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Siena Eve | A Story about Love, Life & Prader-Willi Syndrome….A Story about Love, Life & Prader-Willi Syndrome.... (by MamaJame)
http://www.sienaeve.com/
A Story about Love, Life & Prader-Willi Syndrome.... (by MamaJame)
http://www.sienaeve.com/
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ME
MICHAEL SCHOENBERGER
405 ●●●● AVE
ELIZ●●●●TOWN , PA, 17022
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ME
MICHAEL SCHOENBERGER
405 ●●●● AVE
ELIZ●●●●TOWN , PA, 17022
US
View this contact
ME
MICHAEL SCHOENBERGER
405 ●●●● AVE
ELIZ●●●●TOWN , PA, 17022
US
View this contact
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Siena Eve | A Story about Love, Life & Prader-Willi Syndrome…. | sienaeve.com Reviews
https://sienaeve.com
A Story about Love, Life & Prader-Willi Syndrome.... (by MamaJame)
sienaeve.com
Siena Eve | A Story about Love, Life & Prader-Willi Syndrome…. | Page 2
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A Story about Love, Life and Prader-Willi Syndrome…. Skip to primary content. Skip to secondary content. Newer posts →. Oxytocin and Walk Info. We have a lot to announce today…. Siena’s PWS Walk 2015 will be held on October 17, 2015 at South Hills Park in Lebanon – we would love to see you there – details on registration, raffles, etc to come! Http:/ www.firstgiving.com/fundraiser/JamieSchoenberger/oxytocin-study. Tomorrow we will celebrate Siena’s 5th Birthday and are so very thankful for EVERY SI...
MamaJame | Siena Eve
http://sienaeve.com/author/epicphotography
A Story about Love, Life and Prader-Willi Syndrome…. Skip to primary content. Skip to secondary content. This is a great read- paints a good picture of the daily struggles of PWS. The photographer for this story spent two weeks with this family to try to gain a better knowledge of Prader-Willi Syndrome – amazing work! Guess who is now 6? Remembering this day 6 years ago and all the moments in between. Happy Birthday to our Sweetest Siena! This slideshow requires JavaScript. Thank you to those who have al...
Medical History | Siena Eve
http://sienaeve.com/medical-history
A Story about Love, Life and Prader-Willi Syndrome…. Skip to primary content. 6/13/11 – Adenoidectomy – duPont – Dr. Barth – blood drawn for carnitine test, waiting for results – will take a week or two. 6/9/11 – Went back to lab at Hershey to redo blood test since wrong test was done (Creatinine instead of Carnitine), but could not find a vein – said to ask them to draw blood during surgery on 6/13. 6/2/11 Dr. Gottlieb and Pre-Surgery Appt. (blood tests for anesthesia). 4/29/11 – Pittsburgh Trip. He gav...
About | Siena Eve
http://sienaeve.com/about
A Story about Love, Life and Prader-Willi Syndrome…. Skip to primary content. Our sweet Siena was diagnosed with Prader-Willi Syndrome on March 10th, two days before her first birthday. This Blog was created to highlight her milestones and chronicle medical stepping stones. This is only the beginning of our journey with PWS, but we do know that not many people know about this rare genetic disorder. Please join us in raising awareness for PWS! THANK YOU for stopping by Siena’s Blog! 102011 at 9:40 pm.
Rare Disease Day/Month coming soon! | Siena Eve
http://sienaeve.com/2015/02/20/rare-disease-daymonth-coming-soon
A Story about Love, Life and Prader-Willi Syndrome…. Skip to primary content. Rare Disease Day/Month coming soon! Siena Eve will turn 5 during 2015 Rare Disease month (March)! She was diagnosed with Prader-Willi Syndrome March 10, 2011…. oh, how far we have come since that dreaded phone call…. and now that we are stronger it is definitely time to kick this rare disease in the teeth! And Global Genes Project. This entry was posted in Uncategorized. Leave a Reply Cancel reply. Enter your comment here.
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Things I have learned living on the periphery of hunger for 26 years. – Devour My Words
https://vandemom2.wordpress.com/me-at-53
A small taste of life on the fringe of Prader-Willi Syndrome. Me, at 53……and other life tidbits. I must know you. If you look, there is always beauty. Things I have learned living on the periphery of hunger for 26 years. Things I have learned living on the periphery of hunger for 26 years. Can you think of anyone who lives each day with awareness of. How precious it is? How often do we take the time to realize the significance of each day? Would we be able to live through it? Some, more significant.
While Katie is at Camp- Ozark Life 2015- An Inviting Cabin – Devour My Words
https://vandemom2.wordpress.com/2015/06/29/while-katie-is-at-camp-ozark-life-2015-an-inviting-cabin
A small taste of life on the fringe of Prader-Willi Syndrome. Me, at 53……and other life tidbits. I must know you. If you look, there is always beauty. Things I have learned living on the periphery of hunger for 26 years. June 29, 2015. While Katie is at Camp- Ozark Life 2015- An Inviting Cabin. Fortunately, we had no jewels to steal, but things would have gotten nasty if she had gone for the licorice or salt water taffy on the table! Without having heard it from Yeats, I have always lived by his phrase:.
vandemom2 – Devour My Words
https://vandemom2.wordpress.com/author/vandemom2
A small taste of life on the fringe of Prader-Willi Syndrome. Me, at 53……and other life tidbits. I must know you. If you look, there is always beauty. Things I have learned living on the periphery of hunger for 26 years. October 25, 2016. To know me, is to know the real thing. From the blog Devour My Words by Anne VandeMoortel. October 4, 2016. 8230;because there is a game called baseball. I wrote. I deleted. I pondered how to write a post about Challenger Little League’s 2016 Great River Challen...The d...
Mississippi Valley Fair Concerts 2015: Night Two~Reba – Devour My Words
https://vandemom2.wordpress.com/2015/08/08/mississippi-valley-fair-concerts-2015-night-tworeba
A small taste of life on the fringe of Prader-Willi Syndrome. Me, at 53……and other life tidbits. I must know you. If you look, there is always beauty. Things I have learned living on the periphery of hunger for 26 years. August 8, 2015. Mississippi Valley Fair Concerts 2015: Night Two Reba. Perspective folks….Life is all about perspective. From the blog Devour My Words by Anne VandeMoortel. This entry was posted in Uncategorized. And tagged "Prader-Willi Syndrome". The great Mississippi Valley fair.
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SIENA ESTATE AGENCY - Chianti Country House - Turchi Immobiliare
Most Popular Tuscan Properties This week's most admired properties in Siena, Chianti and Tuscany. Country house in Montalcino. Beautiful and characteristic country house built in XVI Century. All the buildings (520 sqmt surface) need a complete restoration. Scenic view. Independent position. 10 km from Siena. Independent Country house in Chianti. Country house in Chianti Area. Country house in Sienise crete. Wonderful Country House completely restored. Actual owners has restored the house with all th...
Siena Eve | A Story about Love, Life & Prader-Willi Syndrome….
A Story about Love, Life and Prader-Willi Syndrome…. Skip to primary content. Skip to secondary content. Oxytocin and Walk Info. We have a lot to announce today…. Siena’s PWS Walk 2015 will be held on October 17, 2015 at South Hills Park in Lebanon – we would love to see you there – details on registration, raffles, etc to come! Http:/ www.firstgiving.com/fundraiser/JamieSchoenberger/oxytocin-study. Tomorrow we will celebrate Siena’s 5th Birthday and are so very thankful for EVERY SINGLE AMAZING MO...
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