stargardt.wordpress.com

Living with and Supporting Stargardt's disease

Living with and Supporting Stargardt's disease. Skiing makes me feel free as a bird, in control of my speed and I can travel to wherever. I want ( within reason! From being a kid my dad shared his passion with the rest of the Johnson’s and created a couple of speed demons on the slopes! I started skiing when I was about 8 and we have been lucky enough as a family to travel. 8220;all over the shop”. Father quote) and spend loads of brill holidays together. our little ‘. Brian the Snail’. Nice one daddd ***.

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Living with and Supporting Stargardt's disease | stargardt.wordpress.com Reviews

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Living with and Supporting Stargardt's disease. Skiing makes me feel free as a bird, in control of my speed and I can travel to wherever. I want ( within reason! From being a kid my dad shared his passion with the rest of the Johnson’s and created a couple of speed demons on the slopes! I started skiing when I was about 8 and we have been lucky enough as a family to travel. 8220;all over the shop”. Father quote) and spend loads of brill holidays together. our little ‘. Brian the Snail’. Nice one daddd ***.

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1 kayley’s story

2 i 3 painting

3 meet the bloggers

4 i love skiing

5 haha

6 excited

7 simple

8 share this

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10 facebook

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Living with and Supporting Stargardt's disease | stargardt.wordpress.com Reviews

https://stargardt.wordpress.com

Living with and Supporting Stargardt's disease. Skiing makes me feel free as a bird, in control of my speed and I can travel to wherever. I want ( within reason! From being a kid my dad shared his passion with the rest of the Johnson’s and created a couple of speed demons on the slopes! I started skiing when I was about 8 and we have been lucky enough as a family to travel. 8220;all over the shop”. Father quote) and spend loads of brill holidays together. our little ‘. Brian the Snail’. Nice one daddd ***.

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stargardt.wordpress.com

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I <3 painting | Living with and Supporting Stargardt's disease

https://stargardt.wordpress.com/i-3-painting

Living with and Supporting Stargardt's disease. I thought I would create a photo gallery so you can see my paintings! Hope you like them🙂. I am fascinated by bright colours and how stimulating they are on the eye! I will be shortly getting an online shop if you would like to share the link with friends family or any art lovers you may know! I hope to succeed as an artist and want to start a charity linked to stargardts disease, young people and art one day. Or search for ‘Kayley Rose Artist’. Enter your...

2

Kayley’s story | Living with and Supporting Stargardt's disease

https://stargardt.wordpress.com/kayleys-story

Living with and Supporting Stargardt's disease. 8211; setting the scene. On the 22.08.88, I was born. Kayley Louise Johnson they named me! My dad described me as a gorilla with big hands and my mum said I looked like a little rosebud! From then on I answered to the name Kayley Rose! Studying finance amd banking at the University of Reading. We got up to lots of fun as kids. You killed kenny you * * * *”. If we were lucky! Anyway just setting the scene! Early problems aged eight…. This resulted in my havi...

3

kayleyrose | Living with and Supporting Stargardt's disease

https://stargardt.wordpress.com/author/kayleyrose

Living with and Supporting Stargardt's disease. Aw wow my Dad bought me a pair of Oakley Polaroid Sun glasses today. We’re in Austria Skiing and the first two day’s I was very hesitant on the slopes. Bless my Dad he’s bought a really bright orange outfit so I can follow him down…. he says he feels a bit conscious as it’s very “out there” but it’s great for me! I was really struggling with my eyes so we decided to try some new glasses. Have a look at my Instagram kayleyrose88 for a few clips! Three years ...

4

I love skiing!!!! | Living with and Supporting Stargardt's disease

https://stargardt.wordpress.com/2013/11/13/i-love-skiing

Living with and Supporting Stargardt's disease. Skiing makes me feel free as a bird, in control of my speed and I can travel to wherever. I want ( within reason! From being a kid my dad shared his passion with the rest of the Johnson’s and created a couple of speed demons on the slopes! I started skiing when I was about 8 and we have been lucky enough as a family to travel. 8220;all over the shop”. Father quote) and spend loads of brill holidays together. our little ‘. Brian the Snail’. Nice one daddd Xxx.

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stargardts.net

Links/info | stargardts.net

http://www.stargardts.net//blog/linksinfo

It was from Karl Stargardt, a German ophthalmologist, that Stargardt’s Macular Dystrophy derived its name in 1909. It is the most frequently encountered juvenile onset form of the group of conditions known as ‘macular dystrophies’. Listed below are links and support group addresses that may be of use to those interested in Stargardt’s Disease. Please send any new links/additional information to info@stargardts.net. And the page will be updated. The most recent additions are at the top of each section.

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Living with and Supporting Stargardt's disease

Living with and Supporting Stargardt's disease. Skiing makes me feel free as a bird, in control of my speed and I can travel to wherever. I want ( within reason! From being a kid my dad shared his passion with the rest of the Johnson’s and created a couple of speed demons on the slopes! I started skiing when I was about 8 and we have been lucky enough as a family to travel. 8220;all over the shop”. Father quote) and spend loads of brill holidays together. our little ‘. Brian the Snail’. Nice one daddd Xxx.

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