pnhfoundation.org pnhfoundation.org

pnhfoundation.org

The PNH Research and Support Foundation - www.pnh.aamds.org

The PNH Research and Support Foundation is dedicated to funding research to find a cure and new treatments for paroxysmal nocturnal hemoglobinuria (PNH) and to helping PNH patients in need with limited funding for disease-related expenses not covered by in

http://www.pnhfoundation.org/

WEBSITE DETAILS
SEO
PAGES
SIMILAR SITES

TRAFFIC RANK FOR PNHFOUNDATION.ORG

TODAY'S RATING

#641,210

TRAFFIC RANK - AVERAGE PER MONTH

BEST MONTH

December

AVERAGE PER DAY Of THE WEEK

HIGHEST TRAFFIC ON

Sunday

TRAFFIC BY CITY

CUSTOMER REVIEWS

Average Rating: 3.6 out of 5 with 8 reviews
5 star
1
4 star
5
3 star
1
2 star
0
1 star
1

Hey there! Start your review of pnhfoundation.org

AVERAGE USER RATING

Write a Review

WEBSITE PREVIEW

Desktop Preview Tablet Preview Mobile Preview

LOAD TIME

0.2 seconds

FAVICON PREVIEW

  • pnhfoundation.org

    16x16

  • pnhfoundation.org

    32x32

  • pnhfoundation.org

    64x64

  • pnhfoundation.org

    128x128

  • pnhfoundation.org

    160x160

  • pnhfoundation.org

    192x192

  • pnhfoundation.org

    256x256

CONTACTS AT PNHFOUNDATION.ORG

Contact Privacy Inc. Customer 018119980

Contact Privacy Inc. Customer 018119980

96 M●●●● Ave

To●●to , ON, M6K3M1

CA

1.41●●●●5457
pn●●●●●●●●●●●●●●●@contactprivacy.com

View this contact

Contact Privacy Inc. Customer 018119980

Contact Privacy Inc. Customer 018119980

96 M●●●● Ave

To●●to , ON, M6K3M1

CA

1.41●●●●5457
pn●●●●●●●●●●●●●●●@contactprivacy.com

View this contact

Contact Privacy Inc. Customer 018119980

Contact Privacy Inc. Customer 018119980

96 M●●●● Ave

To●●to , ON, M6K3M1

CA

1.41●●●●5457
pn●●●●●●●●●●●●●●●@contactprivacy.com

View this contact

Login

TO VIEW CONTACTS

Remove Contacts

FOR PRIVACY ISSUES

DOMAIN REGISTRATION INFORMATION

REGISTERED
n/a
UPDATED
2014 March 01
EXPIRATION
EXPIRED REGISTER THIS DOMAIN

BUY YOUR DOMAIN

Network Solutions®

NAME SERVERS

1
yns1.yahoo.com
2
yns2.yahoo.com

REGISTRAR

Tucows Inc. (R11-LROR)

Tucows Inc. (R11-LROR)

WHOIS : whois.publicinterestregistry.net

REFERRED :

CONTENT

SCORE

6.2

PAGE TITLE
The PNH Research and Support Foundation - www.pnh.aamds.org | pnhfoundation.org Reviews
<META>
DESCRIPTION
The PNH Research and Support Foundation is dedicated to funding research to find a cure and new treatments for paroxysmal nocturnal hemoglobinuria (PNH) and to helping PNH patients in need with limited funding for disease-related expenses not covered by in
<META>
KEYWORDS
1 Nonprofit
2 including social services
3 The PNH Research and Support Foundation
4 www.pnh.aamds.org
5 P.O. Box 10983
6 Rockville
7 MD
8
9 coupons
10 reviews
CONTENT
Page content here
KEYWORDS ON
PAGE
rockville,united states,info,pnhfound,ation,wwwpnh aamds org
SERVER
ATS/7.1.0
CONTENT-TYPE
utf-8
GOOGLE PREVIEW

The PNH Research and Support Foundation - www.pnh.aamds.org | pnhfoundation.org Reviews

https://pnhfoundation.org

The PNH Research and Support Foundation is dedicated to funding research to find a cure and new treatments for paroxysmal nocturnal hemoglobinuria (PNH) and to helping PNH patients in need with limited funding for disease-related expenses not covered by in

INTERNAL PAGES

pnhfoundation.org pnhfoundation.org
1

The PNH Research and Support Foundation - www.pnh.aamds.org

http://www.pnhfoundation.org/home

The PNH Research and Support Foundation. The PNH Research and Support Foundation. The PNH Research and Support Foundation is dedicated to funding research to find a cure and new treatments for paroxysmal nocturnal hemoglobinuria (PNH) and to helping. PNH patients in need with limited funding for disease-related expenses not covered by insurance. Please visit our new website at WWW.PNH.AAMDS.ORG. Visit our new website at:. VISIT OUR NEW WEBSITE www.pnh.aamds.org. The PNH Research and Support Foundation.

UPGRADE TO PREMIUM TO VIEW 0 MORE

TOTAL PAGES IN THIS WEBSITE

1

LINKS TO THIS WEBSITE

nefrohema.cz nefrohema.cz

Sdružení pacientů se vzácnými nefrologickými a hematologickými onemocněními :: MÉDIA

http://www.nefrohema.cz/media

Sdružení pacientů se vzácnými. Nefrologickými a hematologickými onemocněními. Pořad ČT Medicína pro 21. století o onemocnění aHUS www.ceskatelevize.cz/ivysilani/10175805663-medicina-pro-21-stoleti/212563231050007-atypicky-hemoliticko-uremicky-syndrom/titulky. Zpráva idnes.cz o problematice vzácných onemocnění, mimo jiné aHUS http:/ zpravy.idnes.cz/jak-platit-za-leky-na-vzacne-nemoci-dtp-/domaci.aspx? C=A130509 174702 domaci hv. Mezinárodní web věnovaný onemocnění PNH (česky) www.pnhsource.eu. Zpráva o lé...

chetsjourney.blogspot.com chetsjourney.blogspot.com

Chet's Journey: November 2008

http://chetsjourney.blogspot.com/2008_11_01_archive.html

Friday, November 21, 2008. Subscribe to: Posts (Atom). View my complete profile. Chet loves to get comments and messages, but kids, please be safe in posting. Only use your first name when you leave him comments, and make sure it is okay with your parents first. St Jude Children's Research Hospital. Chet's Aplastic Anemia Story. Simple theme. Powered by Blogger.

chetsjourney.blogspot.com chetsjourney.blogspot.com

Chet's Journey: July 2008

http://chetsjourney.blogspot.com/2008_07_01_archive.html

Thursday, July 24, 2008. You might need a tissue for this. Here is the story behind the song. ETA. this is anAustralian band called Hillsong. :0). Wednesday, July 23, 2008. No major updates, just some random thoughts. So here is my specific prayer list regarding Chet at the moment:. That he remain stable and not experience anymore close calls or pain. That he not develop anymore of the serious conditions this progressive disease will eventually cause if he doesn't have a successful BMT. I haven't written...

chetsjourney.blogspot.com chetsjourney.blogspot.com

Chet's Journey: December 2009

http://chetsjourney.blogspot.com/2009_12_01_archive.html

Wednesday, December 2, 2009. Chet has been having frequent headaches. We mentioned this to his doctor at his last count check a few weeks ago. (I didn't have a chance to post about that one yet.) She was worried that he might be developing some blood clots in his brain, which is a progressive complication of the PNH. She scheduled him to come back for an MRI, so we headed back down there on Sunday. He did have to wear the same lovely gown as the actor on the TV. We still don't have the results back, but ...

pnhcommunity.org pnhcommunity.org

PNH Resources

http://www.pnhcommunity.org/resources

Next PNH Community Event. Speak with a registered nurse to get free disease education, coverage support, and access to the PNH Buddy program. Contact a nurse now. Having a rare condition can sometimes make you feel alone. However, many organizations exist to provide you with the support you need and can connect you to others who share your experience. Here are some organizations that offer information, advice, and support. National Organization for Rare Disorders (NORD). National Institutes of Health.

hemoterapi.com hemoterapi.com

HEMOTERAPİ

http://www.hemoterapi.com/TR,26/bilgi-sayfalari.html

Prof Dr. Muhit Özcan. Prof Dr. Önder Arslan. Bize Sorun Cevapları Öğrenin. 2 Lösemi Lenfoma Miyelom Hastaları Kongresi. Türk Hematoloji Derneği Halk Sağlığı. PNH Research and Support Foundation. Trombosit Hastalıkları ve ITP için. Platenet Disorder Support Association. National Children’s Leukemia Foundation. Bilgi Bankası Genel Bilgiler. Hematopoetik Kök Hücre Nakli. Bize Sorun Cevapları Öğrenin.

chetsjourney.blogspot.com chetsjourney.blogspot.com

Chet's Journey: Low Counts

http://chetsjourney.blogspot.com/2008/11/low-counts.html

Friday, November 21, 2008. Subscribe to: Post Comments (Atom). View my complete profile. Chet loves to get comments and messages, but kids, please be safe in posting. Only use your first name when you leave him comments, and make sure it is okay with your parents first. St Jude Children's Research Hospital. Chet's Aplastic Anemia Story. Simple theme. Powered by Blogger.

chetsjourney.blogspot.com chetsjourney.blogspot.com

Chet's Journey: Report from the 26th

http://chetsjourney.blogspot.com/2008/10/report-from-26th.html

Monday, October 6, 2008. Report from the 26th. I haven't had a chance to update from our last visit, so thank you for being patient! We checked in on Friday morning, and went through the regular routine of blood draws, measurements, and making sure his head wasn't too big. Then he put on the shirt and asked me to take his picture in it. I thought that was sweet of him. Beth's birthday was the 26th while we were there, so she laid claim to his balloons. I can't bring myself to pray that he gets cured very...

chetsjourney.blogspot.com chetsjourney.blogspot.com

Chet's Journey: October 2008

http://chetsjourney.blogspot.com/2008_10_01_archive.html

Monday, October 6, 2008. Report from the 26th. I haven't had a chance to update from our last visit, so thank you for being patient! We checked in on Friday morning, and went through the regular routine of blood draws, measurements, and making sure his head wasn't too big. Then he put on the shirt and asked me to take his picture in it. I thought that was sweet of him. Beth's birthday was the 26th while we were there, so she laid claim to his balloons. I can't bring myself to pray that he gets cured very...

UPGRADE TO PREMIUM TO VIEW 24 MORE

TOTAL LINKS TO THIS WEBSITE

33

SOCIAL ENGAGEMENT



OTHER SITES

pnhf.com pnhf.com

pnhf.com - This domain may be for sale!

Find the best information and most relevant links on all topics related to pnhf.com. This domain may be for sale!

pnhfan.com pnhfan.com

敏感肌の人はファンデーション選びも慎重に

自分自身の体質を知っておくことで肌トラブルを引き起こさないための肌ケ… 続きを読む →. 特に敏感肌の人はこのようなダメージに気をつけなければ肌質を悪くしてしまい、肌再生を促せなくなってしまいます… 続きを読む →. ファンデーションは成分が豊富に含まれており、刺激が強いものは敏感肌の人にとって大敵なもの… 続きを読む →.

pnhfastighet.com pnhfastighet.com

PNH Fastighetsservice

Har en god erfarenhet inom fastighetsbranchen. Vi prioriterar en nära relation och regelbunden kontakt med våra kunder. Ser till att jobbet blir som kunden önskat sig. Vårt företag sammarbeter gärna med andra företag som gynnar er beställning och har en regelbunden kontakt med andra kring branchen.

pnhfishing.com pnhfishing.com

PLAY-N-HOOKY FISHING CHARTERS, LLC

PLAY-N-HOOKY FISHING CHARTERS, LLC. GUIDE SERVICE FOR VICTOR BRAUNIG and CALAVERAS LAKES. A website created by GoDaddy’s Website Builder.

pnhforyou.com pnhforyou.com

PnhForYou.com - Bienvenue

Sunday, 15 April 2018. Jeunes, Difficiles, etc. DVD, Selles, . DVD (Success, Patterns,.). Cadres, Familles, Enfants. Voici quelques informations pour vous guider. Présentations, détails de nos activités, nos buts. Parelli. c'est beaucoup plus que de l'équitation. Dernières nouvelles de chez nous! Une manière facile et pratique de garder contact et d'être au courant des dernières aventures de Carmen! La clef du succès à long terme avec les chevaux! Un soutient en continu! Si vous avez des questions,.

pnhfoundation.org pnhfoundation.org

The PNH Research and Support Foundation - www.pnh.aamds.org

The PNH Research and Support Foundation. The PNH Research and Support Foundation. The PNH Research and Support Foundation is dedicated to funding research to find a cure and new treatments for paroxysmal nocturnal hemoglobinuria (PNH) and to helping. PNH patients in need with limited funding for disease-related expenses not covered by insurance. Please visit our new website at WWW.PNH.AAMDS.ORG. Visit our new website at:. VISIT OUR NEW WEBSITE www.pnh.aamds.org. The PNH Research and Support Foundation.

pnhfprtg.blog.cz pnhfprtg.blog.cz

reitravin1977

Přihlásit se ». Registrovat se ». GALERIE: Robinsonův ostrov - 1. díl. Detox jater po svátcích: Začněte hned! Jak správně zalichotit svému miláčkovi. E Cigarette Cartridges Cloud. 31 května 2012 v 10:26. E Cigarette Cartridges Cloud. More shows the kits give you carry case plus. Updated information regarding the composition of ingredients. E-cig site is real user electronic cigarettes services. Oregon E Cigarette Ban. 31 května 2012 v 10:26. 13-6-2009 i went with a wooden can. E Cigarette Scottsdale.

pnhg.com pnhg.com

The domain name PNHG.COM.

The domain name PNHG.COM is for sale. Get On The Web Limited some years ago registered for its websites, portals and client projects a number of generic domain names (including this one), which are now no longer required. We are offering for sale the domain name PNHG.COM. If you are interested in the 4-letter acronym PNHG and would like to purchase the domain name PNHG.COM please complete this offer form. Why choose a 4-letter acronym like PNHG for your business?

pnhg8.pjekd.cn pnhg8.pjekd.cn

m g 娱 乐 送 彩 金|亚洲之王!|m g 娱 乐 送 彩 金

2017m g 娱 乐 送 彩 金来了. 寻找m g 娱 乐 送 彩 金,奖品超13万. M g 娱 乐 送 彩 金 火热报名中. 福利 m g 娱 乐 送 彩 金,点亮全网通. 这个m g 娱 乐 送 彩 金. M g 娱 乐 送 彩 金,报名从速. 免费畅玩m g 娱 乐 送 彩 金活动又来了. M g 娱 乐 送 彩 金,开始报名. M g 娱 乐 送 彩 金大赛火热报名中. 重申 美国第一 原则 [详细]. 你m g 娱 乐 送 彩 金还值多少钱 免费上门检测. M g 娱 乐 送 彩 金秋冬换季. M g 娱 乐 送 彩 金4个月. 巴黎m g 娱 乐 送 彩 金周. X5f00; 户 送 彩 金 的 网 站 大 全. X0070;t娱乐平台送彩金. X6fb3;门娱乐注册送体验金. X0070;t注册送彩金37元体验金. X0032;017澳门永利注册送彩金游戏. X65b0;葡京现金. X7533; 请 送 彩 金. X5728;线麻将. X7687;冠娱乐都怎么诈骗. X5f69;票网站送彩金. 互动m g 娱 乐 送 彩 金. M g 娱 乐 送 彩 金娱乐生活.

pnhglogis.com pnhglogis.com

티티호스팅

pnhgroup.co.kr pnhgroup.co.kr

pnhgroup-home

PNH News and Notice.