adventureswithleukemia.blogspot.com

Dave's Great Adventure

My Two and a Half Years on Ibrutinib. Intro To My Story. View my complete profile. Friday, November 7, 2014. Intro To My Story. This is the story of my finding out I had an incurable and lethal form of leukemia. It starts in early 2002. I've been lucky, as I've lived more than twelve years with the disease, which is longer than the average longevity for a lot of folks. I never thought I'd live this long! Prologue- early 2002 up to about July 2002. Book Four- It's Baaack! I hope to use this blog to keep a...

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Dave's Great Adventure | adventureswithleukemia.blogspot.com Reviews

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My Two and a Half Years on Ibrutinib. Intro To My Story. View my complete profile. Friday, November 7, 2014. Intro To My Story. This is the story of my finding out I had an incurable and lethal form of leukemia. It starts in early 2002. I've been lucky, as I've lived more than twelve years with the disease, which is longer than the average longevity for a lot of folks. I never thought I'd live this long! Prologue- early 2002 up to about July 2002. Book Four- It's Baaack! I hope to use this blog to keep a...

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Dave's Great Adventure | adventureswithleukemia.blogspot.com Reviews

https://adventureswithleukemia.blogspot.com

My Two and a Half Years on Ibrutinib. Intro To My Story. View my complete profile. Friday, November 7, 2014. Intro To My Story. This is the story of my finding out I had an incurable and lethal form of leukemia. It starts in early 2002. I've been lucky, as I've lived more than twelve years with the disease, which is longer than the average longevity for a lot of folks. I never thought I'd live this long! Prologue- early 2002 up to about July 2002. Book Four- It's Baaack! I hope to use this blog to keep a...

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adventureswithleukemia.blogspot.com

1

Dave's Great Adventure: 03/14/02

http://adventureswithleukemia.blogspot.com/2002_03_14_archive.html

View my complete profile. Thursday, March 14, 2002. Well, I saw Heme/ Onc. Today Kathy and I met with a really nice guy named Brian. He talked about the disease and answered questions for me. So, here's what I learned:. I really have CLL. This is not a leukemoid. Reaction. My continuing malaise. Weakness is probably not from the disease as my white count is"only" 27,000. This is not generally considered to be inherited despite the fact that dad. Died of the same disease. You guys (my sibs. Patient who ge...

2

Dave's Great Adventure: 04/29/02

http://adventureswithleukemia.blogspot.com/2002_04_29_archive.html

The antigen match pool results. View my complete profile. Monday, April 29, 2002. The antigen match pool results. And the answer is. I matched just three antigens each with my brothers and none with my sisters, so the total match was just six. We talked to Jen today and told her that we thought she had won the pool. She wasn't thrilled; "I don't want the money," she said. I told her I'd send her the address for the Leukemia/Lymphoma Society and that they'd be happy to take her winnings.

3

Dave's Great Adventure: 02/28/02

http://adventureswithleukemia.blogspot.com/2002_02_28_archive.html

View my complete profile. Thursday, February 28, 2002. Well, the "definitive" test came back positive. I think. This is the high. That I can't figure out except that it somehow. Sorts cells based on their size or whatever. I got a call today from my other internist, who's watching over me while my. Other buddy is off for a few days. He said the test was positive and he. Was putting in a referral to Hematology/Oncology. But though what he intended to say was that it was positive, what he really. As if it'...

4

Dave's Great Adventure: 05/01/02

http://adventureswithleukemia.blogspot.com/2002_05_01_archive.html

View my complete profile. Wednesday, May 1, 2002. Thanks for your note. I appreciate your thoughts, and I also appreciate the fact that it's hard to figure out what to say about my condition. Get well soon? I'm actually doing pretty well right now. After the initial illness finally cleared, I began feeling normal again. I've been significantly depressed at times (probably a normal reaction) which makes it hard for me to sleep very well, but otherwise Kathy and I are both doing okay. Oh, yeah. Before ...

5

Dave's Great Adventure: 04/16/02

http://adventureswithleukemia.blogspot.com/2002_04_16_archive.html

View my complete profile. Tuesday, April 16, 2002. Well, this is getting to be some serious s* t! First, what everyone is waiting to hear. There are two HLA. They match.each other. But not me. He didn't have the papers (they'd been sent out to be scanned into the computer system) but I have to. Assume they were Deb and Diane, who are perfect matches for each other. Doug's will presumably be available by the end of the week or by next. By about ten days to two weeks from now. Come on guys, it's up to you!

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paulfowler.blogspot.com

The Road: Newborn

http://paulfowler.blogspot.com/2012/05/newborn.html

Navigating "Our Journey" through CLL and HSCT. Wednesday, May 2, 2012. Today is day 0. The start of a new leash on life. It all began at 10:45 am and was over by 12:45. That may seem a little anti-climactic to some, but for us it is absolutely phenomenal and miraculous. How many of us can say that we have literally been given the chance to start our lives over? On a slightly lighter note, have you ever seen a bag of life? Well, now you can say that you have. Straight in through the CVC, and now we wait.

tamarafowler.blogspot.com

Our Journey...: Why Wait?

http://tamarafowler.blogspot.com/2015/05/why-wait.html

May 19, 2015. Yesterday was a frustrating day at MDA. Results from my bone marrow biopsy were inconclusive on the day that we had thought. That we would decide on the next steps in my treatment plan. Instead, we would have to wait until the cytogenetics (FISH) results came back and probably reschedule another BMB. :/. I have leaned toward my stem cell’s doctor’s view because I like NOT having leukemia! While I have determined every day to lay this at the Lord’s feet, it does require a daily decisio...

tamarafowler.blogspot.com

Our Journey...: Keep Believing!

http://tamarafowler.blogspot.com/2015/05/keep-believing.html

May 14, 2015. The other morning, I woke up and walked into the kitchen to get my coffee and found that my favorite wooden “Believe” plaque had fallen from the wall above my pantry door and shattered into several pieces. I was really sad. I have had that piece for quite some time and it was very special to me…for several reasons. 8220;May the God of hope fill you with all joy and peace in believing, so that by the power of the Holy Spirit you may abound in hope.”. 8220;So do not fear, for I am with you;.

tamarafowler.blogspot.com

Our Journey...: May 2015

http://tamarafowler.blogspot.com/2015_05_01_archive.html

May 19, 2015. Yesterday was a frustrating day at MDA. Results from my bone marrow biopsy were inconclusive on the day that we had thought. That we would decide on the next steps in my treatment plan. Instead, we would have to wait until the cytogenetics (FISH) results came back and probably reschedule another BMB. :/. I have leaned toward my stem cell’s doctor’s view because I like NOT having leukemia! While I have determined every day to lay this at the Lord’s feet, it does require a daily decisio...

paulfowler.blogspot.com

The Road: Day Negative 7

http://paulfowler.blogspot.com/2012/04/day-negative-7.html

Navigating "Our Journey" through CLL and HSCT. Wednesday, April 25, 2012. Ok, we are officially moving on down the road now. Yesterday, we did all of the final pre-transplant tests. Nothing major. We also were able to get her CVC dressing changed for the first time. I thought maybe you would like to see a little graphic detail. She always wanted bigger eyelashes. These actually coordinate with her mask. This is the central venous catheter, with three lumens. April 26, 2012 at 11:15 AM. I'm starting this ...

paulfowler.blogspot.com

The Road: February 2012

http://paulfowler.blogspot.com/2012_02_01_archive.html

Navigating "Our Journey" through CLL and HSCT. Tuesday, February 14, 2012. What did you say? Just hit a pothole that we didn't see. I thought that I would be able to give the campath injections. Made sense, the doctor's suggested it, Tamara was good with it. Who wouldn't be? Having someone you love do this in your home, where your comfort level would be at it's highest. The insurance company, that's who isn't good with it! So much for that! Monday, February 13, 2012. A view from the passenger seat. Tamar...

paulfowler.blogspot.com

The Road: What did you say???

http://paulfowler.blogspot.com/2012/02/what-did-you-say.html

Navigating "Our Journey" through CLL and HSCT. Tuesday, February 14, 2012. What did you say? Just hit a pothole that we didn't see. I thought that I would be able to give the campath injections. Made sense, the doctor's suggested it, Tamara was good with it. Who wouldn't be? Having someone you love do this in your home, where your comfort level would be at it's highest. The insurance company, that's who isn't good with it! So much for that! Subscribe to: Post Comments (Atom). View my complete profile.

tamarafowler.blogspot.com

Our Journey...: March 2015

http://tamarafowler.blogspot.com/2015_03_01_archive.html

March 25, 2015. Good News, Bad News. I described the pain to the PA who seemed a bit at a loss, but as soon as Dr. Shah came in, she seemed to know just what it was. The T-Cells are busy at work seeking and destroying the cancer cells! And in doing so, they emit a protein that causes inflammation in my body and makes me feel like crud. So the good news is that the T-Cells are working hard. The bad news is that it makes me feel lousy. It should not be permanent. Steroids are not an option on this trial.

tamarafowler.blogspot.com

Our Journey...: July 2015

http://tamarafowler.blogspot.com/2015_07_01_archive.html

July 24, 2015. So we will continue to watch and wait. Fortunately, my doctor watches very closely! While I am very thankful for these results, it is difficult right now to understand…. WHY? Why am I given more time, more weeks, months, maybe even years with my family when others who have walked similar walks are not? I know as a believer that these are not questions that I will find answers to on this side of heaven. I know that God has numbered our days from the beginning. 8220;Yet this I call to mind.

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Adventures with lani

Saturday, June 28, 2014. Sunday, May 18, 2014. Mass at Notre Dame Cathedral and the Louvre. We saw some souvenir scarves, French tams/ berets, and all types of t-shirts you could want. We were going to go to Mass then come back to purchase what we wanted. So by 11:15 am, the bells of Notre Dame were ringing as people were streaming into the church. We found our seats towards the front of the second section and watch the church fill up with hundreds of worshipers. But it was an experience of a lifetime.

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Adventures With LaToya

Missing a Certain Naked Baby. I think these pictures speak for themselves. Currently missing a certain troublemaking, naked, yet adorable child. It was a joy to play with this naked, nuisance! In Conclusion of My Jamaican Journey. Plants grow everywhere. What people fail to realize is that many plants or herbs are medicinal, meaning it can be used to cure sicknesses. In Jamaica, herbs are everywhere! Kwamen Falls and Black Sand Beach. Interview with a Rastafarian. One of my goals in life is to become a b...

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Adventures with Laura | Encouraging you to strengthen your walk with God

Encouraging you to strengthen your walk with God. Questions from a Single Heart. January 13, 2014. Tiny, and I mean tiny snowflakes were drifting out of the sky and landing softly on my black shirt. I looked down, and on my shoulder was a perfect snowflake. Even without a magnifying glass, I could see the six perfect arms of that miniscule flake. Just as God made each flake unique, He treats every single prayer with that same care. From → Uncategorized. October 31, 2012. What’s wrong, Honey? I sat on the...

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Les and Karin's Adventures. Join Les and Karin as they adventure across the world.and across the backyard. Sunday, April 29, 2007. Posted by Les and Karin. KJ, Fami, Les and Khalil. Posted by Les and Karin. Manon, Jules, Les, Gilbert and Richard on our last night in the United Arab Emirates. Posted by Les and Karin. The temperature in Abu Dhabi was 36 degrees the afternoon we left. Our only hope was that there was no snow in Edmonton when we arrived! Just after midnight on Friday, April 13th we boarded o...

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adventureswithleukemia.blogspot.com

Dave's Great Adventure

My Two and a Half Years on Ibrutinib. Intro To My Story. View my complete profile. Friday, November 7, 2014. Intro To My Story. This is the story of my finding out I had an incurable and lethal form of leukemia. It starts in early 2002. I've been lucky, as I've lived more than twelve years with the disease, which is longer than the average longevity for a lot of folks. I never thought I'd live this long! Prologue- early 2002 up to about July 2002. Book Four- It's Baaack! I hope to use this blog to keep a...

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Momma Liabz

Wednesday, February 23, 2011. I just read the saddest blog in the whole wide world. I'm having a hard time processing it so I just thought I would post here about it. You will be remembered baby Maddie. Heavenly Father loves you! Friday, February 11, 2011. As you all know, I adore Valentine's Day. It is possibly my favorite day of the year. Our cards are done and ready to go out in the mail, and if you don't receive one don't worry! I'm posting the card here online for all to see. Friday, November 5, 2010.

adventureswithliam.com

Adventures With Liam

My name is Liam and I have enjoyed reading since I was six or seven years old. I'm ten now and have read more books than I remember. For school I am putting some of my favorite books on this blog with my own review. I hope you enjoy them! Lego Star Wars III – The Clone Wars Video Game Review. Why I Like Astro Boy…. Book Review: Tomo – Child of Destiny Volume 3. Book Review: Tomo – Volume 2: My Double-Edged Life. Book Review: Tomo – Volume 1: I Was An 8th Grade Ninja. Book Review: Disney’s Flubber. I have...

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Adventures With Liam

My name is Liam and I have enjoyed reading since I was six or seven years old. I'm ten now and have read more books than I remember. For school I am putting some of my favorite books on this blog with my own review. I hope you enjoy them! Lego Star Wars III – The Clone Wars Video Game Review. Why I Like Astro Boy…. Book Review: Tomo – Child of Destiny Volume 3. Book Review: Tomo – Volume 2: My Double-Edged Life. Book Review: Tomo – Volume 1: I Was An 8th Grade Ninja. Book Review: Disney’s Flubber. I have...

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