littlemisskeni.blogspot.com
"Little Miss": Jingle Bells
http://littlemisskeni.blogspot.com/2013/12/jingle-bells_18.html
Kennedy Grace Kulas was born 6/8/11 @ 10:10 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! Denstined for Greatness; But pacing myself". Wednesday, December 18, 2013. Sorry everyone I had to make a new post because I had some privacy setting issues. This first video is Joselain singing Jingle Bells! Now here is Kennedy attempts at signing Jingle Bells! They are to cute!
marsolan.blogspot.com
Ronan Reflections: July 2013
http://marsolan.blogspot.com/2013_07_01_archive.html
Our little boy arrived in August 2011. Soon after his birth, we found out he had a congenital heart defect along with several other issues. He was later diagnosed with CHARGE Syndrome. We are navigating the world of syndromes, genetics, heart defects, and hearing loss. all the while watching our little boy amaze everyone. Wednesday, July 24, 2013. And, away we go! These friends will have to say goodbye for a few days. What parent has to do that? At 6 weeks and 23 months. I remember the turning point for ...
littlemisskeni.blogspot.com
"Little Miss": The best day ever pictures
http://littlemisskeni.blogspot.com/2013/11/the-best-day-ever-pictures.html
Kennedy Grace Kulas was born 6/8/11 @ 10:10 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! Denstined for Greatness; But pacing myself". Tuesday, November 19, 2013. The best day ever pictures. Subscribe to: Post Comments (Atom). View my complete profile. Drake's 8th b-day and baptism. Reuben Jack and Callum Andreas. When do expectations become unrealistic?
sevenngibbons.blogspot.com
Live. Laugh. Love.: March 2011
http://sevenngibbons.blogspot.com/2011_03_01_archive.html
Live Laugh. Love. I was however still able to run an 8K last weekend. I have set a goal to run at least one race per month until the half marathon in August. Next up is the Shamrock Shuffle on April 10th! Finley working with one of our favorite therapists Debi. We love her! Nate (in his undies of course) helping out during Finley's OT session. Debi working her magic with Finley. And so we wait with baited breath for spring to actually, well.SPRING! Thursday, March 24, 2011. An update on something that I ...
sevenngibbons.blogspot.com
Live. Laugh. Love.: October 2010
http://sevenngibbons.blogspot.com/2010_10_01_archive.html
Live Laugh. Love. Just like riding a bike. You are damn right I sat in traffic for nearly two hours - and now I am very happy I did! Suffice it to say, being at the hospital is like riding a bike and its never really good to use that analogy about being at a hospital is it? Thursday, October 28, 2010. Last week we visited the pumpkin patch and much to our surprise, Nate was very much in to having his picture taken! He's very hot and cold with the camera these days but it seemed like even when I didn't ha...
littlemisskeni.blogspot.com
"Little Miss": My loves
http://littlemisskeni.blogspot.com/2013/12/my-loves.html
Kennedy Grace Kulas was born 6/8/11 @ 10:10 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! Denstined for Greatness; But pacing myself". Tuesday, December 31, 2013. Subscribe to: Post Comments (Atom). View my complete profile. Drake's 8th b-day and baptism. Reuben Jack and Callum Andreas. Robin Hood and the Wolf - Los Angeles Family Photographer. You start with a tube.
catherinelaceyphotography.com
Portfolio - catherinephotography
http://www.catherinelaceyphotography.com/Portfolio2
Charities, Schools and Non Profits. St Monica's Catholic Church.
carlsonkiddos.blogspot.com
A Day in the life of 4 kids and a Dog.: Tara's heart
http://carlsonkiddos.blogspot.com/2013/11/taras-heart.html
A Day in the life of 4 kids and a Dog. Wednesday, November 6, 2013. Its a big fancy word that means virus that attacks the heart. Her left ventricle took the hit. This myocarditis left her with something called " Dilated Cardiomyopothy. The one that shut down ALL of her organs? WILL HER HEART GET BETTER? HOW MUCH ARE YOU NEEDING TO LIMIT HER RIGHT NOW? Yes This is not as easily answered though. We have complete confidence in her cardiologist ( Brian Fagan. IS SHE A CANDIDATE FOR A TRANSPLANT? Jim and I f...
carlsonkiddos.blogspot.com
A Day in the life of 4 kids and a Dog.: December 2013
http://carlsonkiddos.blogspot.com/2013_12_01_archive.html
A Day in the life of 4 kids and a Dog. Friday, December 13, 2013. Cardiology the Latest and Greatest. Well, maybe not the greatest, but some good news. Tara's ejection fraction went up 9%. Her short Infarction (which her doc is most concerned with) did not, but there is defiantly some marginal improvement which is good. Now that is the hard part, the part that I have a hard time explaining. Her function got better right? Subscribe to: Posts (Atom). Why we do what we do! Http:/ www.carepages.com/. Reuben ...
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