gwendolynstrongfoundation.org.oniric.us
Gwendolyn Strong Foundation : What We Do
http://gwendolynstrongfoundation.org.oniric.us/campaigns
What you can do. 200K For SMA—Phase Two Funding the pre-clinical sma model. On the heels of the success of the " $200K For SMA - Phase One. Campaign, in March 2011 theGSF launched "$200K For SMA - Phase Two" to fund the first ever SMA pre-clinical animal model. theGSF once again enthusiastically partnered with FightSMA. And their esteemed scientific advisory board to fund groundbreaking research that will impact many facets of SMA research, including gene therapy, for years to come. We’ve always be...
sebastiankowo.blogspot.com
Sebastian, SMA, tata i ja: Informacje o SMA
http://sebastiankowo.blogspot.com/p/informacje-o-sma.html
Jedną z najgroźniejszych odmian zaniku mięśni u dzieci jest rdzeniowy zanik mięśni (SMA). Jest to choroba dziedziczna, a jednocześnie choroba uwarunkowana genetycznie. Istnieją trzy typy SMA:. 8211; SMA 1 - objawy choroby pojawiają się zaraz po urodzeniu dziecka lub też do szóstego miesiąca po jego narodzinach. Jakie są objawy? 8211; SMA 3 - objawy choroby pojawiają się później niż we wcześniejszych przypadkach (między 3 a 15 rokiem życiem dziecka). Choroba na początku objawia się zaburzeniami ruchow...
thegsf.org
Gwendolyn Strong Foundation : Blog : Releasing Gwendolyn’s Butterflies
http://thegsf.org/blog/detail/releasing_gwendolyns_butterflies
What you can do. Releasing Gwendolyn’s Butterflies. August 04, 2015 by Victoria Strong. I had visions of you releasing these butterflies. Your butterflies. Your tiny hands holding them, one lighting on your wiggling chubby finger just like it did all those years ago when we first did this butterfly project together. We talked about you as we watched her. I couldnt help but see your fragile body in hers. Your determination in each of her steady wing thrusts, each new attempt to soar. Sma treatment acceler...
thegsf.org
Gwendolyn Strong Foundation : Blog : Gwendolyn Strong, October 4, 2007 - July 25, 2015: Trying To Make Sense of Our Loss
https://thegsf.org/blog/detail/trying_to_make_sense_of_our_loss
What you can do. Gwendolyn Strong, October 4, 2007 - July 25, 2015: Trying To Make Sense of Our Loss. July 26, 2015 by Victoria Strong. October 4, 2007 - July 25, 2015. Yesterday morning our courageous butterfly peacefully left this world. Shes gone. Our sweet, beautiful, adventurous girl is gone. And we are devastated. We always knew we would lose her to SMA, but we were never prepared. No one is ever prepared. We are going to miss her so much. I dont want to leave yet, Mom.". Song came on with "Never G...
thegsf.org
Gwendolyn Strong Foundation : Blog : 200 iPads Granted
http://thegsf.org/blog/detail/200_ipads_granted
What you can do. September 09, 2014 by Victoria Strong. We started Project Mariposa. With the simple mission: to make the world more accessible through technology. We initially had funding for 50, then 100. Now, 2 years later. 200 iPads have been granted. 200 lives have been changed. That Is. AWESOME. So what is the impact of an iPad for those with special needs? But heres the thing, the iPad can help with all of these. It can literally change the "impossible.". Become an Official Sponsor.
thegsf.org
Gwendolyn Strong Foundation : What We Do
http://thegsf.org/campaigns
What you can do. 250,000 Research Grant to Dr. Christian Lorson, University of Missouri. We are thrilled to announce a $250,000 research grant to Dr. Christian Lorson and his research team at University of Missouri. This grant will be jointly funded with our friends in the fight, FightSMA. Read More »». 2016 Emerging Investigator Awards Program. Were excited to announce our 2016 Emerging Investigator Awards program! We launched the EIA program in 2013 with FightSMA. Read More »». Were excited to announce...
thegsf.org
Gwendolyn Strong Foundation : Blog
http://thegsf.org/blog
What you can do. Reflections on a Year of Grief. August 03, 2016 by Victoria Strong. There it was, staring back at me on the calendar, a year happened. And I survived. Numb on the actual angelversary day but, like so many days before, I felt the same patchwork of motley emotions. Nothing magical happened at the year marker. I havent overcome it or come out any side. THANK YOU for being the #GoodForGwendolyn. July 31, 2016 by Victoria Strong. July 13, 2016 by Victoria Strong. When Gwendolyn passed away la...
thegsf.org
Gwendolyn Strong Foundation : Blog : Are You An SMA Carrier?
http://thegsf.org/blog/detail/are_you_an_sma_carrier
What you can do. Are You An SMA Carrier? May 01, 2011 by Victoria Strong. Are You An SMA Carrier? It is simple to learn if you are 1 in 40. A simple blood or saliva test will determine if you are a carrier of Spinal Muscular Atrophy, SMA. SMA occurs through autosomal recessive inheritance. Meaning, in general, both parents must be carriers for the baby to have the active form of SMA. Currently, SMA is. Why Is Carrier Screening Important? That’s one person in every Starbucks. And one of those could be you.
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