jonahsjustbegun.blogspot.com
Jonah's Just Begun: My question is: How will you do it?
http://jonahsjustbegun.blogspot.com/2015/03/my-question-is-how-will-you-do-it.html
Thursday, March 19, 2015. My question is: How will you do it? Friday February 27th I spoke at the National Institute of Health (NIH) for their Rare Disease Day (RDD) event. I was asked to tell people about my family, why we created JJB then Phoenix Nest. There were a few hundred people in attendance, heavy on patient advocates. The NIH RDD speakers and panelists. My panel is about an hour into it. There were three questions that kept being asked. 1 How did you find the scientists? 3 How do you do it?
jonahsjustbegun.blogspot.com
Jonah's Just Begun: January 2015
http://jonahsjustbegun.blogspot.com/2015_01_01_archive.html
Thursday, January 8, 2015. Staring fear in the face. I suppose it’s time to face my fears. I realize now by working my brain into a grave that I have been running from Sanfilippo and my fear that it will take Jonah. It’s time that I turn around and stare Sanfilippo down. You’re not taking my kid. I look at Jonah and I see all the way to his soul. I love every bit of him. Sanfilippo is part of him it’s written in his DNA. So does that mean I love Sanfilippo too? Am I allowed to be happy? I’m thinkin...
jonahsjustbegun.blogspot.com
Jonah's Just Begun: June 2014
http://jonahsjustbegun.blogspot.com/2014_06_01_archive.html
Wednesday, June 25, 2014. Parent Power.I like that tag line- much better then fighter mom. (Stole it from 60minutes Australia.). 8221; Breathe, I’m not alone. Here is the 60 Minute episode, inspired by the Donnell’s. http:/ lnkd.in/b6n9ieU. Compare it to the radio interview that Kristine and I did last week. http:/ fresh1027.cbslocal.com/2014/06/15/spotlighting-sanfilippo-syndrome-with-cbs-2s-kristine-johnson/. 8232;I’d finger paint more, and point the finger less. 8232;I would be firm less often, and af...
rileyswc.blogspot.com
Cleaning windows in the GTA: June 2010
http://rileyswc.blogspot.com/2010_06_01_archive.html
Thursday, June 3, 2010. We're not big, but we're small. I do everything I can to be of service to everyone that needs me. I just hope that those that are waiting can wait long enough. Links to this post. Subscribe to: Posts (Atom). Contribution of gift certificate to silent auction - Cornell Village Public School Advisory Council. Contribution of gift certificate to silent auction - The Sanfilippo Children's Research Foundation. Neighbourhood (Cornell, Markham) picnic sponsorship - Pony ride.
rileyswc.blogspot.com
Cleaning windows in the GTA: September 2009
http://rileyswc.blogspot.com/2009_09_01_archive.html
Wednesday, September 23, 2009. Cleaning with Pure Water. By far the most exciting new tool in our industry is Pure Water. Ok, it isn't a technology but a product. If it is coupled with a Water Fed Pole, it IS the most exciting thing to happen in our industry in a very long time. If you think about the final rinse that a GOOD car wash gives you and couple that with a quality brush and pole, you've got the makings of Pure Water Window cleaning. 1 How can you lift a pole that long and how do you control it?
rileyswc.blogspot.com
Cleaning windows in the GTA: The end of an era
http://rileyswc.blogspot.com/2010/11/end-of-era.html
Thursday, November 4, 2010. The end of an era. Its the people side of the business I like the best. There are some clients that have just always been there in my experience. Clients come and eventually go. But not too soon. Enough. Let the new era begin, or rather, continue. Troy - PacifiClear Window Cleaning said. John, You have the best blog posts. I love that you post on the personal side of running a window cleaning business. March 1, 2011 at 1:02 AM. New View Window Cleaning. Industry Associations t...
teamsanfilippo.blogspot.com
Team Sanfilippo: MPS Societies/Friends
http://teamsanfilippo.blogspot.com/p/mps-societiesfriends.html
Note: If I have left your organization off this list, please post a comment at the bottom of the page with your site name and URL and I will gladly add it. J onah's Just Begun. Sanfilippo Children's Research Fund. Little Mackiek and Great Wizards. US National MPS Society. I rish MPS Society. Simon Ibell's Ibellieve Foundation. Subscribe to: Posts (Atom). Official Team Sanfilippo Web Site. Team Sanfilippo Youtube Page. Team Sanfilippo Ebay Store. A Father's Perspective on His Very Sick Kid. Okay, lets adm...
rileyswc.blogspot.com
Cleaning windows in the GTA: August 2011
http://rileyswc.blogspot.com/2011_08_01_archive.html
Tuesday, August 16, 2011. I was told today that when I speak about pure water window cleaning, I get a really passionate look in my eye. I guess that's true. I AM passionate about this stuff. There. I said it and I mean it. I love my industry and was able to look at this new group of friends and feel like I was keeping them safe. Links to this post. Subscribe to: Posts (Atom). Contribution of gift certificate to silent auction - Cornell Village Public School Advisory Council. Rouge River Community church.
rileyswc.blogspot.com
Cleaning windows in the GTA: February 2012
http://rileyswc.blogspot.com/2012_02_01_archive.html
Wednesday, February 1, 2012. Window cleaning in Markham. It goes without saying that if you need window cleaning or any other services we offer, please give us a call! John Riley February 2012. Links to this post. Subscribe to: Posts (Atom). Contribution of gift certificate to silent auction - Cornell Village Public School Advisory Council. Contribution of gift certificate to silent auction - The Sanfilippo Children's Research Foundation. Neighbourhood (Cornell, Markham) picnic sponsorship - Pony ride.
