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APBD Tribe | Living with Adult Polyglucosan Body Disease

Living with Adult Polyglucosan Body Disease (by Harriet)

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APBD Tribe | Living with Adult Polyglucosan Body Disease | apbdtribe.com Reviews
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Living with Adult Polyglucosan Body Disease (by Harriet)
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APBD Tribe | Living with Adult Polyglucosan Body Disease | apbdtribe.com Reviews

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Living with Adult Polyglucosan Body Disease (by Harriet)

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19 | April | 2014 | APBD Tribe

http://apbdtribe.com/2014/04/19

Living with Adult Polyglucosan Body Disease. Our Next Chat Session. Daily Archives: April 19, 2014. April 19, 2014. Welcome to the APBD Tribe! The APBD Tribe website augments our monthly phone chats. Check out the date and time for our next telephone meet-up! Please join the conversation. Lastly, and very importantly, for information about the APBD Research Foundation, please click here. Welcome to the Tribe! Answering The Question: “How Can I Help? July 3, 2014. Help Others Get A Faster Diagnosis.

2

Quote | Format | APBD Tribe

http://apbdtribe.com/type/quote

Living with Adult Polyglucosan Body Disease. Our Next Chat Session. July 3, 2014. Answering The Question: “How Can I Help? When we tell family and friends about our APBD diagnosis, many times the first reaction is, “Tell me what I can do to help.”. One great answer is to encourage people to participate in Amazon Smile. We recently posted about how it is both easy and free to support the APBD Research Foundation every time you make a purchase through Amazon. Please read that post. Thanks to Laura and Davi...

3

Harriet | APBD Tribe

http://apbdtribe.com/author/harrietsaxe

Living with Adult Polyglucosan Body Disease. Our Next Chat Session. July 3, 2014. Answering The Question: “How Can I Help? When we tell family and friends about our APBD diagnosis, many times the first reaction is, “Tell me what I can do to help.”. One great answer is to encourage people to participate in Amazon Smile. We recently posted about how it is both easy and free to support the APBD Research Foundation every time you make a purchase through Amazon. Please read that post. Thanks to Laura and Davi...

4

Bladder Issues | APBD Tribe

http://apbdtribe.com/category/bladder-issues

Living with Adult Polyglucosan Body Disease. Our Next Chat Session. Category Archives: Bladder Issues. April 21, 2014. Sharing Info on Dealing With Bladder Issues. Tribe member Ariel is generously sharing information with the rest of us on how she is successfully addressing bladder issues. Here’s what she has to say:. I wanted to share with folks how I am handling the bladder issues. Feel free to share as much of this as you see appropriate. I welcome any inquiries from the APBD tribe. July 3, 2014.

5

Link | Format | APBD Tribe

http://apbdtribe.com/type/link

Living with Adult Polyglucosan Body Disease. Our Next Chat Session. July 3, 2014. Help Others Get A Faster Diagnosis. Let’s help get the word out so more cases of APBD can be identified sooner rather than later. Did you know that the APBD Research Foundation. Has two new pamphlets that describe the disease? Some of our Tribe members have already begun delivering them to physicians, JCCs, kosher restaurants, rabbis, cantors and lay leaders in synagogues. If you want to get involved (and we hope you do!

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Patient Corner | Adult Polyglucosan Body Disease Research Foundation (APBDRF)

http://apbdrf.org/living-with-apbd/patient-corner

Volunteer – get involved. In this section you will find personal accounts of people affected by APBD. The APBDRF as a patient support group does not. Endorse any health practitioners, therapies, medicines, etc. While researchers chip away at finding the cause and cure for APBD, patients, partners, and care givers seek work-arounds for disease symptoms. “Tribe” members are constantly on the lookout for tips and ideas to help blunt their challenges. Visit apbdtribe.com. To see what we have to share. 2710 A...

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APBD Tribe | Living with Adult Polyglucosan Body Disease

Living with Adult Polyglucosan Body Disease. Our Next Chat Session. April 19, 2014. Welcome to the APBD Tribe! The APBD Tribe website augments our monthly phone chats. Check out the date and time for our next telephone meet-up! Please join the conversation. Lastly, and very importantly, for information about the APBD Research Foundation, please click here. Welcome to the Tribe! July 3, 2014. Answering The Question: “How Can I Help? For a refresher on what this excellent program is all about. Subject: The...

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