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Worth His Salt

A family's journey through life with Cystic Fibrosis. Our Great Strides Team. Monday, March 23, 2015. So where do I start with explaining all that I can about all that went in to a years worth of silence? I'm not afraid to say it. Nobody gets to have it, least of all Jacks, but I wanted a break from Cystic Fibrosis. Sunday, May 4, 2014. Debridement and Nourishment - The Feeding Therapy Experience. But am now almost giddy to schlep up to the checkout. So now, as I pull fish sticks out of the oven, measure...

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Worth His Salt | worthhissalt.blogspot.com Reviews
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A family's journey through life with Cystic Fibrosis. Our Great Strides Team. Monday, March 23, 2015. So where do I start with explaining all that I can about all that went in to a years worth of silence? I'm not afraid to say it. Nobody gets to have it, least of all Jacks, but I wanted a break from Cystic Fibrosis. Sunday, May 4, 2014. Debridement and Nourishment - The Feeding Therapy Experience. But am now almost giddy to schlep up to the checkout. So now, as I pull fish sticks out of the oven, measure...
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Worth His Salt | worthhissalt.blogspot.com Reviews

https://worthhissalt.blogspot.com

A family's journey through life with Cystic Fibrosis. Our Great Strides Team. Monday, March 23, 2015. So where do I start with explaining all that I can about all that went in to a years worth of silence? I'm not afraid to say it. Nobody gets to have it, least of all Jacks, but I wanted a break from Cystic Fibrosis. Sunday, May 4, 2014. Debridement and Nourishment - The Feeding Therapy Experience. But am now almost giddy to schlep up to the checkout. So now, as I pull fish sticks out of the oven, measure...

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worthhissalt.blogspot.com worthhissalt.blogspot.com
1

Worth His Salt: bootstraps

http://worthhissalt.blogspot.com/2014/01/bootstraps.html

A family's journey through life with Cystic Fibrosis. Our Great Strides Team. Friday, January 17, 2014. This post is very, very long, and as much as it pains me, I have to ask you to forgive the capitalization errors. My key. Broken, so every letter '. B' you see had to. Be copied and pasted in, and seeing as it took me over two hours to do. That, I can't pain myself to go. Back right now and capitalize some of them. This year in Cystic Fibrosis: (PSSST….THIS IS THE REALLY LONG PART). I have no shoes, bu...

2

Worth His Salt

http://worthhissalt.blogspot.com/2011/07/its-been-month-since-my-last-post.html

A family's journey through life with Cystic Fibrosis. Our Great Strides Team. Monday, July 25, 2011. I try my best to just be worthy of the help I get, and to help others whenever given the chance. I'm not sure what else I can do but hold the hope that I am indeed, fostering some good karma. Hopefully I'm back to blogging regularly now. Being a stream of consciousness talker sometimes leaves me feeling overexposed, but also means I never go too long without word. Subscribe to: Post Comments (Atom). My na...

3

Worth His Salt: On Suffering and Sanity: an Impassioned Plea for All of Us

http://worthhissalt.blogspot.com/2014/02/on-suffering-and-sanity-impassioned.html

A family's journey through life with Cystic Fibrosis. Our Great Strides Team. Sunday, February 23, 2014. On Suffering and Sanity: an Impassioned Plea for All of Us. February 23, 2014 at 11:12 PM. I needed those words. Thank you Amy. April 22, 2014 at 1:29 PM. Time you got that Skype back on. M. Subscribe to: Post Comments (Atom). Introductions I'd Rather Not Make. My name is Amy. I could give you the typical intro; Im a 30 year old mother of two, twice married, aspiring artist and semi-reformed h. Run, S...

4

Worth His Salt: Debridement and Nourishment - The Feeding Therapy Experience

http://worthhissalt.blogspot.com/2014/05/debridement-and-nourishment-feeding.html

A family's journey through life with Cystic Fibrosis. Our Great Strides Team. Sunday, May 4, 2014. Debridement and Nourishment - The Feeding Therapy Experience. Forgive a little vagueness, again, this is the story of a family, not just mine, and it's only what I see and feel, that I can say. And there are some things that don't belong on the Internet, even for me. But am now almost giddy to schlep up to the checkout. So now, as I pull fish sticks out of the oven, measure out 57 grams of Lays potato chips...

5

Worth His Salt: SixtyFiveRoses, the color!

http://worthhissalt.blogspot.com/2010/12/sixtyfiveroses-color.html

A family's journey through life with Cystic Fibrosis. Our Great Strides Team. Tuesday, December 7, 2010. SixtyFiveRoses, the color! Update. I do still have this item for sale. I made the initial deposit to our Great Strides team for $127.89. If you're interested in purchasing some, send me a message! This is my favorite fundraising event yet! I put my head together with Lela Warren, the proprietor of Glittersniffer Cosmetics. Every single penny I make from this is going to the CFF through our Great Strid...

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mi tierra | kanani mahelona

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A hawaiian in manhattan ponders life, art and travel. Tag Archives: mi tierra. December 16, 2014. San Antonio memoir, July 2010. During the early part of my childhood in Hawaii, we didn’t really “go” places on vacation. The islands are one of the most remote places on earth; and air travel for our big kit-n-kaboodle was way beyond our means. Not that we didn’t have GREAT summers…our motherland was always there to entertain and sustain us. We had no complaints! The food tastes like cafeteria fare, not lik...

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Cystic Fibrosis:We're Learning As We Go: June 2015

http://ourcfstory.blogspot.com/2015_06_01_archive.html

We're Learning As We Go. Tuesday, June 16, 2015. On June 4th, Emery went in for endoscopic sinus surgery to have nasal polyps removed and to get her sinuses cleaned out. It ended up taking about 2 hours to do the procedure and afterwards her doctor said it was a really good thing that we brought her in. He showed us a picture of one of her nasal passages which I will spare you in case you are eating! But it was very interesting to see! Subscribe to: Posts (Atom). Emery's Angels - Great Strides 2015.

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kanani mahelona | a hawaiian in manhattan ponders life, art and travel | Page 2

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A hawaiian in manhattan ponders life, art and travel. Newer posts →. Backpacking-through-Europe Part VI: Vienna. July 22, 2012. Backpacking-through-Europe Part VI: Vienna. Sent Wednesday, April 01, 2009 9:11 PM. Oh, yeah…the not-so-little “dash” of Kahlua I snuck in there helped, too! Like Paris (but much, much cleaner), wide boulevards, manicured parks and symmetry in building abound. Like Rome, the scale, detail and drama in Vienna’s mythological statuary are amazing! 8216;Twas here that I met the arti...

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san antonio | kanani mahelona

https://kananimahelona.com/tag/san-antonio

A hawaiian in manhattan ponders life, art and travel. Tag Archives: san antonio. December 16, 2014. San Antonio memoir, July 2010. During the early part of my childhood in Hawaii, we didn’t really “go” places on vacation. The islands are one of the most remote places on earth; and air travel for our big kit-n-kaboodle was way beyond our means. Not that we didn’t have GREAT summers…our motherland was always there to entertain and sustain us. We had no complaints! The food tastes like cafeteria fare, not l...

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Cystic Fibrosis:We're Learning As We Go: Sinus Surgery

http://ourcfstory.blogspot.com/2015/06/sinus-surgery.html

We're Learning As We Go. Tuesday, June 16, 2015. On June 4th, Emery went in for endoscopic sinus surgery to have nasal polyps removed and to get her sinuses cleaned out. It ended up taking about 2 hours to do the procedure and afterwards her doctor said it was a really good thing that we brought her in. He showed us a picture of one of her nasal passages which I will spare you in case you are eating! But it was very interesting to see! Subscribe to: Post Comments (Atom). Our CF Story Starts Here:. 2016 C...

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unknowncystic | The Unknown Cystic

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Leaving a digital record for my family and virtual friends. Skip to primary content. Skip to secondary content. The Unknown Cystic – Fighting CF with Words, Humor, and a Flail. I have no shoes, but . . . August 1, 2016. I’m going to misquote a quote. I apologize to the writer, but it’s a great quote and helps me get through the day. Its source is mysterious on the web. This is my version, “I felt sorry for myself because I had no shoes until I met a man who had no feet.”. July 28, 2016. The year didn&#82...

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Breath Sentence: It's All I've Got - It's My Claim to Fame

http://breathsentence.blogspot.com/2009/11/its-all-ive-got-its-my-claim-to-fame.html

The celebrations, exclamations, observations and ruminations of a twenty-something on a quest to figure out this adulthood thing, make her life matter and have some fun along the way.and do it all with Cystic Fibrosis. Wednesday, November 18, 2009. It's All I've Got - It's My Claim to Fame. But I digress). However, as some of you may recall, there was a relatively popular show on during the 90's called "Ally McBeal", in which (among other things) the main character, as well as several others, had per...

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civil rights | kanani mahelona

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A hawaiian in manhattan ponders life, art and travel. Tag Archives: civil rights. Pondering defeat in the midterm elections…). November 5, 2014. So what am I worried about, exactly? I live in New York City, for crying out loud! We have marriage equality here. Women have the support here to be masters of their own bodies. No one has to SELL us on universal healthcare. Diversity? So why the HELL do I get so worked up at election time? Maybe I’m just dark maroon. Is the history, the channel to freedom and o...

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Travel | kanani mahelona

https://kananimahelona.com/category/travel

A hawaiian in manhattan ponders life, art and travel. December 16, 2014. San Antonio memoir, July 2010. During the early part of my childhood in Hawaii, we didn’t really “go” places on vacation. The islands are one of the most remote places on earth; and air travel for our big kit-n-kaboodle was way beyond our means. Not that we didn’t have GREAT summers…our motherland was always there to entertain and sustain us. We had no complaints! The food tastes like cafeteria fare, not like something “abueli...

kananimahelona.com kananimahelona.com

patriotism | kanani mahelona

https://kananimahelona.com/tag/patriotism

A hawaiian in manhattan ponders life, art and travel. Pondering defeat in the midterm elections…). November 5, 2014. So what am I worried about, exactly? I live in New York City, for crying out loud! We have marriage equality here. Women have the support here to be masters of their own bodies. No one has to SELL us on universal healthcare. Diversity? So why the HELL do I get so worked up at election time? Maybe I’m just dark maroon. Is it because the memory of immigration is still so fresh, here? Is it b...

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I do a lot of canning and pickling, and I love seafood. So color me surprised when I came across a recipe that combined both that I hadn’t heard of before: pickled shrimp. Continue reading →. July 28, 2015. So, I prefer my guacamole to be a pico-like salsa with creamy avocado as a binder. Lots of tomato, white onion, jalapeno, cilantro and lime juice are key, as far as I’m concerned. Even if you mash the avocados smoothly, it’ll still be chunky. I’m still not a fan of the to...Continue reading →. It&#821...

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Worth His Salt

A family's journey through life with Cystic Fibrosis. Our Great Strides Team. Monday, March 23, 2015. So where do I start with explaining all that I can about all that went in to a years worth of silence? I'm not afraid to say it. Nobody gets to have it, least of all Jacks, but I wanted a break from Cystic Fibrosis. Sunday, May 4, 2014. Debridement and Nourishment - The Feeding Therapy Experience. But am now almost giddy to schlep up to the checkout. So now, as I pull fish sticks out of the oven, measure...

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