sotossyndrome.org

Sotos Syndrome

Awareness and Understanding through Education and Support. 2016 Conference – Portland, Oregon. 2016 Conference Portland, Oregon. What is Sotos Syndrome. Sotos syndrome is a genetic condition causing physical overgrowth during the first years of life. Children with Sotos syndrome are often taller, heavier, and have larger heads than their peers. read more. Sotos Syndrome: A Handbook for Families. A Journey From Diagnosis through Life. This 30 minute video contains interviews of doctors, families and indiv...

http://www.sotossyndrome.org/

OVERVIEW OF sotossyndrome.org

TRAFFIC RANK

>1,000,000

REVIEWS

0

PAGES IN THIS WEBSITE

18

LINKS TO THIS WEBSITE

CONTACTS

ADDRESSES

SOCIAL LINKS

ONLINE SINCE

WEBSITE DETAILS

SEO

PAGES

SIMILAR SITES

TRAFFIC RANK FOR SOTOSSYNDROME.ORG

TODAY'S RATING

>1,000,000

TRAFFIC RANK - AVERAGE PER MONTH

BEST MONTH

December

AVERAGE PER DAY Of THE WEEK

HIGHEST TRAFFIC ON

Thursday

TRAFFIC BY CITY

Sign up

CUSTOMER REVIEWS

Average Rating: 4.2 out of 5 with 6 reviews

5 star

1

4 star

5

3 star

0

2 star

0

1 star

0

Hey there! Start your review of sotossyndrome.org

AVERAGE USER RATING

Write a Review

WEBSITE PREVIEW

LOAD TIME

1.6 seconds

CONTACTS AT SOTOSSYNDROME.ORG

Guy Perets

Guy Perets

7722 M●●●●●●nce Ln

Ho●●on , TX, 77071

US

1.71●●●●5779

gu●@perets.net

View this contact

Administrator Lunarpages

Guy Perets

7722 M●●●●●●nce Ln

Ho●●on , TX, 77071

US

1.71●●●●5779

gu●@perets.net

View this contact

Lunarpages

System Administrator

100 E●●●●●Habra

La ●●●bra , California, 90631

US

1.71●●●●8150

ho●●●●●●●●@lunarpages.com

View this contact

ADD CONTACT

Login

TO VIEW CONTACTS

Remove Contacts

FOR PRIVACY ISSUES

DOMAIN REGISTRATION INFORMATION

REGISTERED: n/a
UPDATED: 2014 August 03
EXPIRATION: EXPIRED REGISTER THIS DOMAIN

BUY YOUR DOMAIN

NAME SERVERS

1: ns6519.hostgator.com
2: ns6520.hostgator.com

REGISTRAR

Tucows Inc. (R11-LROR)

WHOIS : whois.publicinterestregistry.net

REFERRED :

CONTENT

PAGES IN
THIS WEBSITE

18

SSL

EXTERNAL LINKS

39

SITE IP

192.254.235.247

LOAD TIME

1.578 sec

SCORE

6.2

PAGE TITLE

Sotos Syndrome | sotossyndrome.org Reviews

<META> DESCRIPTION

Awareness and Understanding through Education and Support. 2016 Conference – Portland, Oregon. 2016 Conference Portland, Oregon. What is Sotos Syndrome. Sotos syndrome is a genetic condition causing physical overgrowth during the first years of life. Children with Sotos syndrome are often taller, heavier, and have larger heads than their peers. read more. Sotos Syndrome: A Handbook for Families. A Journey From Diagnosis through Life. This 30 minute video contains interviews of doctors, families and indiv...

<META> KEYWORDS

1 top menu

2 join

3 pay my dues

4 donate

5 shop

6 navigation

7 sotos syndrome

8 about us

9 resources

10 trifold pamphlet

CONTENT

Page content here

KEYWORDS ON PAGE

top menu,join,pay my dues,donate,shop,navigation,sotos syndrome,about us,resources,trifold pamphlet,medical articles,other groups,general donation,honorarium donation,memorial donation,members only,member login,forgot my password,conference,overview

SERVER

nginx/1.8.0

CONTENT-TYPE

utf-8

GOOGLE PREVIEW

Sotos Syndrome | sotossyndrome.org Reviews

https://sotossyndrome.org

Awareness and Understanding through Education and Support. 2016 Conference – Portland, Oregon. 2016 Conference Portland, Oregon. What is Sotos Syndrome. Sotos syndrome is a genetic condition causing physical overgrowth during the first years of life. Children with Sotos syndrome are often taller, heavier, and have larger heads than their peers. read more. Sotos Syndrome: A Handbook for Families. A Journey From Diagnosis through Life. This 30 minute video contains interviews of doctors, families and indiv...

INTERNAL PAGES

sotossyndrome.org

1

Conference FAQ | Sotos Syndrome Support Association

http://sotossyndrome.org/conference-faq

Sotos Syndrome Support Association. Awareness and Understanding through Education and Support. Submit Story, Photo, Article. Private Visit with Experts. 2017 Conference Kansas City, Missouri. How many people come to the conference? Average attendance is about 60 families for a total of 175 people. The majority come from the USA and Canada and there are usually some families from overseas too. You’ll meet about 50 people with Sotos of all ages from infants and toddlers to teens and adults. He/She may eith...

2

Join Now | Sotos Syndrome Support Association

http://sotossyndrome.org/join-now

Sotos Syndrome Support Association. Awareness and Understanding through Education and Support. Submit Story, Photo, Article. Private Visit with Experts. 2017 Conference Kansas City, Missouri. We invite you to become a member of the Sotos Syndrome Support Association for just $35 a year. To purchase a 1 year membership for $35 through PayPal click here – 1 Year Membership. To subscribe to an annual automatically renewed subscription discounted to $25 per year from your PayPal account,. Distribution of an ...

3

About Us | Sotos Syndrome Support Association

http://sotossyndrome.org/about

Sotos Syndrome Support Association. Awareness and Understanding through Education and Support. Submit Story, Photo, Article. Private Visit with Experts. 2017 Conference Kansas City, Missouri. Organized in 1988, the Sotos syndrome Support Association (SSSA). The SSSA is a Member of the National Organization of Rare Disorders (NORD). Our Mission is to provide:. An understanding of the condition through education. A newsletter for members to share ideas, articles, and inspirations. That created the SSSA and...

4

What is Sotos Syndrome | Sotos Syndrome Support Association

http://sotossyndrome.org/sotos-syndrome

Sotos Syndrome Support Association. Awareness and Understanding through Education and Support. Submit Story, Photo, Article. Private Visit with Experts. 2017 Conference Kansas City, Missouri. What is Sotos Syndrome. Excerpts from: “Sotos Syndrome: A Handbook for Families”. By Rebecca Rae Anderson, J.D., M.S.,. Bruce A. Buehler, M.D. G Bradley Schaefer, M.D. (third edition, 2005). This handbook is an excellent (really excellent! A child who looks older and acts younger is at risk for poor self-esteem, str...

5

Pay My Dues | Sotos Syndrome Support Association

http://sotossyndrome.org/pay-my-dues

Sotos Syndrome Support Association. Awareness and Understanding through Education and Support. Submit Story, Photo, Article. Private Visit with Experts. 2017 Conference Kansas City, Missouri. As a member you will receive our monthly email newsletter,. And access to the Members Only portion of this web site. To purchase a 1 year membership for $35. Through PayPal click here – 1 Year Membership. To subscribe to an annual automatically renewed membership discounted to $25. Per year from your PayPal account,.

UPGRADE TO PREMIUM TO VIEW 13 MORE

TOTAL PAGES IN THIS WEBSITE

18

LINKS TO THIS WEBSITE

getwhatyouget.blogspot.com

You Get What You Get: The Day the World Came Crashing Down

http://getwhatyouget.blogspot.com/2006/12/day-world-came-crashing-down.html

You Get What You Get. The soap opera that is my life. Wednesday, December 13, 2006. The Day the World Came Crashing Down. From the Sotos syndrome Web site. 8220;You have a healthy 3-year-old,” he told us, as he noted D’s height and weight. We shared a chuckle. We called the new pediatrician and got an appointment. We knew her socially, so the day of the appointment, we spent a few minutes chatting. We gave her the brief version of D’s medical history. 8220;And the height? 8221; she asked. And then it was...

sotos.se

Externa tips | Svenska Sotossällskapet

http://sotos.se/filmer-och-bocker

Här kan du läsa mer om diagnosen och delta i våran gemenskap. Några bra länktips från oss. Sotos syndrom hos Socialstyrelsen. Mun-H-Center är ett nationellt orofacialt kunskapscenter. Ett riksförbund för små och mindre kända handikappgrupper. Ågrenska bedriver verksamheter utifrån ett helhetsperspektiv för barn och ungdomar med funktionshinder. Nationellt informationscentrum för ovanliga diagnoser. Sotos Syndrome Support Association (USA). Förening för Sotos Syndrom i Danmark.

luskbaby.blogspot.com

Pitter Patter: October 2008

http://luskbaby.blogspot.com/2008_10_01_archive.html

Sunday, October 26, 2008. Cooper's party was a lot of fun! He absolutely loved all the people being here to celebrate him. It was the cutest thing ever! When they sang "Happy Birthday" he got the biggest smile and put his head down like he was embarrassed to be the center of attention. Too funny! Here are a few pictures. Playing "Ring around the Rosey". At 10/26/2008 09:10:00 PM. Wednesday, October 22, 2008. Ultrasound - 34 Weeks. Baby weighed in at 6 pounds 5 ounces Tuesday! Right now I'm praying for a ...

luskbaby.blogspot.com

Pitter Patter: August 2008

http://luskbaby.blogspot.com/2008_08_01_archive.html

Tuesday, August 26, 2008. Dr Visit - 26 Weeks. Update: I got the call today that I did in fact fail my glucose test. Boo! Anything over 139 is considered high, and my number was 148, so it wasn't too. Bad I go back for the big bad 3-hour test next Wednesday. I'll let you know what happens. I'm going to keep hoping and praying for a passing score. N) and exercise every day to try and get around the diabetes this time. I'm praying for good news. On another note, Cooper and I are currently both s. And two d...

luskbaby.blogspot.com

Pitter Patter: July 2009

http://luskbaby.blogspot.com/2009_07_01_archive.html

Saturday, July 11, 2009. My son the flirt. Two days ago my son met a new little friend named Elizabeth. She's not quite two yet and much shorter than him, but such a ball of energy! She and her family are only here for about 4 days for camp. They met in the worship center while the band was setting up and definitely hit it off! They played so well together! Later that night we all sat in the back together during worship and those two were some kind of entertainment! They were dancing around like crazy!

luskbaby.blogspot.com

Pitter Patter: New Pictures

http://luskbaby.blogspot.com/2009/03/new-pictures.html

Friday, March 27, 2009. And we're off at the zoo. Cooper on the turtle. This is what Quinn did most of the time we were there. Cooper and the tiger. 3 and a half months. At 3/27/2009 09:29:00 AM. Your boys are precious. I have enjoyed reading your blog. Glad you guys are doing well. April 20, 2009 at 12:51:00 AM CDT. Hey, I wanna wish the Lusk Family a Merry Christmas and a Happy new year! December 14, 2009 at 11:08:00 PM CST. Subscribe to: Post Comments (Atom). The Ring Community Church.

luskbaby.blogspot.com

Pitter Patter: Makes me cry every time...

http://luskbaby.blogspot.com/2009/09/makes-me-cry-every-time.html

Saturday, September 12, 2009. Makes me cry every time. Here is another sweet, fragrant mouth to kiss;. Here are two more feet to make music with their pattering about my nursery. Here is a soul to train for God,. And the body in which it dwells is worthy all it will cost,. Since it is the abode of a kingly tenant. I may see less of friends,. But I have gained one dearer than them all, to whom,. While I minister in Christ's name,. I make a willing sacrifice of what little leisure. Elizabeth Prentiss, 1800).

luskbaby.blogspot.com

Pitter Patter: February 2009

http://luskbaby.blogspot.com/2009_02_01_archive.html

Tuesday, February 24, 2009. Why I love Cooper. There are many, many reasons why I love this precious boy. He has an amazingly joyful spirit. His personality is beautiful, sweet and considerate. He has faced a lot of challenges in his little life, and he's always been a trooper and has always prevailed. He works hard at everything he does. He shows love in such special ways, even though he can't tell us he loves us yet. I love Cooper because he smiles, even when he is sick. I love Cooper because his first...

UPGRADE TO PREMIUM TO VIEW 31 MORE

TOTAL LINKS TO THIS WEBSITE

39

SOCIAL ENGAGEMENT

pages/Sotos-Syndrome-Support-Association/248058888546350

OTHER SITES

sotoss2luxe.skyrock.com

Blog de SOTOSS2LUXE - S0To2$ JE SUIS LA R0SE DU BITUME! - Skyrock.com

Mot de passe :. J'ai oublié mon mot de passe. S0To2$ JE SUIS LA R0SE DU BITUME! Mise à jour :. Abonne-toi à mon blog! ONT RECHERCHE TOUS LA FEMME DE SA VIE LA FEMME D AVENIR LA FEMME PARFAITE .MOOI JE L EST TROUVER. 21 /06 / 2010 SOTOSS 3 ROMiiiNHA. PLUS QU UN COUP DE FOUDRE (L). Ou poster avec :. Retape dans le champ ci-dessous la suite de chiffres et de lettres qui apparaissent dans le cadre ci-contre. Posté le mardi 22 juin 2010 09:05. EH C SOTOSS C SA K C EST BON LA! SOTO2S A LA GHHHHEEEEESSSSSHHHH!

sotossama.blog.ir

صوت السماء

دو تلاوت تصویری جدید. عرض سلام و تحیت دارم خدمت همه دوستان گرامی، بسیار خوشحالم که بعد از یک مدت طولانی، مجددا در خدمت شما عزیزان هستم و امیدوارم که دوستان عذرخواهی بنده رو بابت این همه تاخیر در پاسخ گویی و بروزرسانی وبلاگ بپذیرند. ختم یک صلوات و یک حمد و یک سوره برای روح مادرم، استاد و جمیع مومنین. مائدة 90-93 قاهره، منطقه عجوزه، مسجد مغفرت 1985م مدت: 7 دقیقه. همچنین مدتی قبل از این، شبکه مصری ماسپیرو زمان تلاوت تصویری جدید دیگه ای رو از استاد پخش کرد که این تلاوت رو هم در این پست تقدیم دوستان عزیز می ک...

sotossama.blogfa.com

صوت السماء

تلاوت مجلسی انبیا شمس ضحی انشراح. دو تلاوت نادر استودیویی. تلاوت تصویری و جدید سوره یونس. تلاوت های تصویری ماه رمضان 1436ه ق. آغاز به کار مجدد وبلاگ. کانال صوت السماء (آپارات). مقاطع بی نظیر از قاریان عصر طلایی. ابزار و قالب وبلاگ. تلاوت های ماه رمضان. بسم الله الرحمن الرحیم. به اطلاع بازدید کنندگان ارجمند وبلاگ صوت السماء می رساند که به دلیل رخ دادن مشکلاتی در سرور فعلی، وبلاگ از این به بعد فعالیت خود را در سرور جدید ادامه می دهد. ورود به آدرس جدید وبلاگ صوت السماء. تاريخ : شنبه هجدهم مهر ۱۳۹۴ ساعت 15:5.

sotossteel.com

sotossteel

sotossyndrom.dk

Foreningen

Landsforeningen for Sotossyndrom, er en forening af børn, forældre og plejeforældre samt andre interessenter til bærere af Sotos syndrom. På denne hjemmeside kan du læse om Sotos syndrom og foreningen. Melder du dig ind i foreningen vil der være nogle udvidede muligheder, som et forum og gallerier osv. Under menupunktet Foreningen, er der oplysninger og generelle betragtninger omkring Sotos syndrom. LANDSFORENINGEN FOR SOTOS SYNDROM THUJAVEJ 20 5250 ODENSE SV TLF 24 81 91 06.

sotossyndrome.org

Sotos Syndrome

Awareness and Understanding through Education and Support. 2016 Conference – Portland, Oregon. 2016 Conference Portland, Oregon. What is Sotos Syndrome. Sotos syndrome is a genetic condition causing physical overgrowth during the first years of life. Children with Sotos syndrome are often taller, heavier, and have larger heads than their peers. read more. Sotos Syndrome: A Handbook for Families. A Journey From Diagnosis through Life. This 30 minute video contains interviews of doctors, families and indiv...

sotosteveandrews.com

Steve Andrews | Digital Marketing Coach

The Legend of Soto. Steve Andrews: Digital Marketing Coach, Serious Amateur Athlete, Freedom Feaster. I am a marketing scholar, and a practicing marketer with over 20 years of education and experience in customer service, recruiting, and teaching. I’ve taught thousands of students how to use computers since 2002. Most recently I’ve taught hundreds of students how to build your own digital marketing (aka inbound marketing) enterprise from scratch utilizing SIMPLE, Done-for-you. Tools, and systems. Your ed...

sotosthepainter.com

Sotosthepainter.com

This domain may be for sale. Backorder this Domain. This Domain Name Has Expired - Renewal Instructions.

sotostills.com

SotoStills.com

OFFICIAL SITE - PHOTOS by HAN SOTO. Viagra auswirkungen auf den penis. Cialis 20 mg 10 pills. I am an accomplished photographer, videographer and post-production professional with years of experience in digital media and web design. I strive to capture and create powerful and evocative still and motion imagery. Up until 2008, I moonlit as an aspiring Actor. I have since taken on Acting/Writing. Our team was responsible for raising over $50,000 for uNAVSA. How did you hear about me?

sotostips.gr

Sotostips - Tips για bloggers, internet και προγράμματα

Alphabet Inc.: Η Google αποκτά μητρική εταιρία που ιδρύει η ίδια. Ξέρουμε ότι η εταιρία Google. Βγάζει τα περισσότερα λεφτά από της διαφημίσεις της και την Αναζήτηση Google. Όμως η εταιρία έχει τα τελευταία χρόνια επεκταθεί σε πάρα πολλούς τομείς, μερική από αυτούς άσχετες με το ίντερνετ και την αναζήτηση. Τομείς δραστηριότητας της Google αυτή τη στιγμή είναι:. Apps (GMail, Έγγραφα, Blogger κλπ για ιδιώτες και μη). Αποτελεί τον ανεξάρτητο επενδυτικό βραχίονα (venture capital investments) της Google Inc.

sotostone.1stone.com.cn

云浮市云城区荣冠石材

Http:/ sotostone.1stone.com.cn. 主营大理石,花岗岩,荒料&石材板,板岩,石英石,柱子,常规马赛克. 您当前的位置 ›› 首页. Http:/ sotostone.1stone.com.cn. 比天然花岗岩、大理石及玉石更好的装饰效果，具有一、无辐射性，无污染，是新一代的绿色环保型建材产品二、无色差，色纯净三、光泽度100%，几乎不吸水四、经久而用、耐酸、耐碱、耐侯、不变色五、密度高、强度大、几倍于天然石材等特点。本着以质量求生存，以信誉求发展的经营理念,不断地扩大生产规模,增强改进生产经营模式，完善生产服务管理体系。用途室内地面,室内墙面,室外地. 用途室内地面,室外地面,室外墙. 用途室内地面,室内墙面,室外地. 用途室内地面,室内墙面,室外地. 用途室内地面,室内墙面,室外地. 用途室内地面,室内墙面,室外地. 用途室内地面,室内墙面,室外地. 用途室内地面,室内墙面,室外地. 用途室内地面,室内墙面,室外地. 用途室内地面,室内墙面,室外地. 用途室内墙面,柱面,台面板,洗. 用途室内地面,室内墙面,室外地.