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T's NF Journey

One Journey through life with a child affected by Neurofibromatosis Type 1 (NF-1). Tuesday, June 23, 2015. Shriners Commercial and 3 Weeks Post-Op. Travis continues to heal beautifully from the 8-plate surgery at Shriners earlier this month. He's enjoyed playing at the pool several times since the doctors gave him the "go ahead" for pool time at his follow-up appointment on June 10th. T's mobility increases each day along with his independence for daily activities. Tracy: I don't know, why? Beginning of ...

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T's NF Journey | tsnfjourney.blogspot.com Reviews
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One Journey through life with a child affected by Neurofibromatosis Type 1 (NF-1). Tuesday, June 23, 2015. Shriners Commercial and 3 Weeks Post-Op. Travis continues to heal beautifully from the 8-plate surgery at Shriners earlier this month. He's enjoyed playing at the pool several times since the doctors gave him the go ahead for pool time at his follow-up appointment on June 10th. T's mobility increases each day along with his independence for daily activities. Tracy: I don't know, why? Beginning of ...
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1 t's nf journey
2 travis' nf timeline
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T's NF Journey | tsnfjourney.blogspot.com Reviews

https://tsnfjourney.blogspot.com

One Journey through life with a child affected by Neurofibromatosis Type 1 (NF-1). Tuesday, June 23, 2015. Shriners Commercial and 3 Weeks Post-Op. Travis continues to heal beautifully from the 8-plate surgery at Shriners earlier this month. He's enjoyed playing at the pool several times since the doctors gave him the "go ahead" for pool time at his follow-up appointment on June 10th. T's mobility increases each day along with his independence for daily activities. Tracy: I don't know, why? Beginning of ...

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1

T's NF Journey: T's Plexiform

http://tsnfjourney.blogspot.com/p/ts-plexiform.html

One Journey through life with a child affected by Neurofibromatosis Type 1 (NF-1). Pelvis MRI - Jul 21, 2011. Pelvis MRI - Apr 13, 2012. Pelvis MRI - Apr 27, 2013. Sometimes the differences in the pictures is due to the positioning of Travis on the MRI table. The cords for the different monitors used with T since he's sedated occasionally appear on the MRI images, see the center of the 2nd image below. Upper Leg MRI - Jul 21, 2011. Upper Leg MRI - Apr 13, 2012. Upper Leg MRI - Apr 27, 2013. Vacasa Rental...

2

T's NF Journey: Beginning of the Correction

http://tsnfjourney.blogspot.com/2015/06/beginning-of-correction.html

One Journey through life with a child affected by Neurofibromatosis Type 1 (NF-1). Monday, June 1, 2015. Beginning of the Correction. Friday morning I received a call that they had a cancellation with Dr. Santora (Travis' orthopedic doctor) for this morning, Monday, June 1st. This date worked great with our schedules, so this morning brought Travis' 3rd surgery in 11 months, thankfully a non-emergency surgery. We arrived at Shriners at 6:30 this morning for an 8:30a surgery start. When Travis returned to...

3

T's NF Journey: Update - Slow Recovery, Some Improvement

http://tsnfjourney.blogspot.com/2015/04/update-slow-recovery-some-improvement.html

One Journey through life with a child affected by Neurofibromatosis Type 1 (NF-1). Wednesday, April 15, 2015. Update - Slow Recovery, Some Improvement. Thankfully Travis' signature smile and laugh started returning over the weekend, especially after playing in his Miracle League baseball game on Saturday. This recovery has been harder as the surgery was longer and more involved. Travis was discharged from the hospital on Tues, Mar 17th and we all were ready to be home. Travis home from the hospital.

4

T's NF Journey: Another Femur Fracture

http://tsnfjourney.blogspot.com/2015/03/another-femur-fracture.html

One Journey through life with a child affected by Neurofibromatosis Type 1 (NF-1). Monday, March 16, 2015. T cried when it happened (that scream you know when something is wrong), yet he didn't cry on the way to the ER or waiting for the pain medicine. I'm not sure where his mind goes during the time of intense pain, he is the strongest person I will ever know. When asked in the ER room to rate his pain from 0 to 10, he replied "13".with no tears. Fracture - top view. Fracture - side/frog view. 1:20p - T...

5

T's NF Journey: Shriners Commercial and 3 Weeks Post-Op

http://tsnfjourney.blogspot.com/2015/06/shriners-commercial-and-3-weeks-post-op.html

One Journey through life with a child affected by Neurofibromatosis Type 1 (NF-1). Tuesday, June 23, 2015. Shriners Commercial and 3 Weeks Post-Op. Travis continues to heal beautifully from the 8-plate surgery at Shriners earlier this month. He's enjoyed playing at the pool several times since the doctors gave him the "go ahead" for pool time at his follow-up appointment on June 10th. T's mobility increases each day along with his independence for daily activities. Tracy: I don't know, why? Subscribe to:...

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THE LADYBUG GANG: October 2014

http://ladybuggang.blogspot.com/2014_10_01_archive.html

For everyone else in the family lockdown is full of rearranging schedules, keeping Rylie safe from viruses, endless amounts of laundry and cleaning. It's overall just a stress filled week! But for Rylie, lockdown week is her favorite time of every month. It's a week away from school spending the days with her favorite people. Her grandparents! Craft projects, movies, baking, snuggles, and just being spoiled rotten from sun up to sun down! We have in our hearts for these amazing people! We love this place!

marathonshape.blogspot.com marathonshape.blogspot.com

Marathon Shape: January 2013

http://marathonshape.blogspot.com/2013_01_01_archive.html

Monday, January 28, 2013. Ups and Downs of Endurance Running. Foothills of Mt. Lee. The last couple weeks has been filled with ups and downs, but that is t normal with endurance running. There are ups where you have a great run and you feel like you can go for miles and miles at a pace you had no idea you could run. And, when you’re down, they feel really down. You feel like you can barely complete this run and the pace is much slower than you’d like. Most training plans suggest that you increase your we...

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Marathon Shape: January 2015

http://marathonshape.blogspot.com/2015_01_01_archive.html

Sunday, January 11, 2015. REBUILDING MY RUNNING BASE - an embarrassing situation. Running. It must be done if one wants to get into MarathonShape. I know I ran in the last three months. Trouble is, I can’t remember my last run. I remember runs I’ve been on, but narrowing down a specific date eludes me. It’s embarrassing. I’ve run 10 miles. What the F is wrong with me! I remember when I first. Tuesday, January 6, 2015. Dancing - Because I Can! From the oldest of times, people danced for a number of reason...

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Marathon Shape: Dancing - Because I Can!

http://marathonshape.blogspot.com/2015/01/dancing-because-i-can.html

Tuesday, January 6, 2015. Dancing - Because I Can! From the oldest of times, people danced for a number of reasons. They danced in prayer. or so that their crops would be plentiful. or so their hunt would be good. And they danced to stay physically fit. and show their community spirit. And they danced to celebrate." Ren, Footloose. A Jive Fusion to Footloose. Choreographed by Matthew Patrick. Jim Clark and me, just before our pro-am. He understood the weakness of gross motor, continued balance troubles a...

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Marathon Shape: September 2013

http://marathonshape.blogspot.com/2013_09_01_archive.html

Monday, September 16, 2013. I know it’s been quite some time since I’ve written. With heat, travel, and work training has lagged. I am back on track with my training schedule; the time off has helped. One thing I did during this break was see some movies. Without further adieu, I bring you a one-off MOVIE REVIEW…. Recently had their evening of short films. Spoke the most to me. From experience crafting and writing films,. Crosses and blends story-telling styles… Can people come-of-age in their 50s? You d...

ladybuggang.blogspot.com ladybuggang.blogspot.com

THE LADYBUG GANG: August 2014

http://ladybuggang.blogspot.com/2014_08_01_archive.html

Local Support for the NF Walk! The 4th Annual NF Walk is quickly approaching-. Just 4 more days remain to get yourself pre-registered to walk with the ladybug gang as we fight to End NF! The LadyBug Gang is crushing our goals this year! Originally we set out to register 20 supporters to walk with us this year. Within a few days we had already blown through that goal! So, what do you do when you reach a goal. You set a new one! Yep, we want to double our original goal! We are so close. This was the first ...

ladybuggang.blogspot.com ladybuggang.blogspot.com

THE LADYBUG GANG: Throw Back Thursday

http://ladybuggang.blogspot.com/2015/05/throw-back-thursday.html

LATER THAT AFTERNOON WHEN THEY FINALLY ROLLED HER OUT OF SURGERY COMPLETE PANIC SET IN. I'M NOT SURE IF IT WAS SEEING OUR DAUGHTER LAYING IN A HOSPITAL BED WITH NO COLOR, COMPLETELY UNRESPONSIVE OR THE HARSH REALIZATION THAT WE WE'RE ON OUR WAY UP TO THE ONCOLOGY. TODAY IS NOT ABOUT TEARS AND SADNESS. YES, THIS YEAR HAS SUCKED! IT HAS BEEN THE HARDEST THING I HAVE EVER BEEN THROUGH IN MY LIFE. IT HAS TESTED ME IN WAYS I DIDN'T THINK COULD EVER BE POSSIBLE. BUT. IT;S BEEN ON HECK OF A YEAR! Well, so. ...

ladybuggang.blogspot.com ladybuggang.blogspot.com

THE LADYBUG GANG: 15 Truths...

http://ladybuggang.blogspot.com/2015/04/15-truths.html

LAST NIGHT SOME DEAR FRIENDS SENT ME A LINK TO AN ARTICLE- 15 TRUTHS TO HAVING YOUR CHILD DIAGNOSED WITH CANCER. THIS ARTICLE HIT ALL TO CLOSE TO HOME. NO, LADYBUG DOES NOT HAVE CANCER, SHE HAS NEUROFIBROMATOSIS. IT'S A COMMON MISCONCEPTION WE'VE BATTLED AGAINST FOR MONTHS. THEY ARE TWO ENTIRELY DIFFERENT THINGS, YET THEY ARE SO SIMILAR. AT SOME POINT I STOPPED FIGHTING THE COMPARISON. WHY. BECAUSE. HELL, TUMORS IN GENERAL SUCK! LOVE AND PRAYERS TO ALL OF OUR CHEMO BUDDIES! Our {Wild and Crazy} Days.

ladybuggang.blogspot.com ladybuggang.blogspot.com

THE LADYBUG GANG: February 2015

http://ladybuggang.blogspot.com/2015_02_01_archive.html

I’M GOING TO TRY AND GET THROUGH THIS WALK DOWN MEMORY LAND WITHOUT TOO MANY TEARS…. ONE YEAR. IT’S BEEN EXACTLY ONE YEAR SINCE OUR LIVES WERE FOREVER TURNED UPSIDE DOWN. SOME DAYS IT FEEL LIKE THAT WAS FOREVER AGO, OTHER DAYS IT FEELS LIKE IT WAS JUST A FEW HOURS AGO. 365 DAYS AND I CAN STILL REMEMBER EVERY SINGLE MOMENT OF THAT INITIAL CONVERSATION WITH THE DOCTORS, EVERY DETAIL OF THE REST OF THAT WEEK… IT WAS THE WEEK THAT FOREVER CHANGED OUR FAMILY. HOW DO YOU KEEP GLASSES ON A ONE YEAR OLD? WE WERE...

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T's NF Journey

One Journey through life with a child affected by Neurofibromatosis Type 1 (NF-1). Tuesday, June 23, 2015. Shriners Commercial and 3 Weeks Post-Op. Travis continues to heal beautifully from the 8-plate surgery at Shriners earlier this month. He's enjoyed playing at the pool several times since the doctors gave him the "go ahead" for pool time at his follow-up appointment on June 10th. T's mobility increases each day along with his independence for daily activities. Tracy: I don't know, why? Beginning of ...

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