mialoudon.blogspot.com

A Special Little Girl

A Special Little Girl. Tuesday, 1 January 2008. Happy New Year Everyone. Well hope everyone is OK and recovering well from their new years celebrations last night. I went to a party with my mummy, daddy and big sister Amy. They were all playing on the Wii. Whilst I was watching. We stayed over at my auntie and uncles so mummy put me to bed at 10pm which is late for me. Mummy brought my projector which was nice so I could chill and feel at home. I was awake at middnight. Happy New Year to all my friends.

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A Special Little Girl | mialoudon.blogspot.com Reviews

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A Special Little Girl. Tuesday, 1 January 2008. Happy New Year Everyone. Well hope everyone is OK and recovering well from their new years celebrations last night. I went to a party with my mummy, daddy and big sister Amy. They were all playing on the Wii. Whilst I was watching. We stayed over at my auntie and uncles so mummy put me to bed at 10pm which is late for me. Mummy brought my projector which was nice so I could chill and feel at home. I was awake at middnight. Happy New Year to all my friends.

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1 skip to main

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3 happy new year

4 will write soon

5 posted by

6 paula&mia

7 1 comment

8 our first post

9 5 a retts

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A Special Little Girl | mialoudon.blogspot.com Reviews

https://mialoudon.blogspot.com

A Special Little Girl. Tuesday, 1 January 2008. Happy New Year Everyone. Well hope everyone is OK and recovering well from their new years celebrations last night. I went to a party with my mummy, daddy and big sister Amy. They were all playing on the Wii. Whilst I was watching. We stayed over at my auntie and uncles so mummy put me to bed at 10pm which is late for me. Mummy brought my projector which was nice so I could chill and feel at home. I was awake at middnight. Happy New Year to all my friends.

INTERNAL PAGES

mialoudon.blogspot.com

1

A Special Little Girl: Happy New Year Everyone

http://www.mialoudon.blogspot.com/2008/01/happy-new-year-everyone.html

A Special Little Girl. Tuesday, 1 January 2008. Happy New Year Everyone. Well hope everyone is OK and recovering well from their new years celebrations last night. I went to a party with my mummy, daddy and big sister Amy. They were all playing on the Wii. Whilst I was watching. We stayed over at my auntie and uncles so mummy put me to bed at 10pm which is late for me. Mummy brought my projector which was nice so I could chill and feel at home. I was awake at middnight. Happy New Year to all my friends.

2

A Special Little Girl: December 2007

http://www.mialoudon.blogspot.com/2007_12_01_archive.html

A Special Little Girl. Saturday, 29 December 2007. Well Hello All,. This is our first ever posting, my mummy is typing this up on my behalf because that's. What mums are for, especially mine and if you are a special little girl or boy like me chances are you too will be blessed with a special someone who cares for you too. Not too sure what we post on these things but will give you a brief rundown, I am a 4 year old little girl with a very very rare genetic disorder called CDKL. Variant). On the 9 th.

3

A Special Little Girl: January 2008

http://www.mialoudon.blogspot.com/2008_01_01_archive.html

A Special Little Girl. Tuesday, 1 January 2008. Happy New Year Everyone. Well hope everyone is OK and recovering well from their new years celebrations last night. I went to a party with my mummy, daddy and big sister Amy. They were all playing on the Wii. Whilst I was watching. We stayed over at my auntie and uncles so mummy put me to bed at 10pm which is late for me. Mummy brought my projector which was nice so I could chill and feel at home. I was awake at middnight. Happy New Year to all my friends.

4

A Special Little Girl: Our First Post

http://www.mialoudon.blogspot.com/2007/12/our-first-post.html

A Special Little Girl. Saturday, 29 December 2007. Well Hello All,. This is our first ever posting, my mummy is typing this up on my behalf because that's. What mums are for, especially mine and if you are a special little girl or boy like me chances are you too will be blessed with a special someone who cares for you too. Not too sure what we post on these things but will give you a brief rundown, I am a 4 year old little girl with a very very rare genetic disorder called CDKL. Variant). On the 9 th.

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jadescdkl5journey.blogspot.com

Jade's journey with CDKL5: May 2008

http://jadescdkl5journey.blogspot.com/2008_05_01_archive.html

Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Wednesday, May 28, 2008. T and Jade being silly! As you can see by the photos, we finally received our waiver to begin building again! That's our news for now...

jadescdkl5journey.blogspot.com

Jade's journey with CDKL5: March 2012

http://jadescdkl5journey.blogspot.com/2012_03_01_archive.html

Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Wednesday, March 21, 2012. Sooooooo.it's been a while :). So, we head back next week for another consult with the epileptologist and a follow-up with her new ...

jadescdkl5journey.blogspot.com

Jade's journey with CDKL5: December 2008

http://jadescdkl5journey.blogspot.com/2008_12_01_archive.html

Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Wednesday, December 31, 2008. Wishing all of you the very best in 2009! Links to this post. Tuesday, December 23, 2008. On top of all of this crap, Jade's run...

jadescdkl5journey.blogspot.com

Jade's journey with CDKL5: January 2009

http://jadescdkl5journey.blogspot.com/2009_01_01_archive.html

Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Friday, January 23, 2009. While we were waiting on the lab results, our alternative to the soy was to feed her baby food (duh! Why didn't I think of that?

jadescdkl5journey.blogspot.com

Jade's journey with CDKL5: May 2009

http://jadescdkl5journey.blogspot.com/2009_05_01_archive.html

Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Tuesday, May 26, 2009. I can't believe it's been since February that I've posted! We have a new game called, "Yay, Jade! Links to this post. Thanks for visiti...

jadescdkl5journey.blogspot.com

Jade's journey with CDKL5: November 2008

http://jadescdkl5journey.blogspot.com/2008_11_01_archive.html

Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Friday, November 28, 2008. What I am thankful for. I suppose another update is long overdue :) First off, let's just say the dog is sucking the life out of me!

jadescdkl5journey.blogspot.com

Jade's journey with CDKL5: September 2008

http://jadescdkl5journey.blogspot.com/2008_09_01_archive.html

Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Tuesday, September 30, 2008. Tomorrow we leave for Ireland! Pray we make it there and back in one piece (pretty morbid, huh? Links to this post. Please look a...

jadescdkl5journey.blogspot.com

Jade's journey with CDKL5: October 2008

http://jadescdkl5journey.blogspot.com/2008_10_01_archive.html

Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Friday, October 31, 2008. Links to this post. Friday, October 24, 2008. Links to this post. Wednesday, October 22, 2008. He's doing well so far! It obviously ...

jadescdkl5journey.blogspot.com

Jade's journey with CDKL5: December 2007

http://jadescdkl5journey.blogspot.com/2007_12_01_archive.html

Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Sunday, December 30, 2007. Thanks to everyone for your posts. I'm glad people are reading the blog (should I be? Our nanny is now getting settled in and the k...

jadescdkl5journey.blogspot.com

Jade's journey with CDKL5: February 2009

http://jadescdkl5journey.blogspot.com/2009_02_01_archive.html

Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Saturday, February 28, 2009. To scream, or not to scream? Obviously, I've wanted to post since my last entry, but time keeps running away from me :). As most ...

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A Special Little Girl

A Special Little Girl. Tuesday, 1 January 2008. Happy New Year Everyone. Well hope everyone is OK and recovering well from their new years celebrations last night. I went to a party with my mummy, daddy and big sister Amy. They were all playing on the Wii. Whilst I was watching. We stayed over at my auntie and uncles so mummy put me to bed at 10pm which is late for me. Mummy brought my projector which was nice so I could chill and feel at home. I was awake at middnight. Happy New Year to all my friends.

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