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TheSweetOne - Living with Noonan Syndrome | Ontario, Canada | Online Support Community

An ongoing resource for people and parents whose lives are touched, influenced or absorbed by Noonan Syndrome. It's the site we needed when our daughter was diagnosed.

http://www.thesweetone.ca/

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TheSweetOne - Living with Noonan Syndrome | Ontario, Canada | Online Support Community | thesweetone.ca Reviews
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An ongoing resource for people and parents whose lives are touched, influenced or absorbed by Noonan Syndrome. It's the site we needed when our daughter was diagnosed.
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TheSweetOne - Living with Noonan Syndrome | Ontario, Canada | Online Support Community | thesweetone.ca Reviews

https://thesweetone.ca

An ongoing resource for people and parents whose lives are touched, influenced or absorbed by Noonan Syndrome. It's the site we needed when our daughter was diagnosed.

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thesweetone.ca thesweetone.ca
1

TheSweetOne - Living with Noonan Syndrome | Ontario, Canada | Online Support Community

http://www.thesweetone.ca/resources.html

DNA, Genetics and Doctors. The following list of links is divided into categories. As new articles and/or sites are found, they'll be added and marked as NEW! Not all the links will be useful to everyone, we simply wanted to provide single page access to as many references and resources as possible. When you find something you think people with Noonan Syndrome and/or their caregivers could benefit from? Please let us know! A well written, easy to read description of the syndrome, symptoms and treatments.

2

TheSweetOne - Living with Noonan Syndrome | Ontario, Canada | Online Support Community

http://www.thesweetone.ca/support.html

DNA, Genetics and Doctors. Genetic conditions, especially one like Noonan Syndrome with such a wide range of challenges and health implications, can put a strain on more than just your heart and stamina. It can have a significant financial impact. Both the federal and provincial governments have programmes in place to help. Not everyone qualifies but as completing the applications is a simply a matter of time and paper, it's worth serious consideration. Child Disability Tax Certificate. To assist familie...

3

TheSweetOne - Living with Noonan Syndrome | Ontario, Canada | Online Support Community

http://www.thesweetone.ca/parenting.html

DNA, Genetics and Doctors. Raising Kids with Noonan Syndrome. Most parents would agree that raising children is challenging enough without the complications of a genetic condition. As Lauren gets older and faces each new challenge, I want to be prepared with reference materials, activities, books. anything I can get or provide that will help us face each challenge together. If you have a favourite or have had an excellent experience with a support group, organization or camp, please let us know. Review: ...

4

TheSweetOne - Living with Noonan Syndrome | Ontario, Canada | Online Support Community

http://www.thesweetone.ca/geneticist.html

DNA, Genetics and Doctors. In most cases, the initial appointment begins with documenting a complete medical history as well developing a basic family tree for both parents. In our case, as Lauren was a newborn, we also reviewed all the standard questions asked of new mothers - how was the pregnancy? How is feeding going? Is the baby eating well? If we run into trouble getting a referral, or have questions about future siblings for Lauren, it's the genetics team we can turn to. What is a Geneticist?

5

TheSweetOne - Living with Noonan Syndrome | Ontario, Canada | Online Support Community

http://www.thesweetone.ca/index.html

DNA, Genetics and Doctors. She has Noonan Syndrome. She is still perfect. Lauren has quite a list of characteristics. She looks a bit different and her heart has defects. Her growth is slow, her muscles have low tone and her joints are overly flexible. She has digestive issues, hearing problems, skeletal deformities and the potential for significant heart failure later on. These complications, and more, are tied to Noonan Syndrome. It’s a part of her, but it is not WHO she is. Join the Facebook group.

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Platelet Rich Plasma (PRP). Xeomin & Botox. Http:/ www.knowyourback.org. North American Spine Society. This website is dedicated to providing access to evidence-based information and quality products (lumbar supports) that assist in preventing and rehabilitating troubled backs. Http:/ www.arthritis.ca/. Http:/ www.isagenix.com/. Dr Galvin is an Isagenix consultant. Please feel free to contact her office for more information. Http:/ www.csep.ca/english/view.asp? The Canadian Society for Exercise Physiology.

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DNA, Genetics and Doctors. She has Noonan Syndrome. She is still perfect. Lauren has quite a list of characteristics. She looks a bit different and her heart has defects. Her growth is slow, her muscles have low tone and her joints are overly flexible. She has digestive issues, hearing problems, skeletal deformities and the potential for significant heart failure later on. These complications, and more, are tied to Noonan Syndrome. It’s a part of her, but it is not WHO she is. Join the Facebook group.

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