson suffers from Lennox Gastaut a difficult epilepsy syndrome, this is her story. Tuesday, 29 May 2012. The return of NCS - Late May 2012. Sarah over the last weekend has had a build up of stronger and longer lasting tonic clonics in her sleep. Also Sarah in the past has regularly experienced horrible side effects mainly poor behaviour and poor concentration and deterioration in cognitive learning. Also Sarah has been more active as she has been so well. Will keep you posted.

3

Sarah Matheson: Moving Ahead - End September 2011

http://sarahmatheson.blogspot.com/2011/09/moving-ahead-end-september-2011.html

Sarah Matheson suffers from Lennox Gastaut a difficult epilepsy syndrome, this is her story. Monday, 26 September 2011. Moving Ahead - End September 2011. We have got so used to interruptions and delays in our family due to careing for Sarah and hospital visits, but this delay in writing an update on the blog is actually as we've been busy with lots of lovely things! Sarah is such a different wee girl these days, full of conversation , interaction, role play, physical activity and singing. As this was no...

4

Sarah Matheson: February 2011

http://sarahmatheson.blogspot.com/2011_02_01_archive.html

Sarah Matheson suffers from Lennox Gastaut a difficult epilepsy syndrome, this is her story. Tuesday, 22 February 2011. Great Ormond Street Consultation. Our appointment with Professor Cross London one week ago was so helpful. She confirmed Sarah’s diagnosis as Lennox Gastaut this is an epileptic encephalopathy, a complicated and difficult epilepsy syndrome. Sarah baring a miracle will always suffer seizures and will be affected cognitively as she matures, we are already seeing this. It’s a reminde...

5

Sarah Matheson: Good news on NCS - Early June 2012

http://sarahmatheson.blogspot.com/2012/06/good-news-on-ncs-early-june-2012.html

Sarah Matheson suffers from Lennox Gastaut a difficult epilepsy syndrome, this is her story. Monday, 4 June 2012. Good news on NCS - Early June 2012. Following on from her bad day, it was wonderful for Sarah to sleep 13 hours, what an answer to prayer as she woke up no next day having had no seizures over night and so much better! Her speech was back and her co ordination so much better. She was not so pleased when I said you will have to stay at home with me today to rest. We have been given anaesthetic...

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Sarah Matheson suffers from Lennox Gastaut a difficult epilepsy syndrome, this is her story. Sunday, 24 February 2013. Two months into 2013 already. 2013 began for Sarah on rather a poorer health note! Last summer we had a fantastic holiday to. When as a family we were able to travel and have fun in the sun all together! Sarah coped very well. It is a bigger challenge taking Sarah on travels now but one we longed to do and she kept well untill the last day of it. At the moment we are using this drug to g...

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