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The Big Deal - Living With Rett: July 2014
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The Big Deal - Living With Rett. Sunday, July 27, 2014. Special Day, Regular Girl. In particular, as has already been noted. This year, she picked everything. Her birthday dinner. The party location. And every choice was clear. Finally, we had our family dinner and celebration. She got to open presents from us, which for once, felt like the right gifts for her age, for her interests, and for her ability to enjoy them. We gave her Frozen. Saturday, July 12, 2014. The Wonders of Eye-Gaze.
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The Big Deal - Living With Rett: The Giving Up and the Giving In
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The Big Deal - Living With Rett. Saturday, July 11, 2015. The Giving Up and the Giving In. The fact that it was Angelman's struck a special chord with me. It's a condition very similar to Rett Syndrome. Years ago, before Zoe's diagnosis, Steph's mom had gotten an email from her sister with information about Angelman's. The context was, essentially, could this be what's wrong with Zoe? July 15, 2016 at 5:46 AM. I love your gene band aids! It is about how epigenetics might improve your family’s life&...
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The Big Deal - Living With Rett: August 2014
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The Big Deal - Living With Rett. Friday, August 15, 2014. Math Rules Everything Around Me. It all started simply enough. It was summer, and somewhere in our house, a child was bored. Normally I try not to get involved in matters like that, but the child in question was sitting at the kitchen table with me, and she was really bringing me down. How many clothespins were in the jar? Subscribe to: Posts (Atom). What is The Big Deal? The Big Deal" is an essay about the Prask family's experiences with Rett Syn...
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The Big Deal - Living With Rett: Loud and Clear
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The Big Deal - Living With Rett. Thursday, January 22, 2015. Zoe is vocally interacting with Steph in a way we don't really see anymore. Three years have gone by since the video was taken, and when I say we don't see this anymore, it's not me lamenting something we lost. Zoe now has many. Subscribe to: Post Comments (Atom). What is The Big Deal? The Big Deal Kindle Single. Like The Big Deal on Facebook. Follow The Big Deal on Twitter. Rett Syndrome Research Trust. View my complete profile.
thebigdealwithrett.blogspot.com
The Big Deal - Living With Rett: June 2014
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The Big Deal - Living With Rett. Friday, June 27, 2014. A Story for Sisters. Of course you've heard of Frozen. Everyone has heard of Frozen. As this great article. Subscribe to: Posts (Atom). What is The Big Deal? The Big Deal Kindle Single. Like The Big Deal on Facebook. Follow The Big Deal on Twitter. Rett Syndrome Research Trust. A Story for Sisters. View my complete profile. Ethereal template. Powered by Blogger.
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The Big Deal - Living With Rett: Who Asked You, Anyway?
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The Big Deal - Living With Rett. Friday, March 13, 2015. Who Asked You, Anyway? Dylan has been fascinated by Zoe's Tobii device for a while now. Subscribe to: Post Comments (Atom). What is The Big Deal? The Big Deal Kindle Single. Like The Big Deal on Facebook. Follow The Big Deal on Twitter. Rett Syndrome Research Trust. Who Asked You, Anyway? If You All Want To Adapt, Im Not Going to Stop Yo. View my complete profile. Ethereal template. Powered by Blogger.
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The Big Deal - Living With Rett: Math Rules Everything Around Me
http://thebigdealwithrett.blogspot.com/2014/08/math-rules-everything-around-me.html
The Big Deal - Living With Rett. Friday, August 15, 2014. Math Rules Everything Around Me. It all started simply enough. It was summer, and somewhere in our house, a child was bored. Normally I try not to get involved in matters like that, but the child in question was sitting at the kitchen table with me, and she was really bringing me down. How many clothespins were in the jar? Subscribe to: Post Comments (Atom). What is The Big Deal? The Big Deal" is an essay about the Prask family's experiences with ...
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Donate | Rett Syndrome Association of Illinois
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Rett Syndrome Association of Illinois. What is Rett Syndrome? Tax deductible contributions can be made to the Rett Syndrome Associate of Illinois by check or credit card. Checks can be made out to the Rett Syndrome Association of Ilinois and mailed to:. Rett Syndrome Association of Illinois. Woodridge, IL 60517. For credit card donations click here. To donate through signmeup.com. Thank you for Caring and Sharing. October 30 @ 2:30pm. The Arboretum of South Barrington. 100 West Higgins Rd.
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Home | Rett Syndrome Association of Illinois
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Rett Syndrome Association of Illinois. What is Rett Syndrome? October 30 @ 2:30pm. The Arboretum of South Barrington. 100 West Higgins Rd. South Barrington. IL 60010. 2016 Run For Rett.
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The Big Deal - Living With Rett: October 2014
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The Big Deal - Living With Rett. Friday, October 31, 2014. It's In Her Code. It reminded me of the Ron Suskind piece. Tiana and her friends singing about what's going to happen when they're human again in The Princess and the Frog. But I don't know if she's identified with those characters to the same degree as the one who seems to be her new favorite. This year, our house has been gripped in the oversize, destructive mitts of Wreck-It Ralph. Subscribe to: Posts (Atom). What is The Big Deal?