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Team Mathias | Changing the Face of Epilepsy

Changing the Face of Epilepsy. Skip to primary content. Skip to secondary content. The Why Behind Our Team. Meet the Koch’s. Epilepsy In The News. New Member of Team Mathias. June 20, 2013. Dan and I would like to share some very exciting news- we are expecting a new bundle of joy in November 2013! Our due date falls on the day of our annual Chunky Monkey Run, November 2nd. What a neat way to welcome the newest member of our family. Gift of God- Poem. December 13, 2012. Once upon a special day…. I’...

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Team Mathias | Changing the Face of Epilepsy | teammathias.com Reviews
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Changing the Face of Epilepsy. Skip to primary content. Skip to secondary content. The Why Behind Our Team. Meet the Koch’s. Epilepsy In The News. New Member of Team Mathias. June 20, 2013. Dan and I would like to share some very exciting news- we are expecting a new bundle of joy in November 2013! Our due date falls on the day of our annual Chunky Monkey Run, November 2nd. What a neat way to welcome the newest member of our family. Gift of God- Poem. December 13, 2012. Once upon a special day…. I’...
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Team Mathias | Changing the Face of Epilepsy | teammathias.com Reviews

https://teammathias.com

Changing the Face of Epilepsy. Skip to primary content. Skip to secondary content. The Why Behind Our Team. Meet the Koch’s. Epilepsy In The News. New Member of Team Mathias. June 20, 2013. Dan and I would like to share some very exciting news- we are expecting a new bundle of joy in November 2013! Our due date falls on the day of our annual Chunky Monkey Run, November 2nd. What a neat way to welcome the newest member of our family. Gift of God- Poem. December 13, 2012. Once upon a special day…. I’...

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Sommerminner | lillegullemily

https://lillegullemily.com/category/sommerminner

Laquo;Love just being me». ANDRE MPEI BARNS HISTORIER. Emily som modell for LinusCare. Fakta om diagnosen MPEI. INGEN AV OSS HAR NOEN GARANTI. SÅ ALTFOR UNG…. September 7, 2015. Så det vi ikke har rukket senest lørdag kveld – får vente. Og det er jo til familiens og jentenes beste. Søndag er tur- og besøksdag. De siste to søndagene har vi blant annet vært:. Vi var også innom naboen`s galleri, hvor vi skulle vært for lengst. Så fikk vi med oss litt kunstinspirasjon også! Forrige søndag var Emily på avlast...

lillegullemily.com lillegullemily.com

Så har storesøster reist… | lillegullemily

https://lillegullemily.com/2015/08/13/sa-har-storesoster-reist

Laquo;Love just being me». ANDRE MPEI BARNS HISTORIER. Emily som modell for LinusCare. Fakta om diagnosen MPEI. INGEN AV OSS HAR NOEN GARANTI. SÅ ALTFOR UNG…. Solglimt fra Emily`s solgård! Så har storesøster reist…. August 13, 2015. I går morges reiste nest største storesøster Nikita til USA for å gå på skole der et år. Mammahjertet har vært forberedt på dette i en del år… Vi vil alle savne henne ubeskrivelig, men gleden over at hun får et utvekslingsår overskygger såklart det! Posted in Emily`s familie.

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INGEN AV OSS HAR NOEN GARANTI | lillegullemily

https://lillegullemily.com/ingen-av-oss-har-noen-garanti

Laquo;Love just being me». ANDRE MPEI BARNS HISTORIER. Emily som modell for LinusCare. Fakta om diagnosen MPEI. INGEN AV OSS HAR NOEN GARANTI. SÅ ALTFOR UNG…. INGEN AV OSS HAR NOEN GARANTI. Blogginnlegg fra sommeren 2012:. Legg igjen en kommentar Avbryt svar. Skriv din kommentar her. Fyll inn i feltene under, eller klikk på et ikon for å logge inn:. Adressen vises aldri offentlig). Du kommenterer med bruk av din WordPress.com konto. ( Logg ut. Du kommenterer med bruk av din Twitter konto. ( Logg ut.

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SÅ ALTFOR UNG… | lillegullemily

https://lillegullemily.com/sa-altfor-ung

Laquo;Love just being me». ANDRE MPEI BARNS HISTORIER. Emily som modell for LinusCare. Fakta om diagnosen MPEI. INGEN AV OSS HAR NOEN GARANTI. SÅ ALTFOR UNG…. SÅ ALTFOR UNG…. Https:/ lillegullemily.wordpress.com/2014/09/16/sa-altfor-ung/. Legg igjen en kommentar Avbryt svar. Skriv din kommentar her. Fyll inn i feltene under, eller klikk på et ikon for å logge inn:. Adressen vises aldri offentlig). Du kommenterer med bruk av din WordPress.com konto. ( Logg ut. Send meg link til nye innlegg på epost. Besky...

lillegullemily.com lillegullemily.com

lillegullemily | Dette er historien om vårt lillegull Emily som kom til verden 30. april 2010. Hun har en sjelden og alvorlig epilepsi syndrom, malignant migrating partial seizures in infancy (MPEI). Håper med dette å nå ut til familie, venner og bekjente

https://lillegullemily.com/page/2

Laquo;Love just being me». ANDRE MPEI BARNS HISTORIER. Emily som modell for LinusCare. Fakta om diagnosen MPEI. INGEN AV OSS HAR NOEN GARANTI. SÅ ALTFOR UNG…. Nyere innlegg →. November 8, 2015. Det er rart hvordan man blir fort kjent med andre foreldre i samme situasjon. Man «hopper liksom over» de «basic-get to know eachother» konseptet. Man er liksom litt kjent med en gang. Før man i det hele tatt virkelig er kjent! Vanskelig å forklare, men tipper de fleste i vår situasjon forstår akkurat hva jeg mener.

lillegullemily.com lillegullemily.com

ANDRE MPEI BARNS HISTORIER | lillegullemily

https://lillegullemily.com/www-harrysjourney-co-uk

Laquo;Love just being me». ANDRE MPEI BARNS HISTORIER. Emily som modell for LinusCare. Fakta om diagnosen MPEI. INGEN AV OSS HAR NOEN GARANTI. SÅ ALTFOR UNG…. ANDRE MPEI BARNS HISTORIER. Klikk på linken under for å lese om andre MPEI`s barns historier. Legg igjen en kommentar Avbryt svar. Skriv din kommentar her. Fyll inn i feltene under, eller klikk på et ikon for å logge inn:. Adressen vises aldri offentlig). Du kommenterer med bruk av din WordPress.com konto. ( Logg ut. 3 Plass i Årets Mammablogg 2015.

lillegullemily.com lillegullemily.com

Video av Emily | lillegullemily

https://lillegullemily.com/category/video-av-emily

Laquo;Love just being me». ANDRE MPEI BARNS HISTORIER. Emily som modell for LinusCare. Fakta om diagnosen MPEI. INGEN AV OSS HAR NOEN GARANTI. SÅ ALTFOR UNG…. Category Archives: Video av Emily. Oktober 4, 2015. Da Emily var fire år og ble invitert til utdeling av «4 års boka» takket vi ja til en «alternativ gave» ifra Kirken. Det var bl.a. en cd med en rekke fantastiske sanger som vi har blitt glade i. For nye lesere kan innlegget fra den gang leses HER. Og denne hverdagen vil vi engang savne…. De fant p...

lillegullemily.com lillegullemily.com

Emily som modell for LinusCare | lillegullemily

https://lillegullemily.com/emily-som-modell-for-linuscare

Laquo;Love just being me». ANDRE MPEI BARNS HISTORIER. Emily som modell for LinusCare. Fakta om diagnosen MPEI. INGEN AV OSS HAR NOEN GARANTI. SÅ ALTFOR UNG…. Emily som modell for LinusCare. Klikk på linken under for alle bildene fra Emily`s dag som modell, samt innlegget fra den herlige dagen🙂. Https:/ lillegullemily.wordpress.com/2014/11/24/emily-som-modell-for-linuscare/. Legg igjen en kommentar Avbryt svar. Skriv din kommentar her. Fyll inn i feltene under, eller klikk på et ikon for å logge inn:.

lillegullemily.com lillegullemily.com

«Love just being me | «lillegullemily

https://lillegullemily.com/love-just-being-me

Laquo;Love just being me». ANDRE MPEI BARNS HISTORIER. Emily som modell for LinusCare. Fakta om diagnosen MPEI. INGEN AV OSS HAR NOEN GARANTI. SÅ ALTFOR UNG…. Laquo;Love just being me». Https:/ lillegullemily.wordpress.com/2014/08/20/i-love-just-being-me/. Legg igjen en kommentar Avbryt svar. Skriv din kommentar her. Fyll inn i feltene under, eller klikk på et ikon for å logge inn:. Adressen vises aldri offentlig). Du kommenterer med bruk av din WordPress.com konto. ( Logg ut. Kan ikke få kost deg nok,.

lillegullemily.com lillegullemily.com

Fakta om diagnosen MPEI | lillegullemily

https://lillegullemily.com/fakta-om-diagnosen-mpei

Laquo;Love just being me». ANDRE MPEI BARNS HISTORIER. Emily som modell for LinusCare. Fakta om diagnosen MPEI. INGEN AV OSS HAR NOEN GARANTI. SÅ ALTFOR UNG…. Fakta om diagnosen MPEI. Det finnes faktisk endel info om diagnosen på internett, etterhvert som vi begynte å søke…en av de med «lett engelsk» følger her: epilepsyaction factsheet migratingpartial. Vi ble gitt denne på Rikshospitalet i november 2010, da da Emily fikk diagnosen:. One thought on “ Fakta om diagnosen MPEI. Skriv din kommentar her.

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Team Mathes 5K Run / 1 Mile Fun Walk. For nearly three years we benefited from the power of your prayers and your support. Thom battled valiantly but on October 5, 2013 passed peacefully into heaven to be with our Lord. Our hero is no longer suffering. Heaven gained a strong, wonderful man. In 2014 no Team Mathes 5K event is planned. We trust you understand our family is healing at this time. If you would like to contribute in another way, please consider the following:. Give to Ryan Mathes’ college fund:.

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July 26, 2010. Grandma B, Grandpa, Will. July 19, 2010. Will and I took a trip to Cleveland and were able to spend some time with good friends. Here's a shot of all of our kids:. Sleepover :) Little baby B is taking it all in! July 4, 2010. Will and I took a trip to my hometown, New Martinsville, to see some friends and also celebrate Janny's birthday a little early. We visited with Carissa and her daughter. Will LOVED playing with Emmy. Can you blame him? In Canonsburg, PA. And also Janny's cousin.

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Team Mathias | Changing the Face of Epilepsy

Changing the Face of Epilepsy. Skip to primary content. Skip to secondary content. The Why Behind Our Team. Meet the Koch’s. Epilepsy In The News. New Member of Team Mathias. June 20, 2013. Dan and I would like to share some very exciting news- we are expecting a new bundle of joy in November 2013! Our due date falls on the day of our annual Chunky Monkey Run, November 2nd. What a neat way to welcome the newest member of our family. Gift of God- Poem. December 13, 2012. Once upon a special day…. I’...

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Big brother, warm heart, contagious smile. A song for mathias. More about the band. Mathias Giordano is a 13 year old boy in Leesburg, Virginia who was diagnosed with Osteosarcoma, cancer of the bone, in July of 2012. Over the past 28 months, he has endured biopsies, port placement, 30 rounds of high dose chemo, 3 major lung surgeries, an amputation of his right leg below the knee, and 27 rounds of radiation.not to mention a few clinical trials. Team Mathias on Facebook. We would love you to have you!

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Thursday, December 29, 2011. Greatest Family V Fantasy Football League. Congrats to "Jeff Saturday 4 Prez. And their team captain. For winning the 5 th. Installment of the Greatest Family Fantasy Football League. Maybe next year, I will leave the draft in the middle and have my dad draft the rest of my team too. But as it turns out, KT had proven to have the best team as she was the #1 see going into the playoffs. Things started out bleak. Speaking of Average Joes. Aunt Connie Division Champ - $10. Or at...