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Cystic Fibrosis Blog | Cystic Fibrosis Treatment | Cystic Fibrosis information | Nomadic Mommy

Cystic Fibrosis Blog about my son Luke

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Cystic Fibrosis Blog | Cystic Fibrosis Treatment | Cystic Fibrosis information | Nomadic Mommy | nomadicmommy.blogspot.com Reviews
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Cystic Fibrosis Blog about my son Luke
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posted by courtnie,10 comments,change of plans,1 comments,wordless wednesday peace,0 comments,just because,5 comments,frustrating clinic,celiacs,diabetes,g tube,3 comments,older posts,luke's legion,about me,courtnie,my blog list,the stanfield journey
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Cystic Fibrosis Blog | Cystic Fibrosis Treatment | Cystic Fibrosis information | Nomadic Mommy | nomadicmommy.blogspot.com Reviews

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Cystic Fibrosis Blog about my son Luke

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Cystic Fibrosis Blog | Cystic Fibrosis Treatment | Cystic Fibrosis information | Nomadic Mommy

http://nomadicmommy.blogspot.com/2010/01/frustrating-clinic.html

Tuesday, January 12, 2010. So this might turn into a mini rant so if you read this whole post I am quite impressed. I was hoping that the same thing would happen at clinic that has happened before. They tell me to keep giving him high cal/protein/ fat foods and scandishakes. They didn't do that. Eileen came in very serious. I hate when people are serious. She is very concerned that Luke has some underlying issue that is going on that she can't put her finger on. I am a control freak. Pure and simple&...

2

Cystic Fibrosis Blog | Cystic Fibrosis Treatment | Cystic Fibrosis information | Nomadic Mommy

http://nomadicmommy.blogspot.com/2010/05/just-trying-to-survive-and-to-change.html

Thursday, May 6, 2010. Just trying to Survive. and to change. Lately I feel like I am just barely keeping my head above water. That is why I have not posted in awhile :(. I am finally caught up on laundry, my house in some semblance of cleanliness, and Luke is on his VEST. It is time to blog. Why do we have a new schedule? I am hoping that over the next few months/years I will build a stronger base of my theological views. I used to think that knowing theology was prideful, that when people spewed of...

3

Cystic Fibrosis Blog | Cystic Fibrosis Treatment | Cystic Fibrosis information | Nomadic Mommy

http://nomadicmommy.blogspot.com/2009_02_01_archive.html

Friday, February 27, 2009. I am super busy trying to get caught up on everything but wanted to let you know that we are home. Wahoo for a short stay :). Tuesday, February 24, 2009. Children's Memorial Hospital. Oh the joy! Luke has had a nasty cough for awhile now and he doesn't seem to be responding to oral anitbiotics. He just go his PICC placed a few hours ago and so now we are waiting for his respitory therapist to show up. Sunday, February 22, 2009. 5 Minutes for Special Needs. I don't really think ...

4

Cystic Fibrosis Blog | Cystic Fibrosis Treatment | Cystic Fibrosis information | Nomadic Mommy

http://nomadicmommy.blogspot.com/2009_03_01_archive.html

Saturday, March 28, 2009. Please read this blog entry. By Baby Stellan's mom MckMama. I feel that it totally epitomizes what I have gone through with Luke in the past. Just take out the SVT talk and put in lung gunkiness talk (yes, I just made that phrase up). Please keep praying for little Stellan. I know that his family will appreciate it. Read and please try to understand how hard this is on the whole family right now. Wednesday, March 25, 2009. Wednesday, March 18, 2009. Wordless Wednesday- Park Time!

5

Cystic Fibrosis Blog | Cystic Fibrosis Treatment | Cystic Fibrosis information | Nomadic Mommy

http://nomadicmommy.blogspot.com/2010/05/putting-one-foot-in-front-of-other.html

Thursday, May 20, 2010. Putting One foot in Front of the Other. When Luke is in the hospital and then the preceding week and a half or so after he is discharged I never feel quite in control of life. It's rather irritating but I have learned that I can just float along as the waves crash. Sometimes it's rough, like today, but I have learned that in my weakness, physically and spiritually, I can make it when I call on Christ for strength. This comment has been removed by the author. How are you guys doing?

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izzysworld-smith.blogspot.com izzysworld-smith.blogspot.com

Izzy's World: Returning to Work Full Time

http://izzysworld-smith.blogspot.com/2010/06/returning-to-work-full-time.html

Sunday, June 27, 2010. Returning to Work Full Time. Izzy is a fish. LOL. Not literally but she loves the water. There isn't a day since May that she hasn't asked to go swimming either in her little pool or in the big community pool. We also had her pictures taken again with Captures in Time. They are great and I will post a few here next weekend. Subscribe to: Post Comments (Atom). Run, Sickboy, Run - Cystic Fibrosis and Exercise. Not so bright and shiny. My CF Pregnancy Journey. Our Life with the Punkin.

izzysworld-smith.blogspot.com izzysworld-smith.blogspot.com

Izzy's World: November 2008

http://izzysworld-smith.blogspot.com/2008_11_01_archive.html

Monday, November 24, 2008. All inclusive) of everything I'm thankful for because I really do have SO much to be thankful for this year. For my beautiful baby girl born safely 03/15/2008. For not being in the hospital right now for any of my friends or family. For clear throat cultures for Izzy. For good sounding lungs and weight gained for Izzy. For developmental milestones for Izzy. For a beautiful home. For a loving and honest husband. For a stable, good career. For a wonderful caregiver for my daughter.

izzysworld-smith.blogspot.com izzysworld-smith.blogspot.com

Izzy's World: July 2008

http://izzysworld-smith.blogspot.com/2008_07_01_archive.html

Thursday, July 31, 2008. Izzy Plays with Nimmi. Izzy is really becoming quite an entertaining little person. Gone are the days when she just laid there on your lap staring intently into your eyes. Now she is constantly busy. We call her our Izzy Busy Bee. Just listen to her giggle. She got a little scared at the end but she was loving Nimmi barking at her for a good 15 minutes. Friday, July 18, 2008. Ignore my singing. Izzy loves to sing with other people! Thursday, July 17, 2008. Monday, July 14, 2008.

izzysworld-smith.blogspot.com izzysworld-smith.blogspot.com

Izzy's World: May 2010

http://izzysworld-smith.blogspot.com/2010_05_01_archive.html

Thursday, May 13, 2010. Izzy has been doing so well with her sentences that strangers are starting to comment on it. I guess it doesn't help that she is so tiny. Everyone thinks she is still 1 and then she pops out with a full sentence like, "Mommy, can I please have a smoothie? I seriously thought the girl's eyes at the smoothie shop would pop out of her head. She was surprised to say the least. Monday, May 3, 2010. Great Strides 2010 Pictures. Sunday, May 2, 2010. But feel free to give more! In attenda...

izzysworld-smith.blogspot.com izzysworld-smith.blogspot.com

Izzy's World: September 2008

http://izzysworld-smith.blogspot.com/2008_09_01_archive.html

Saturday, September 20, 2008. I'm half a year old. Today was my half birthday. It is also my Granna's birthday. I was sad because I really wanted to see Granna today but I the closest I got was wearing one of the outfits she got for me. Aren't I cute in my little red hat? I tried to talk Daddy into taking me to Granna's but he said that he had to go to work. So here I'm at on my way to my Chrissy's on 09/15/2008. The good news is that I get to see Granna next Sunday. Wow, I have a lot of people. It has b...

izzysworld-smith.blogspot.com izzysworld-smith.blogspot.com

Izzy's World: Heading to Halloween Town

http://izzysworld-smith.blogspot.com/2010/10/heading-to-halloween-town.html

Wednesday, October 27, 2010. Heading to Halloween Town. Things have been well super busy as usual at our home. Izzy has continued to have a wet cough for a long time with some retraction. She is going on her 4th week straight with a wet cough. She has only cultured Staph so far and is once again on Augmentin. Subscribe to: Post Comments (Atom). Run, Sickboy, Run - Cystic Fibrosis and Exercise. Not so bright and shiny. My CF Pregnancy Journey. Confessions Of A CF Husband. Our Life with the Punkin.

izzysworld-smith.blogspot.com izzysworld-smith.blogspot.com

Izzy's World: October 2008

http://izzysworld-smith.blogspot.com/2008_10_01_archive.html

Tuesday, October 28, 2008. Is it a bird? Is it a plane? In her halloween snail costume! Check out these fall colors! Church just wears her out! Well, just wanted to drop in for a quick hello and post some pictures! We are out of here! Tuesday, October 21, 2008. Getting So Big, Izzy sets up now. Here is our little contender. She loves her bath time. I'm not holding her up here and yesterday I left the room while she was laying on the floor and when I came back she was sitting up. Here is Izzy doing her br...

izzysworld-smith.blogspot.com izzysworld-smith.blogspot.com

Izzy's World: Welcome to 2011 (9 months in...)

http://izzysworld-smith.blogspot.com/2011/09/welcome-to-2011-9-months-in.html

Friday, September 9, 2011. Welcome to 2011 (9 months in.). So this year has been amazing! Izzy had another gymnastics birthday party to celebrate her 3rd birthday. Izzy moved up to pre-school. We took a trip to Disney World. Izzy joined Ballet, Roller Skating and Gymnastics full time (gosh, she sounds really athletic but she is as clumsy as Mommy and Daddy.) We skipped Great Strides but Mommy and several friends and co-workers ran in the Brew-to-Brew relay race (about 45 miles! Not so bright and shiny.

izzysworld-smith.blogspot.com izzysworld-smith.blogspot.com

Izzy's World: April 2010

http://izzysworld-smith.blogspot.com/2010_04_01_archive.html

Friday, April 23, 2010. 4 hours and 40 minutes everyday. What would you do with an extra 4 hours and 40 minutes each day? A fight that we are going to lose. A fight I see other families losing everyday. We have a doctor's appointment tomorrow morning at 9 AM. Wish us high oxygen saturation numbers somewhere above 96% would be wonderful! Hold your little ones close and never take your moments together for granted. Wednesday, April 21, 2010. I never knew that I would stress about oxygen. So once again, I'm...

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nomadicmolly.blogspot.com nomadicmolly.blogspot.com

life in chicago and elsewhere

Life in chicago and elsewhere. Sunday, January 30, 2011. I've been signing daily and I'm certainly learning, though there's still room for improvement. The team from Managua is called the Bóer and they have exactly same logo as the Cleveland Indians. If anyone has ideas about the name I'd be very happy to hear them. The only Bóers I know about were Dutch people in South Africa. Anyway, the game was quite an experience. The game was close until the 8th inning when the. Sunday, November 09, 2008. But I don...

nomadicmom-scrumptiousfoods.blogspot.com nomadicmom-scrumptiousfoods.blogspot.com

Nomadic Mom's Scrumptious Foods

Nomadic Mom's Scrumptious Foods. Thursday, September 13, 2007. 500 g Plain Flour. 1 Cup Water (room temp). 300 g Minced Pork. 300 g Minced Prawns. 500 g Chinese Cabbage (chopped, squeeze with some salt, strain). 1 Cup Kucai (cut finely). 1/2 Cup Chopped Spring Onion. 2 Tsp Chopped Ginger. 3 Tbsp Sesame Oil. 1 Tbsp Soy Sauce. 2 Tbsp Rice Wine. 1 Tsp Corn Flour. Salt and Pepper to Taste. 1 Part Soy Sauce. 1 Part Black Vinegar. Mix dough ingredients and knead well. Let it rest for 30 minute. Add in the beef...

nomadicmom.blogspot.com nomadicmom.blogspot.com

Nomadic Mom

Moving with Kids and Pets. Moving and Relocation Books and Guides. Everything Moving and Relocation. Blog Update: no regrets so far. Sipping coffee this morning and thought I should update. It's been two weeks (? Now since we decided Mr. Husband will continue to commute for now and we will not relocate to the new city. As soon as we made the decision that day, we both felt great about it but the real 'proof is in the pudding'. How have we felt since? Most overpriced cities in America. Due to a lack of su...

nomadicmoment.com nomadicmoment.com

nomadicmoment.com

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Nomadic Momma

Monday, October 27, 2008. Nathan's first trip to Burt's Pumpkin Farm! We had a BLAST and got the perfect pumpkin. We are going to carve it this week for Halloween! Monday, September 29, 2008. Fun to be one! Wednesday, September 24, 2008. Well, my baby is a year old! I can't believe it.I have so many emotions today. Happiness, sadness, love.I could go on and on. He has grown sooooo much and it breaks my heart! I'm planning on writing him a letter today and putting it in his baby book. Monday, July 14, 2008.

nomadicmommy.blogspot.com nomadicmommy.blogspot.com

Cystic Fibrosis Blog | Cystic Fibrosis Treatment | Cystic Fibrosis information | Nomadic Mommy

Thursday, May 20, 2010. Putting One foot in Front of the Other. When Luke is in the hospital and then the preceding week and a half or so after he is discharged I never feel quite in control of life. It's rather irritating but I have learned that I can just float along as the waves crash. Sometimes it's rough, like today, but I have learned that in my weakness, physically and spiritually, I can make it when I call on Christ for strength. Saturday, May 15, 2010. Tonight he is spending the night with Daddy...

nomadicmongolia.com nomadicmongolia.com

Country Voyage LLC

Enroll now for our Naadam tour. 28 June, 20 July. BLUE PEARL KHUVSGUL LAKE. ADVENTURE OF WILD WEST MONGOLIA. 20 June, 29June. Crystal House Business Center, Sukhbaatar District 2nd khoroo, Ulaanbaatar , Mongolia.

nomadicmonkey.com nomadicmonkey.com

中村静雄の外反母趾改善プログラム 外反母趾治療に手術はいらない!

中村静雄の 中村式 外反母趾改善プログラム 外反母趾治療に手術はいらない 外反母趾の誤解を解き、一人で、かんたんに改善する方法.

nomadicmonologue.blogspot.com nomadicmonologue.blogspot.com

NOMADIC MONOLOGUE

My thoughts uncensored, straight from my heart, the way my mind plays with them. Wednesday, September 10, 2014. Re-blogging [Going around the Sun and the sunny connections! The original post is here. This is a special year and the day this post goes online, I celebrate my 40th birthday. I have so much going on as I reach this milestone of a year. It makes me quite humble at the thought of rounding the Sun forty times already :-). Well, you get the scene, right? Lots of metta from the birthday girl :-).

nomadicmontreal.ndlibraries.com nomadicmontreal.ndlibraries.com

Pop-Up Displays & Best-Selling Portable Displays and Booths

Our Best Selling Displays. Price: Low to High. Price: High to Low. Date: New to Old. Date: Old to New. Results 1 - 12 of 61. 20' Inspire 2.0 Curved Downlit Canopy. 20' Inspire 2.0 Flat Downlit Canopy Display. 10' Inspire 2.0 Downlit Canopy Booth. 10' Inspire 2.0 Flat Downlit Canopy. 10' Inspire 2.0 Curved Downlit Canopy. 40 Platinum BackLit Counter w/ Flush Top. 40 Platinum EdgeLit Exhibit Counter. 40 Platinum Display Case Counter. 40 Platinum BackLit Display Counter. 40 Platinum HaloLit Exhibit Counter.

nomadicmoods.blogspot.com nomadicmoods.blogspot.com

Nomadic Moods

Georgia si Armenia în aromă de tarhon 2014 - Partea I - Tbilisi. O excursie în două ţări despre care nu ştiam mare lucru, în care socoteala de acasă nu s-a potrivit cu cea din teren, rezultând experienţe foarte faine, cu oameni amabili şi primitori şi peisaje care te lăsau cu gura căscată.  . Tbilisi e un oraş interesant, în care vechiul şi noul, sărăcia şi extravaganţa se combină plăcut, iar deschiderea spre occident îşi face simţită prezenţa din ce în ce mai mult. . Tura Tarcău - Lacu Roşu. Scoția....