mialoudon.co.uk

Mia Loudon Appeal - Mia has CDKL5 a variant of Retts Syndrome

This website is dedicated to Mia Loudon, a beatiful little girl that has a genetic mutation known as CDKL5, a variant of Retts Syndrome. By visiting this website you can donate to Mia, join in fundraising activities and read news articles of recent events that Mia has been involved in. You can learn more about Mia's life, the highs and the lows and get a feel for what life is like for the family caring for a child suffering from CDKL5.

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Mia Loudon Appeal - Mia has CDKL5 a variant of Retts Syndrome | mialoudon.co.uk Reviews

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This website is dedicated to Mia Loudon, a beatiful little girl that has a genetic mutation known as CDKL5, a variant of Retts Syndrome. By visiting this website you can donate to Mia, join in fundraising activities and read news articles of recent events that Mia has been involved in. You can learn more about Mia's life, the highs and the lows and get a feel for what life is like for the family caring for a child suffering from CDKL5.

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3 Mia Loudon

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5 Retts

6 Syndrom

7 Retts Syndrome

8 Seizures

9 Reflux

10 Appeal

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Mia Loudon Appeal - Mia has CDKL5 a variant of Retts Syndrome | mialoudon.co.uk Reviews

https://mialoudon.co.uk

This website is dedicated to Mia Loudon, a beatiful little girl that has a genetic mutation known as CDKL5, a variant of Retts Syndrome. By visiting this website you can donate to Mia, join in fundraising activities and read news articles of recent events that Mia has been involved in. You can learn more about Mia's life, the highs and the lows and get a feel for what life is like for the family caring for a child suffering from CDKL5.

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mialoudon.co.uk

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Mia Loudon Appeal - Mia has CDKL5 a variant of Retts Syndrome

http://mialoudon.co.uk/AllArticles.aspx

Mia and her family would like to thank the following. Claire House For Keeping Mummy Sane. Dr Briggs and Nurses @ Warrington Childrens Ward. Nurses on the Neuromedical Ward and HDU Ward @ Alder Hey. Dr Emma McCann and Team For Finding My Diagnosis. Sue Lawtons Team For Always Being There For Us. Foxwood Special School, and all their staff for making Mias time at big school so special. Alder Hey ICU and Warrington Resus and Theatre Team for saving Mia's life in June 13. Mia has Chicken Pox!

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cdkl5.de.tl

cdkl5 - Geschichten anderer Betroffener

http://cdkl5.de.tl/Geschichten-anderer-Betroffener.htm

Auch diese Kinder leiden an einer Mutation im CDKL5 Gen:. Vegard - http:/ vegardslife.blogspot.com/. Asha, Bree and Glyn. Http:/ ourcdkl5journey.blogspot.com/. Http:/ www.myspace.com/ourlittleangel2006. Http:/ leahrosebarnes.blogspot.com/. Http:/ alexisamber.blogspot.com/. Http:/ cdklklc5.blogspot.com/. Http:/ www.freewebs.com/hannahlouisesmith. Http:/ www.jadescdkl5journey.blogspot.com. Http:/ www.izabellabaker.com. Http:/ www.mialoudon.co.uk. Http:/ gunnersstory.blogspot.com/.

mialoudon.blogspot.com

A Special Little Girl: Happy New Year Everyone

http://mialoudon.blogspot.com/2008/01/happy-new-year-everyone.html

A Special Little Girl. Tuesday, 1 January 2008. Happy New Year Everyone. Well hope everyone is OK and recovering well from their new years celebrations last night. I went to a party with my mummy, daddy and big sister Amy. They were all playing on the Wii. Whilst I was watching. We stayed over at my auntie and uncles so mummy put me to bed at 10pm which is late for me. Mummy brought my projector which was nice so I could chill and feel at home. I was awake at middnight. Happy New Year to all my friends.

mialoudon.blogspot.com

A Special Little Girl: December 2007

http://mialoudon.blogspot.com/2007_12_01_archive.html

A Special Little Girl. Saturday, 29 December 2007. Well Hello All,. This is our first ever posting, my mummy is typing this up on my behalf because that's. What mums are for, especially mine and if you are a special little girl or boy like me chances are you too will be blessed with a special someone who cares for you too. Not too sure what we post on these things but will give you a brief rundown, I am a 4 year old little girl with a very very rare genetic disorder called CDKL. Variant). On the 9 th.

mialoudon.blogspot.com

A Special Little Girl: January 2008

http://mialoudon.blogspot.com/2008_01_01_archive.html

A Special Little Girl. Tuesday, 1 January 2008. Happy New Year Everyone. Well hope everyone is OK and recovering well from their new years celebrations last night. I went to a party with my mummy, daddy and big sister Amy. They were all playing on the Wii. Whilst I was watching. We stayed over at my auntie and uncles so mummy put me to bed at 10pm which is late for me. Mummy brought my projector which was nice so I could chill and feel at home. I was awake at middnight. Happy New Year to all my friends.

mialoudon.blogspot.com

A Special Little Girl: Our First Post

http://mialoudon.blogspot.com/2007/12/our-first-post.html

A Special Little Girl. Saturday, 29 December 2007. Well Hello All,. This is our first ever posting, my mummy is typing this up on my behalf because that's. What mums are for, especially mine and if you are a special little girl or boy like me chances are you too will be blessed with a special someone who cares for you too. Not too sure what we post on these things but will give you a brief rundown, I am a 4 year old little girl with a very very rare genetic disorder called CDKL. Variant). On the 9 th.

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A Special Little Girl. Tuesday, 1 January 2008. Happy New Year Everyone. Well hope everyone is OK and recovering well from their new years celebrations last night. I went to a party with my mummy, daddy and big sister Amy. They were all playing on the Wii. Whilst I was watching. We stayed over at my auntie and uncles so mummy put me to bed at 10pm which is late for me. Mummy brought my projector which was nice so I could chill and feel at home. I was awake at middnight. Happy New Year to all my friends.

mialoudon.co.uk

Mia Loudon Appeal - Mia has CDKL5 a variant of Retts Syndrome

Mia and her family would like to thank the following. Claire House For Keeping Mummy Sane. Dr Briggs and Nurses @ Warrington Childrens Ward. Nurses on the Neuromedical Ward and HDU Ward @ Alder Hey. Dr Emma McCann and Team For Finding My Diagnosis. Sue Lawtons Team For Always Being There For Us. Foxwood Special School, and all their staff for making Mias time at big school so special. Alder Hey ICU and Warrington Resus and Theatre Team for saving Mia's life in June 13. Welcome to my website. In May 2014 ...

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