Welcome to a website that supports families caring for a child with trisomy 18, Edwards' syndrome, or trisomy 13, Patau's syndrome, mosaic trisomy, or bereaved families who have suffered a loss from one of these chromosome disorders.
http://www.trisomy18-13supportuk.com/
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View this contact
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Trisomy18-13 Support UK - WELCOME | trisomy18-13supportuk.com Reviews
https://trisomy18-13supportuk.com
Welcome to a website that supports families caring for a child with trisomy 18, Edwards' syndrome, or trisomy 13, Patau's syndrome, mosaic trisomy, or bereaved families who have suffered a loss from one of these chromosome disorders.
trisomy18-13supportuk.com
REMEMBRANCE BABIES - Trisomy18-13 Support UK
http://www.trisomy18-13supportuk.com/memorial-gallery.html
If you have suffered a bereavement there is a Memorial Gallery for photographs, scan pictures, or a butterfly. You can get in touch with Jane or Jenny, who have both experienced loss from one of these syndromes, via the Contact Us form. Or our Facebook page. Hover your cursor over a photograph to see the name of a baby or child. Create a free website. Create your own free website. Start your own free website. A surprisingly easy drag and drop site creator. Learn more.
WELCOME - Trisomy18-13 Support UK
http://www.trisomy18-13supportuk.com/trisomy-aware-month.html
Trisomy Awareness Month March 2016 Extra Chromosome - Extra Cuteness. In March of each year our members celebrate with those that provide support, and information for families that have children with a trisomy condition. Please share March Trisomy Awareness Month with caregivers and friends. Has now reached the ripe old age of 24 years! Whoa - where did those years go? WE BELIEVE SASKIA IS THE OLDEST SURVIVING YOUNG PERSON WITH T18 IN THE UK. She has now reached the ripe old age of 24 years!
Trisomy Pregnancy - Trisomy18-13 Support UK
http://www.trisomy18-13supportuk.com/trisomy-pregnancy.html
Stacey decided to have CVS, chorionic villus sampling as they wanted to know without delay. She was 12 weeks pregnant when the hospital telephoned her with the results. Her baby had Edwards' syndrome, was 'incompatible with life', and would probably die during pregnancy or be still born. Stacey was very shocked and would have preferred someone to tell her this 'face to face'. The diagnosis was completely negative with nothing to give her and Joel hope. Deciding what to do. I wrote my birth plan without h...
Trisomy18-13 Support UK - BLOG FOR CARERS
http://www.trisomy18-13supportuk.com/blog-for-carers.html
May 14th and 15th. We have joined with SOFT UK for their Family Weekend, and Dr John Carey, the Chief Medical Adviser to SOFT USA and International Trisomy Alliance has been invited to speak. Trisomy 18-13 Support UK now has a News page with the latest news for families affected by trisomy 18 and trisomy 13. Let us have your news and we can post it here. Read about the Ethics submission, a new creche at Tristan's Light House, and free e books that are available for families and professionals. Christopher...
CHILDREN WITH TRISOMY - Trisomy18-13 Support UK
http://www.trisomy18-13supportuk.com/children-with-trisomy.html
Children with Trisomy 18/13. If you have a child with trisomy 18 or 13, and you would like their life celebrated on our website, or you would like to be linked to another family, please get in touch via the. Contact form with Heidi or Sue who each have a child affected by one of these conditions, If you would like more information about these syndromes, you can contact one of the groups listed in. Create a free website. Create your own free website. Start your own free website.
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internationaltrisomyalliance.com
Trisomy Support Groups for Trisomy 13 and Trisomy 18 - International Trisomy 13/18 Alliance
http://www.internationaltrisomyalliance.com/trisomy-support-groups.html
International Trisomy 13/18 Alliance. TRIS Project: Ongoing research. Hover over the links below for information, and click the link to visit the website, or email if there is no website. Please note, however, that we have no control over the nature, content or availability of those sites. 26085;本 Japan. 26085;本 Japan. Families often use social networks like Facebook to ask questions and share with other parents. Please use the contact form. Face Book Support Groups. Leve med trisomi 13 og trisomi 18.
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Trisomy 16 | Trisomy 16 News | Forum | Guide | Articles
Trisomy 16 News Forum Guide Articles. Trisomy 16 news, forum, articles, and guide,. With replies and comments by readers. Trisomy 16 Question 1015316. Where did the name come from? How does a person have this disorder? How are the chromosomes diffrent? Is it detectable prior to birth? If so, how and when? How often is a person born with this disorder? Mar 19, 2013. Trisomy 16 Question 0141357. What exactly is Trisomy 16? Mar 17, 2013. Trisomy 16 Question 0141307. Mar 17, 2013.
DOC16 Home
About the DOC16 Foundation. What Are Chromosome 16 Disorders? Welcome to the DOC16 Foundation! We are committed to providing information and support to families dealing with the diagnosis of Mosaic Trisomy 16 disorder. While much more research needs to be done to fully comprehend this rare disorder, we hope that we can help parents and medical professionals better understand this diagnosis and its potential implications. Here on our website, in addition to finding information. Read the full update here.
Living with Trisomy 17
Living with Trisomy 17. Wednesday, August 22, 2007. Welcome to our site! And welcome to the Trisomy 17 site. Trisomy 17 is so rare, that there is very little information out there. Many "experts" claim that children with a trisomy 17 condition just don't exist, but they do. Some have done much better than any expert ever expected. Caroline is one of them. Subscribe to: Posts (Atom). View my complete profile. Welcome to our site!
Trisomy18-13 Support UK - WELCOME
Welcome to Trisomy 18-13 Support UK. Our mission is to help those dealing with these complex conditions to lead a 'life more ordinary'. We are parent driven and support families:. Caring for a baby or child with trisomy 18 or 13, sometimes known as Edwards' syndrome or Patau's syndrome. Those caring for a baby or child with a related disorder such as mosaicism. Families who have suffered a loss from one of these syndromes. ITA Books for Families. SOFT USA CARE BOOK. Click here for Ethics Committee.
Kayli is Loving Life Trisomy Style!!!
Kayli is Loving Life Trisomy Style! Trisomy in the News. Kayli, beyond her trisomy diagnosis. Thursday, January 22, 2015. Resources to share with,for, and help a grieving family. Cary, Illinois Area. Illinois special needs friends. Parents of CHD Warriors and Angels a place for support. Resources to share with, for, and help a grieving family:. 1 http:/ www.giveforward.com/. 2 set up a paypal account with/for the family. Personalized Christmas ornament (with deceased child's name). A prepaid phone card.
trisomy18.com - This website is for sale! - trisomy18 Resources and Information.
BUY or RENT this domain. This page provided to the domain owner free. By Sedo's Domain Parking. Disclaimer: Domain owner and Sedo maintain no relationship with third party advertisers. Reference to any specific service or trade mark is not controlled by Sedo or domain owner and does not constitute or imply its association, endorsement or recommendation.
Trisomy 18 Foundation –
8220;The Trisomy 18 Foundation will forever be special to our family. It was the most comprehensive, real, compassionate source for us and our extended family. Thank you! Mdash; Jina from Montana. What is Trisomy 18? What are Related Conditions? How is Trisomy 18 Diagnosed? Impact of Trisomy 18 on Baby? Create Your Own Event. Share your Child’s Story. Connect with Other Families. Quick Facts About the Foundation. Vision, Mission, and Goals. For Parents and Family ». For Health Professionals ». Parents: B...
Trisomy 18
What was the hardest. God s Front Door. What is trisomy 18? Edwards Syndrome is the second most common trisomy after Downs Syndrome (extra chromosome 21). However, unlike Downs syndrome, the survival rate is much lower, with only 10% of infants surviving to their first birthday. Statistics indicate approx 1 in 3000, 4000 or 5000 live births, although most die during pregnancy and do not make it full term. It can be detected whilst in the womb. Approx 80% cases are girls.
Our Trisomy 18 Angel
Our Trisomy 18 Angel. Our Trisomy 18 Angel. August 9, 2002. This site was created in memory of our daughter. She was stillborn as a result of Full Trisomy 18, a rare genetic disorder resulting in a third (extra) chromosome #18. A Message from Us. May God be with you and your family during this time of challenge and need. May your faith give you the strength to face each day as they come, and emerge, stronger on the other side. God didn't promise days without pain,. Trisomy 18 Q and A.
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