train.fastercures.org
Organization Profiles - T R A I N Central Station
http://train.fastercures.org/about/profiles
What is venture philanthropy? Research and Development System. Venture Philanthropy in the News. This first-of-its-kind inventory was designed to help potential collaborators better understand the landscape of nonprofit disease research foundations and engage in meaningful partnerships with them. Using a set of common metrics, it highlights key details about each organization's research portfolio, collaboration efforts, and financials. Last updated in June 2014, it profiles the 60 organizations in. Allia...
apbdtribe.com
19 | April | 2014 | APBD Tribe
https://apbdtribe.com/2014/04/19
Living with Adult Polyglucosan Body Disease. Our Next Chat Session. Daily Archives: April 19, 2014. April 19, 2014. Welcome to the APBD Tribe! The APBD Tribe website augments our monthly phone chats. Check out the date and time for our next telephone meet-up! Please join the conversation. Lastly, and very importantly, for information about the APBD Research Foundation, please click here. Welcome to the Tribe! Answering The Question: “How Can I Help? July 3, 2014. Help Others Get A Faster Diagnosis.
apbdtribe.com
03 | July | 2014 | APBD Tribe
https://apbdtribe.com/2014/07/03
Living with Adult Polyglucosan Body Disease. Our Next Chat Session. Daily Archives: July 3, 2014. July 3, 2014. Answering The Question: “How Can I Help? When we tell family and friends about our APBD diagnosis, many times the first reaction is, “Tell me what I can do to help.”. For a refresher on what this excellent program is all about. Subject: The E. Family and its fight against Adult Polyglucosan Body Disease (APBD). One more thing: Would you take the time and pass this information on to your family ...
apbdtribe.com
APBD Tribe | Living with Adult Polyglucosan Body Disease | Page 2
https://apbdtribe.com/page/2
Living with Adult Polyglucosan Body Disease. Our Next Chat Session. April 21, 2014. Sharing Info on Dealing With Bladder Issues. Tribe member Ariel is generously sharing information with the rest of us on how she is successfully addressing bladder issues. Here’s what she has to say:. I wanted to share with folks how I am handling the bladder issues. Feel free to share as much of this as you see appropriate. 1 I self catheterize when I feel an urge to urinate (NEVER on my own). (Coloplast ,. April 21, 2014.
apbdtribe.com
Public Outreach | APBD Tribe
https://apbdtribe.com/category/public-outreach
Living with Adult Polyglucosan Body Disease. Our Next Chat Session. Category Archives: Public Outreach. July 3, 2014. Answering The Question: “How Can I Help? When we tell family and friends about our APBD diagnosis, many times the first reaction is, “Tell me what I can do to help.”. For a refresher on what this excellent program is all about. Subject: The E. Family and its fight against Adult Polyglucosan Body Disease (APBD). One more thing: Would you take the time and pass this information on to your f...
apbdtribe.com
Link | Format | APBD Tribe
https://apbdtribe.com/type/link
Living with Adult Polyglucosan Body Disease. Our Next Chat Session. July 3, 2014. Help Others Get A Faster Diagnosis. Let’s help get the word out so more cases of APBD can be identified sooner rather than later. Did you know that the APBD Research Foundation. Has two new pamphlets that describe the disease? Some of our Tribe members have already begun delivering them to physicians, JCCs, kosher restaurants, rabbis, cantors and lay leaders in synagogues. If you want to get involved (and we hope you do!
apbdtribe.com
Uncategorized | APBD Tribe
https://apbdtribe.com/category/uncategorized
Living with Adult Polyglucosan Body Disease. Our Next Chat Session. April 19, 2014. Welcome to the APBD Tribe! The APBD Tribe website augments our monthly phone chats. Check out the date and time for our next telephone meet-up! Please join the conversation. Lastly, and very importantly, for information about the APBD Research Foundation, please click here. Welcome to the Tribe! Answering The Question: “How Can I Help? July 3, 2014. Help Others Get A Faster Diagnosis. July 3, 2014. Speaking of APBD….
smithfamilyclinic.org
For Patients - Smith Family Clinic
https://smithfamilyclinic.org/become-a-clinic-patient
Support for the Clinic Mission. HudsonAlpha Clinical Services Lab. Step-by-step Guide for Patients. Notice of Privacy Practices. Help for undiagnosed disease in Huntsville, Alabama and around the world. Why might I or a family member want to be a patient at the The Smith Family Clinic for Genomic Medicine. On the campus of HudsonAlpha Institute for Biotechnology. How does an individual get accepted as a patient at The Smith Family Clinic for Genomic Medicine. Or emailing info@smithfamilyclinic.org. If yo...
agsd.org.uk
AGSD | Type IV (Andersen Disease)
http://www.agsd.org.uk/GSDTypes/TypeIVAndersen/tabid/1136/Default.aspx
Type I - Von Gierke. Type II - Pompe. Type III - Cori. Type IV - Andersen. Type V - McArdle. Type VI - Hers. Type VII - Tarui. Links to GSD sites. 160; Types of. 160; Glycogen. 160; Storage. 160; Disease. 160; . 160; books and. 160; leaflets here. 160; Site map. 160; Search. 160; Contact us. 160; Privacy policy. 160; Legal disclaimer. The AGSD-UK 2015 conference was a great success:. What a fantastic thing you do - thank you so much, from all of us! Article on GSD Type IV.
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