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Be Fair To Rare – Rare Diseases Canada

Be Fair 2 Rare – Rare Disease Advocacy in Canada. Did you know…. Approximately 1 in 12 Canadians suffer from 1 of over 7,000 types of rare diseases? Canada is the only country in the developed world. Without a Federal Healthcare Policy that addresses this segment of the population. What does this mean? It means that for 1 in 12 Canadians……. Pharmaceutical companies have no incentive to develop therapies because individual patient populations are so small. So what is needed?

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Be Fair To Rare – Rare Diseases Canada | befair2rare.com Reviews

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Be Fair 2 Rare – Rare Disease Advocacy in Canada. Did you know…. Approximately 1 in 12 Canadians suffer from 1 of over 7,000 types of rare diseases? Canada is the only country in the developed world. Without a Federal Healthcare Policy that addresses this segment of the population. What does this mean? It means that for 1 in 12 Canadians……. Pharmaceutical companies have no incentive to develop therapies because individual patient populations are so small. So what is needed?

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Be Fair To Rare – Rare Diseases Canada | befair2rare.com Reviews

https://befair2rare.com

Be Fair 2 Rare – Rare Disease Advocacy in Canada. Did you know…. Approximately 1 in 12 Canadians suffer from 1 of over 7,000 types of rare diseases? Canada is the only country in the developed world. Without a Federal Healthcare Policy that addresses this segment of the population. What does this mean? It means that for 1 in 12 Canadians……. Pharmaceutical companies have no incentive to develop therapies because individual patient populations are so small. So what is needed?

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News and Events — Be Fair 2 Rare - Rare Disease Advocacy in Canada

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Be Fair 2 Rare – Rare Disease Advocacy in Canada. Mission RARE Inaugural Event. 8211; Wednesday, Feb. 29th, 2012. Healthcare Crusader Battles to Fix the Broken Healthcare System. Toronto Star, Feb. 27th, 2011. Simon Says and Athletes Agree: Be Fair 2 Rare: Toronto Star. Feb 28, 2011. International Rare Disease Day: A Call to Canadians. Healthynomics, March 5, 2011. National Hockey League Players Association: Lending their Voices. March 10, 2011. Get smart with the Thesis WordPress Theme.

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Internet Archive Wayback Machine. Skip to main content. Search the history of over 491 billion pages on the Internet. Search the Wayback Machine. TV NSA Clip Library. Cultural and Academic Films. News and Public Affairs. 78 RPMs and Cylinder Recordings. Audio Books and Poetry. Music, Arts and Culture. News and Public Affairs. Occupy Wall Street Flickr. Internet Archive's Wayback Machine. Http:/ befair2rare.com:80/wp-admin/ 18:21:06 Apr 13, 2012. Got an HTTP 302 response at crawl time.

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Resources — Be Fair 2 Rare - Rare Disease Advocacy in Canada

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Be Fair 2 Rare – Rare Disease Advocacy in Canada. Below are a few resources that can help get you up to speed with the rare disease community’s efforts:. Canadian Organization for Rare Disorders (CORD). Rare Disease Day 2012. Position Paper on Canada’s Orphan Drug Policy. Canada’s “Chance for Life” Strategy. Private Members Motion (M-426). Get smart with the Thesis WordPress Theme.

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About Us — Be Fair 2 Rare - Rare Disease Advocacy in Canada

http://www.befair2rare.com/about-us

Be Fair 2 Rare – Rare Disease Advocacy in Canada. BE FAIR 2 RARE is a public outreach campaign founded by the iBellieve Foundation. And launched with the Canadian Organization for Rare Disorders (CORD). It is vital we raise awareness of this important issue in Canada with both policymakers and the general population. We further ask that our government continue to explore ways to support this not so rare segment of the Canadian population as it seeks equality in the eyes of our healthcare system.

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Be Fair To Rare – Rare Diseases Canada

http://www.befair2rare.com/blog

Be Fair 2 Rare – Rare Disease Advocacy in Canada. Canadian television and radio personality George Stroumboulopoulos. 8220;Strombo”) supports Be Fair 2 Rare. Thanks George! Canadian professional cyclist and Garmin – Barracuda team member Ryder Hesjedal. Supports Be Fair 2 Rare. Thanks Ryder! Actress, model, host of Top Chef Canada, and rare disease survivor Lisa Ray. Supports Be Fair 2 Rare. Thanks Lisa! NHL All – Star and Toronto Maple Leafs forward Phil Kessel. Supports Be Fair 2 Rare. Thanks Ry! LA Ga...

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teamsanfilippo.blogspot.com

Team Sanfilippo: February 2011

http://teamsanfilippo.blogspot.com/2011_02_01_archive.html

Sunday, February 27, 2011. The Inequity of Rare Disease Knows No Boundary. That is why on International Rare Disease Day, I want to support the efforts of my good friend Simon Ibell. Please take a moment to check out what Simon is doing and help us spread the message:. HEY CANADA, ON FEB. 28TH, BE FAIR TO RARE. Links to this post. Tuesday, February 22, 2011. The Sad Truth About the US Rare Disease Drug Approval Process. In a clinical study of 96 patients with Hunter syndrome, weekly treatment with ELAPRA...

mastocytosis.ca

Mastocytosis Society Canada: Mastocytosis & Mast Cell Disorders

http://www.mastocytosis.ca/masto.html

In Canada, 1 in 12 people live with a diagnosed. There are approximately 7,000 types of rare disorders documented in Canada. This translates to nearly 3 million Canadians diagnosed with a rare disorder, one of which is Mastocytosis. These numbers do not include countless Canadians suffering without. A diagnosis. To put this in some perspective, our organization is aware of approximately 300 people of all ages in Canada diagnosed with a form of mastocytosis. Mastocytosis is a rare disorder (or disease).

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Be Fair To Rare – Rare Diseases Canada

Be Fair 2 Rare – Rare Disease Advocacy in Canada. Did you know…. Approximately 1 in 12 Canadians suffer from 1 of over 7,000 types of rare diseases? Canada is the only country in the developed world. Without a Federal Healthcare Policy that addresses this segment of the population. What does this mean? It means that for 1 in 12 Canadians……. Pharmaceutical companies have no incentive to develop therapies because individual patient populations are so small. So what is needed?

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