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FSGS Sucks: 2015-07-26
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Thursday, July 30, 2015. 1st dose of Ritixumab. The process has OFFICIALLY started! Yesterday, I went to Mayo to have my first dose of Rituximab. We left the house at 5:00am (which was PAINFUL) but made it to Mayo at 7:00am for labs. See how happy we are to be awake? Benadryl is awesome. It makes me SO sleepy. Neither was he when he got to eat the leftovers :). The most exciting thing out the infusion was that I couldn't do dialysis last night. A night of FREEDOM! Unfortunately, I kinda need dialysis for...
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FSGS Sucks: Tick tock goes the clock
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Thursday, July 16, 2015. Tick tock goes the clock. I feel that I have experienced every single second that has passed since my great news 3 weeks ago. I'm still thrilled, but now I'm READY for the next step. I was finally able to get in contact with my donor coordinator this week (she was out on vacation) and she's had a chance to speak with the transplant nephrologist regarding my labs, and it doesn't sound like they were very good. As I understand it, a nephrectomy is probably a 2-month recovery. T...
fsgssucks.blogspot.com
FSGS Sucks: So.....when's the big day?
http://fsgssucks.blogspot.com/2015/06/sowhens-date.html
Tuesday, June 30, 2015. Sowhen's the big day? This is a question I get asked daily. Totally makes sense since I got THE BEST NEWS EVER a week ago, but unfortunately, I don't have an answer to THIS question.yet. But I can't do ANY of this until my albumin goes up. Based off of my October labs, this makes sense, because I could go through the process of getting the Rituximab, but I'd just pee it all out. So, here's what the future looks like:. Get labs done at Davita. Wait for what seems like an eternity.
fsgssucks.blogspot.com
FSGS Sucks: 1st dose of Ritixumab
http://fsgssucks.blogspot.com/2015/07/1st-dose-of-ritixumab.html
Thursday, July 30, 2015. 1st dose of Ritixumab. The process has OFFICIALLY started! Yesterday, I went to Mayo to have my first dose of Rituximab. We left the house at 5:00am (which was PAINFUL) but made it to Mayo at 7:00am for labs. See how happy we are to be awake? Benadryl is awesome. It makes me SO sleepy. Neither was he when he got to eat the leftovers :). The most exciting thing out the infusion was that I couldn't do dialysis last night. A night of FREEDOM! Unfortunately, I kinda need dialysis for...
fsgssucks.blogspot.com
FSGS Sucks: Here's my story....
http://fsgssucks.blogspot.com/p/heres-my-story.html
My story started in the summer of 2005. I had a physical for work and the nurse noticed that my protein was high on the random urine sample. I had an appointment with my doctor a couple of weeks later and I mentioned it to him, so he had me do a 24-hour urine sample. That was the beginning of this tenuous journey. I feel very fortunate to have found NephCure this time. I've used it frequently as a place to get information, or just to vent. I started this blog to use as a personal place to vent. Somet...
fsgssucks.blogspot.com
FSGS Sucks: I have no catchy title...just a lotta whine
http://fsgssucks.blogspot.com/2015/07/i-have-no-catchy-titlejust-lotta-whine.html
Thursday, July 9, 2015. I have no catchy title.just a lotta whine. I'm not feeling better, and I'm losing patience. I'm sluggish both physically and mentally.what I wouldn't do for a burst of energy. I may have a smile on my face, but in my head I'm thinking, "fake it till you make it". Subscribe to: Post Comments (Atom). Example of a Kidney Transplant. Who can donate to me? What's a Living Donor? Follow me by Email. Where you can find me :). I take pretty pictures :). I talk about the pretty pictures.
fsgssucks.blogspot.com
FSGS Sucks: 2015-07-19
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Tuesday, July 21, 2015. I had a very early blood draw at Mayo this morning (7:30am), so I had to leave the house at 5:30am, which means I went to bed at 7:30pm last night ;) Even arriving at 7:20am, I ran into a line getting into the parking garage! I'm pretty sure it's mirrored glass and they could't see me, but I still felt so guilty sticking the phone in their face that I abandoned those pictures :) I hung out up here, answered some emails, watched some Hulu and HBO (thanks Rebecca! I started to get S...
fsgssucks.blogspot.com
FSGS Sucks: The frustration of weight control
http://fsgssucks.blogspot.com/2015/07/the-frustration-of-weight-control.html
Wednesday, July 8, 2015. The frustration of weight control. I have become acutely aware of my weight since I started PD. Every morning when I wake up, the first thing I do is go to the bathroom and then weigh myself. It's also the last thing I do before I hook up every night. The reason is to help me understand my fluid balance, and to help me select which concentration of dialysis solution I need for that evening. It's all very, very draining. Subscribe to: Post Comments (Atom). Who can donate to me?
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FSGS Sucks: Living Donor Information
http://fsgssucks.blogspot.com/2014/10/living-donor-information.html
Wednesday, October 22, 2014. So, for starters, my blood type is O , so my donor kidney will need to be O as well. HOWEVER.if you're blood type is NOT O , there's still hope! If you are interested in donating and are otherwise determined to be healthy, but aren't a blood type match, you can be involved in a paired kidney donation. I took this graphic off of the Mayo website. Subscribe to: Post Comments (Atom). Example of a Kidney Transplant. Who can donate to me? What's a Living Donor? Follow me by Email.