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Krabbe Disease Non-Profit Foundation: The Jackson Project

The Jackson Project is a non-profit organization formed in honor of Jackson Wallace who is fighting a fatal form of Leukodystrophy called Krabbe Disease.

http://www.thejacksonproject.org/

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Krabbe Disease Non-Profit Foundation: The Jackson Project | thejacksonproject.org Reviews
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The Jackson Project is a non-profit organization formed in honor of Jackson Wallace who is fighting a fatal form of Leukodystrophy called Krabbe Disease.
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2 meet jackson
3 krabbe
4 krabbe disease symptoms
5 krabbe disease causes
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7 krabbe disease treatment
8 leukodystrophy
9 family support
10 research
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Krabbe Disease Non-Profit Foundation: The Jackson Project | thejacksonproject.org Reviews

https://thejacksonproject.org

The Jackson Project is a non-profit organization formed in honor of Jackson Wallace who is fighting a fatal form of Leukodystrophy called Krabbe Disease.

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thejacksonproject.org thejacksonproject.org
1

Krabbe Disease Diagnosis and Krabbe Newborn Screening

http://thejacksonproject.org/krabbe-disease/krabbe-diagnosis

How is Krabbe Disease Diagnosed? If Krabbe disease is not detected through the newborn screening process then it’s often diagnosed once symptoms are displayed outwardly. Diagnosis will likely entail clinical observation of signs and symptoms. A number of diagnostic tests exist, and one or more of them are performed if symptoms observed are consistent with the disease. Krabbe disease is caused by a deficiency of the GALC enzyme. A blood or skin sample can be tested to measure GALC enzyme activity....The a...

2

Meet Jackson - Krabbe Disease Foundation The Jackson Project

http://thejacksonproject.org/meet-jackson

This rapidly progressed into something much more and he spent the bulk of each day extremely rigid and crying inconsolably. We were within a couple of days of his six month check-up where we expressed our concern over these symptoms. At that point, the doctor knew something potentially serious was going on. We were scheduled to meet with a neurologist as quickly as possible (which turned out to be over a month out). Support The Jackson Project. Content on this site is not intended to be used as medical a...

3

Player of the Week! - The Jackson Project

http://thejacksonproject.org/player-week

Player of the Week! Player of the Week! Player of the Week! October 4, 2014. Comments Off on Player of the Week! Check out who Jim Kelly’s Player of the Week is! Learn more or sign up for Jim Kelly’s Every Score at Hunter’s Hope. Laquo; Previous Article. The Jackson Project Dance Fitness Charity Event. September 6, 2014. Next Article ». Judson's Legacy: Highlighted Hero. October 11, 2014. Support The Jackson Project.

4

Newborn Screening Saves Lives - The Jackson Project

http://thejacksonproject.org/newborn-screening-saves-lives

Newborn Screening Saves Lives. Newborn Screening Saves Lives. Newborn Screening Saves Lives. December 28, 2014. Comments Off on Newborn Screening Saves Lives. Learn more about the law here:. HR 1281 – Newborn Screening Saves Lives Reauthorization Act of 2014. Laquo; Previous Article. Happy Halloween - Join us for a special event! October 31, 2014. Next Article ». The Jackson Project Memorial Day Tournament 2015. March 14, 2015.

5

Happy Halloween - Join us for a special Trick or Treat Event

http://thejacksonproject.org/halloween-special-event

Happy Halloween – Join us for a special event! Happy Halloween – Join us for a special event! Happy Halloween – Join us for a special event! October 31, 2014. Comments Off on Happy Halloween – Join us for a special event! Join Jackson and Reilly for a special Halloween event! So thankful for the MedStar crew and residents of the Pembroke Drive/Berkeley Place neighborhood that are helping make this happen (read full article below)! Special trick-or-treaters get ready for Halloween night. Children who are ...

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Krabbe Disease Non-Profit Foundation: The Jackson Project

Welcome to The Jackson Project. The Jackson Project is a 501(c)(3) public charity formed in the State of Texas in 2014. The organization is formed in honor of Jackson Wallace, affectionately known as J-Bird, who is fighting a fatal form of Leukodystrophy called Krabbe Disease. The organization is dedicated to raising awareness about Krabbe, advocating for expanded newborn screening. Through the Hunter James Kelly Research Institute. NDRD) at the Children’s Hospital of Pittsburgh, and other research...

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