Sie suchen Informationen zu der sehr seltenen Erkrankung Shwachman-Diamond-Syndrom? Schön, dass Sie uns gefunden haben! Wenn Sie möchten, können Sie sich auch gern telefonisch oder per E-Mail direkt bei mir melden, ich freue mich, wenn ich Ihnen mit meinen eigenen Erfahrungen in irgendeiner Form weiterhelfen kann! E-Mail: jane.weyer@web.de. Telefon: 05132 / 589581.
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Unbenanntes Dokument | shwachman.de Reviews
https://shwachman.de
Sie suchen Informationen zu der sehr seltenen Erkrankung Shwachman-Diamond-Syndrom? Schön, dass Sie uns gefunden haben! Wenn Sie möchten, können Sie sich auch gern telefonisch oder per E-Mail direkt bei mir melden, ich freue mich, wenn ich Ihnen mit meinen eigenen Erfahrungen in irgendeiner Form weiterhelfen kann! E-Mail: jane.weyer@web.de. Telefon: 05132 / 589581.
chromosome 7
http://www.46xy.info//7.html
If you have a phenotypic. Variation, or information. That is related to this. Chromosome send me a link. To your site, for posting. Email @ 46xy.info. Niemann-Pick like protein and ezetimibe. Are There Social Behavior Genes? MYH16 MYOSIN, HEAVY CHAIN 16 OMIM. Protein Difference Between Humans and Primates. G PROTEIN-COUPLED RECEPTOR and ASTHMA SUSCEPTIBILITY.
Helpful Links | Shwachman-Diamond Syndrome Registry
http://sdsregistry.org/helpful-links
Promoting science and discovery. You make it possible. What is the SDS Registry (SDSR)? Participating in the SDS Registry. Butterfly Guild of Seattle Children’s Hospital. Shwachman-Diamond Syndrome Project Ltd. National Cancer Institute Inherited Bone Marrow Failure Syndromes. The Severe Chronic Neutropenia International Registry. Educational Resources Specific to SDS. GeneReviews National Institutes of Health. National Library of Medicine. National Organization of Rare Diseases (NORD).
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上海湾泉自动化设备有限公司
Home
Shwachman-Diamond UK (SDS UK). Support Group - (Applying for Charity status). Welcome to the UK Support group for Shwachman-Diamond Syndrome. This is a new group that takes over the good work of an earlier recently disbanded group. This website is in the process of being developed. It may take many months to complete but the current site offers contact points and some medical information on the condition. Please email us if you have any questions about SDS. Join our mailing list here.
Shwachman-Diamond Syndrome Foundation
Symptoms & Features. NCI IBMFS Cohort Study. Fundraising Ideas and Tips. News & Events. What is Shwachman-Diamond Syndrome? Shwachman Diamond Syndrome Foundation. Advocate for and find research towards improved treatment and a cure. Raise awareness of SDS in the medical community and general public. Provide educational and emotional support to patients and their families. Link families through the Internet and family conferences. Disseminate current medical information. Tough Mudder Run a Success.
Shwachman-Diamond Syndrome
A Shwachman-Diamond Syndrome Information Blog. Saturday, November 9, 2013. This is a video I put together from pictures and videos from my boys' bone marrow biopsy day- it's got some fun stuff, but has graphic bone marrow biopsy pics at the end. As of 2013, each of my boys has had over 25 BMBs each. Make a video - it's fun, easy and free! Labels: bone marrow biopsy. Bone Marrow Donor Drive. Here is a video I made of the bone marrow donor drive we had for our son:. Make a video - it's fun, easy and free!
Unbenanntes Dokument
Sie suchen Informationen zu der sehr seltenen Erkrankung Shwachman-Diamond-Syndrom? Schön, dass Sie uns gefunden haben! Wenn Sie möchten, können Sie sich auch gern telefonisch oder per E-Mail direkt bei mir melden, ich freue mich, wenn ich Ihnen mit meinen eigenen Erfahrungen in irgendeiner Form weiterhelfen kann! E-Mail: jane.weyer@web.de. Telefon: 05132 / 589581.
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Benvenuti!
Convegno Intern. APRILE 2016. Da San Donato Milanese. I notiziari AISS Informa. 8 TH INTERNATIONAL CONGRESS SDS. La Home di AISS. Domanda per Socio Ordinario. SdS and Type 1 Diabetes. Ciao a tutti coloro che arriveranno su questo sito! Evidentemente se siete arrivati fin qui è perchè conoscete, in prima persona o perchè avete un figlio, un parente, un amico o un semplice conoscente che è affetto da questa patologia:. La Sindrome di Shwachman - Diamond. Un piccolo gesto per coltivare una grande speranza,.
Stichting Shwachman Syndroom Support
Zeldzaam maar niet alleen! Dit is de website van de Nederlandse patiëntenbelangenorganisatie. Van het Shwachman Diamond Syndroom! Shwachman Diamond Syndroom, wat is dat? Door Shwachman syndroom Support Holland ontwikkeld internationaal model:. Klik hier voor het verslag. Een kind met een zeldzame ziekte in de dagelijkse praktijk: niet zo ongewoon. May 28, 2015. Digitale raadpleging Zorg naar gemeente. Apr 14, 2015. Meedoen is een mensenrecht. Jan 26, 2015. Lees hier onze documenten.
Shwachman - Diamond Syndrome
LTI001270708
