Blakie finally has a diagnosis. After a year and a half of tests and being misdiagnosed with Cerebral Palsy, genetic testing confirms he has a rare syndrome called Potocki-Lupski, or PTLS. There is very little known about this condition. So what now? Where do we go from here? And what will Blake's life be like with PTLS?
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Blake's Journey | blakesjourney.blogspot.com Reviews
https://blakesjourney.blogspot.com
Blakie finally has a diagnosis. After a year and a half of tests and being misdiagnosed with Cerebral Palsy, genetic testing confirms he has a rare syndrome called Potocki-Lupski, or PTLS. There is very little known about this condition. So what now? Where do we go from here? And what will Blake's life be like with PTLS?
blakesjourney.blogspot.com
Blake's Journey: Help me reach my goal!Sponsor Me at March for Babies!
http://blakesjourney.blogspot.com/2011/03/help-me-reach-my-goalsponsor-me-at.html
Thursday, March 10, 2011. Help me reach my goal! Sponsor Me at March for Babies! Subscribe to: Post Comments (Atom). Blakie finally has a diagnosis. After a year and a half of tests and being misdiagnosed with Cerebral Palsy, genetic testing confirms he has a rare syndrome called Potocki-Lupski, or PTLS. There is very little known about this condition. So what now? Where do we go from here? And what will Blake's life be like with PTLS? For information about Potocki-Lupski syndrome. Help me reach my goal!
Blake's Journey: April 2010
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Sunday, April 4, 2010. So Blake's speech has been his biggest challenge lately. Then just when I think it will never come it improves a little. He started saying "cold" the other day; come to find out they had been learning about hot and cold in school and he took what he learned and started using it at home. Then today, today was the biggie. He picked up Alli's bottle, brought it to me and said "here your baba. It came out more like "he ya baba. Hope you had a happy and blessed Easter- I know ours was!
Blake's Journey: September 2010
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Tuesday, September 21, 2010. It finally happened.poo poo on the potty! Way to go Blake! He gets a blow pop for that. Monday, September 20, 2010. Blake had his second heart study last week. It went much better this time. He was such a big boy and was very cooperative, laying so still he almost fell asleep during the echo. The 1st one we had done (when he was 2) was horrible- he screamed the whole time and I had to hold him down for the whole thing. Subscribe to: Posts (Atom). Blakie finally has a diagnosi...
Blake's Journey: August 2010
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Thursday, August 12, 2010. Potty training has been going well. He has peed on the potty pretty much every day now. Still waiting for something a little more exciting to happen in there if you know what I mean. I don't even have to give him a reward most of the time; he is just happy to do the potty dance. I'm sure it will take a while but we are off to a good start. Subscribe to: Posts (Atom). Where do we go from here? And what will Blake's life be like with PTLS? View my complete profile.
Blake's Journey
http://blakesjourney.blogspot.com/2011/01/blake-has-made-such-improvement-over.html
Wednesday, January 26, 2011. Blake has made such improvement over the past few months. He has started putting 3-4 word sentences together, even telling us "have a good day" when we go somewhere. He is constantly talking at home (even though it is still hard to understand a lot of it.) He loves school and riding the bus everyday. He knows many songs from TV shows, radio, etc.he actually seems to have a. LOL, sooo cute! Subscribe to: Post Comments (Atom). Blakie finally has a diagnosis. After a year an...
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Broken Road: 11/2010 - 12/2010
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That which doesn't kill you makes you crazy. Friday, November 26, 2010. An old friend returns (in a big, big way). Although we became friends on FB like 2 years ago and exchanged a couple of messages (you know, the "hi, don't know if you remember me, how you been? So what does all of this MEAN, you may be asking? Oh, and by the way? Subscribe to: Posts (Atom). Stuff that makes me happy. Sh*t My Dad Says. Total Beauty.com (great for product reviews). Bath and Body Works. Friend and family blogs.
Broken Road: 03/2011 - 04/2011
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That which doesn't kill you makes you crazy. Thursday, March 24, 2011. Dan and Jen- What Ever Happened With That? Wow Time kinda got away from me here, huh? Well, as most of you know, here's what has happened in the months since my last post:. Dan and I spent a few days together when I was home for Christmas break.and it was incredible. We realized, very quickly, once I returned to FL that being apart was no longer an option. 20-something years was long enough. And, more recent developments. Blake's Jour...
Broken Road: 07/2010 - 08/2010
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That which doesn't kill you makes you crazy. Saturday, July 31, 2010. Holy crap, I can't believe how long it's been since I last posted. Does anyone besides the usual people even read this thing anymore? Damn Anyway, this'll be short and sweet since I've talked to - well, all of you recently. That would be AWESOME. School is starting up shockingly soon. I spent this past week working on a project for corporate, creating math tests that will be used by all the schools in our company. Go me!
Broken Road: 10/2010 - 11/2010
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That which doesn't kill you makes you crazy. Sunday, October 24, 2010. I have been doing SO bad with Broken Road lately- mostly because all of us talk so regularly on FB. I really need to get back in the habit again. I guess that's about all for now. Check back again soon, though- I PROMISE I'll be updating more regularly now. Subscribe to: Posts (Atom). Stuff that makes me happy. Sh*t My Dad Says. Total Beauty.com (great for product reviews). Bath and Body Works. Friend and family blogs.
Broken Road: 06/2010 - 07/2010
http://jlkrzys.blogspot.com/2010_06_01_archive.html
That which doesn't kill you makes you crazy. Monday, June 28, 2010. Another classic Jen moment. He flipped the box around to get the exact measurements. "Okay, it's 24 x 30," he read off. And I shit you not, but without even stopping to think about it, I immediately replied:. Inches, or feet? And in case you were wondering, I finished the outer part tonight, and it DOES fit on my round table- barely. Sunday, June 27, 2010. Saturday, June 26, 2010. Now, I know what you're all going to say. You're prob...
Broken Road: 08/2010 - 09/2010
http://jlkrzys.blogspot.com/2010_08_01_archive.html
That which doesn't kill you makes you crazy. Tuesday, August 31, 2010. WOW WOW WOW. This is, hands down, the best (behaved) group of kids I've had so far. Yes, it's still early, and there's the danger that we're still in the honeymoon period. But this time, I really don't think so. I really just think this group of kids is awesome. I told him to just wait a few months, LOL.). It doesn't get any better than that. Tuesday, August 24, 2010. Me: "Underground. Number 12 is 'underground.' ". As many of you kno...
Broken Road: 01/2012 - 02/2012
http://jlkrzys.blogspot.com/2012_01_01_archive.html
That which doesn't kill you makes you crazy. Saturday, January 14, 2012. Okay, I'm going to definitely get back into this blog again. Facebook. Is good, but you can really only give 3-line updates. I kind of miss writing, and my blog will be a good outlet for that. Between my first year of teaching 3rd grade (at a new school), my NEW HUSBAND (more on that in a bit), my new stepkids. The online Masters in Reading program I just began through USF. I'll have plenty to talk about. Lighthouse Beach on Sanibel.
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BlakeSixx's blog - One passion crime to take what's mine. - Skyrock.com
One passion crime to take what's mine. 30/12/2011 at 2:50 AM. 28/05/2013 at 6:29 AM. Soundtrack of My Life. The Pretty Reckless - You. Subscribe to my blog! Et j'me fous royalement de vos gueules. Don't forget that insults, racism, etc. are forbidden by Skyrock's 'General Terms of Use' and that you can be identified by your IP address (66.160.134.3) if someone makes a complaint. Please enter the sequence of characters in the field below. Posted on Friday, 30 December 2011 at 3:47 AM. Post to my blog.
Blakesjanitorialsupplies.com
The domain blakesjanitorialsupplies.com may be for sale by its owner. Click here to make an offer. This domain may be for sale. Buy this Domain.
Blake's Japanese Chin
Welcome to the home of Blake's Chin, breeding and showing Japanese Chin since 1990. Blake's Chin began with only a few dogs in 1990 and has since flourished into a small but wonderful breeding program. Our goal is to breed high quality Chin who excel in soundness, personality and breed type. We show our puppies and adults in Conformation and Agility. Many of our Chin are bi-coastal between California and New England. This web site was last updated on January 01, 2010. Designed and Hosted by.
Blake Sjerven
Or browse results titled. 1 & (pageBandParentLabel() pageLabel() , col1: columns() = = 1, col2: columns() = = 2, col3: columns() = = 3 } ". 0 }" Other Linked Artists/Labels. Edit artists. add more artists. Young Heart. Old Soul. Includes unlimited streaming via the free Bandcamp app, plus high-quality download in MP3, FLAC and more. Purchasable with gift card. For All We Know. Its Up to Me. All I Am is Here. Its You and Me. One More Chance to Speak. Nothing Left to Say. Released May 20, 2014. Its Up to Me.
Blake's Journey
Friday, August 16, 2013. Day 62: Not Goodbye. Course: Bethesda, MD to Washington D.C. Conditions: 90% chance of men crying like boys. Today was the day. The end all be all. The big kahuna. Everything came down to this. Every pedal stroke, every heft in our lungs, every drop of sweat, every ache, every pain, every tear - it all came down to this. It's funny because deep down no one even wanted it. The only disability in life is a bad attitude. Day 61: That's a PR. Course: Hagerstown, MD to Bethesda, MD.
Blake's Journey
Wednesday, June 26, 2013. Wow, once again it's been a year since I posted last, lol. I'm STILL super busy with school, but finally done with all the classes needed for my associates RN degree and preparing to enter the nursing program in the fall. I can finally see a light at the end of the tunnel! I guess my biggest news is that Blake is potty trained! The rest is history. Since he has been #2 trained he has had no accidents. (Still in pull ups at night, but who cares? Http:/ photo2.walgreens.co...Wowha...
blakesjourney2010.blogspot.com
Love Without Words
Tuesday, January 11, 2011. Different But Not Less. Different but not less. That is a quote my grandma taught me about autism and it is exactly right. They are different but by no means are the less of anything. In fact to me, they are so much more. They made our time there comfortable and warm. What a great place! It runs mostly off donations. Our government needs to fund more things like this. They are important for our community. Monday, October 25, 2010. One thing he did love though was the pigs!
blakeskate (Blake S.) - DeviantArt
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Home » Blake Skenandore
Education and other interests. Please do not plagiarize.
blakeskenyamission.blogspot.com
Blakes' Kenya Mission
Wednesday, March 16, 2011. Update 3.14.2011. Endings and Beginnings -. This has been a busy and full week! 8221; What will be missed most is the relationship with the wonderful saints we've grown to love in this almost year-and-a-half. They sang and danced (African style) for/with us, and exchanged thoughtful tributes, home-made gifts, and expressions of love. Tears were close to the surface as we bid goodbye. Beautiful, beloved USA! Was about all the time we had before resuming the second leg of our jou...
Nashoba Valley Ski and Snowboard Club - Home
Nashoba Valley Ski and Snowboard Club. Ski Club is cancelled Thursday 2/5/15 - session will be made up 3/5. Blake Middle School will be offering the Nashoba Valley Ski and Snowboard Club during the 2015 winter season. This club is open to all grades. For six consecutive Thursdays, starting in January, students will have the opportunity to take coach buses to Nashoba, participate in ski/ snowboard lessons or ski on their own, and try out the terrain park. Rental equipment is available.
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