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The CF Trust Blog

Tuesday, 16 February 2016. Wind, wind and more wind. Last week in Oxford, the Cystic Fibrosis Trust brought together. GI) health experts from across Europe to look at the digestive complications that many people experience with cystic fibrosis. Along with the scientists and clinical staff, people with CF and their carers were represented. Below one of those parents, David Turner QC, gives us and insight on the research 'sandpit'. Her idea was brilliantly simple:. Add a dash of inspiration. The aim of the...

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Tuesday, 16 February 2016. Wind, wind and more wind. Last week in Oxford, the Cystic Fibrosis Trust brought together. GI) health experts from across Europe to look at the digestive complications that many people experience with cystic fibrosis. Along with the scientists and clinical staff, people with CF and their carers were represented. Below one of those parents, David Turner QC, gives us and insight on the research 'sandpit'. Her idea was brilliantly simple:. Add a dash of inspiration. The aim of the...
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The CF Trust Blog | cftrust.blogspot.com Reviews

https://cftrust.blogspot.com

Tuesday, 16 February 2016. Wind, wind and more wind. Last week in Oxford, the Cystic Fibrosis Trust brought together. GI) health experts from across Europe to look at the digestive complications that many people experience with cystic fibrosis. Along with the scientists and clinical staff, people with CF and their carers were represented. Below one of those parents, David Turner QC, gives us and insight on the research 'sandpit'. Her idea was brilliantly simple:. Add a dash of inspiration. The aim of the...

INTERNAL PAGES

cftrust.blogspot.com cftrust.blogspot.com
1

The CF Trust Blog: Taking on the Atlantic

http://cftrust.blogspot.com/2015/04/taking-on-atlantic.html

Saturday, 11 April 2015. Taking on the Atlantic. Later today teams from the universities of Oxford and Cambridge will do battle in the annual Boat Race, televised around the world. But away from the cameras, two groups of friends have been training hard for an even bigger challenge – the Talisker Whisky Atlantic Challenge. The All Beans No Monkeys team stepped up our training to a new level over the Easter weekend, rowing our boat from Christchurch over to Cowes on the Isle of Wight. The weekend row crea...

2

The CF Trust Blog: September 2014

http://cftrust.blogspot.com/2014_09_01_archive.html

Tuesday, 30 September 2014. Cystic Fibrosis Trust research sandpit on adolesence. Jessica Jones, Policy Adviser at the Cystic Fibrosis Trust, reports back from a 48-hour residential research 'sandpit' devoted to the subject of adolescence. Research sandpits are a key part of the Trust's research strategy. And bring together experts from within and outside cystic fibrosis to stimulate new thinking and innovation. Challenges facing the participants included why treatment adherence drops off at adolescence ...

3

The CF Trust Blog: October 2014

http://cftrust.blogspot.com/2014_10_01_archive.html

Tuesday, 14 October 2014. From Atlanta to the Summit. Last week saw the annual North American Cystic Fibrosis Conference. Take place in Atlanta, USA. The world's largest gathering on cystic fibrosis saw clinicians, researchers and carers came from all over to discuss the latest developments and progress towards beating cystic fibrosis for good. The Trust sent over four delegates, and Ed Owen, the Trust's Chief Executive, offers his thoughts on the outcomes from the three-day event. The development of Kal...

4

The CF Trust Blog: December 2014

http://cftrust.blogspot.com/2014_12_01_archive.html

Wednesday, 31 December 2014. Looking Back, Moving Forward. Ed Owen, Chief Executive of the Cystic Fibrosis Trust, looks back on our 50th anniversary and the successes of those 50 years, and how the Trust will build on them as we enter 2015 and beyond. But 2014 has enabled us both to mark the contribution of all our supporters and, most importantly, to redouble our effort to beat this cruel condition for good. The decision of HRH The Prince of Wales to take on the Patronage of the Trust. Yet with so many ...

5

The CF Trust Blog: Why We Provide Financial Support

http://cftrust.blogspot.com/2015/04/why-we-provide-financial-support.html

Friday, 17 April 2015. Why We Provide Financial Support. Trust Chief Executive Ed Owen talks about why the Trust offers grants to help those with cysticfibrosis most in need. I am sometimes asked by supporters why the Trust chooses to provide financial grants to people with cystic fibrosis and their families when this diverts money from vital research and care. We also do not provide support for clinical equipment such as fast nebulisers. These should be provided by the NHS and the Trust must never b...

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caloriesandcreon.blogspot.com caloriesandcreon.blogspot.com

Calories and Creon: November 2012

http://caloriesandcreon.blogspot.com/2012_11_01_archive.html

Thursday, 8 November 2012. Guest Blog - Smart Snacking :). Everyone with CF knows the relationship with food is very much a love/hate thing so here is a guest blog from the lovely Laura. With a little guide on how to pack in the high calorie snack when not really feeling the love! I think we all have those moments when we don't want to eat anything, but know we should. Too full, too sick, too fed up. Me? Crispy bacon (300 cals a pack). Coke (142 cals per 330ml can). Sainsbury's peanuts, raisins and choco...

jo-liveyourlife.blogspot.com jo-liveyourlife.blogspot.com

Live Your Life: March 2015

http://jo-liveyourlife.blogspot.com/2015_03_01_archive.html

Living my life with Cystic Fibrosis. Me and My CF. Donor Cards- Have You Got Yours Yet? Monday, 9 March 2015. So, the problem is is that whenever I know my Brompton appointment is in a few days I get stressed out. Usually the day before the appointment is when Alex, my family and even the dog notice it. This stressed out state will continue throughout the whole day of the appointment and calm down a day or 2 after it. So that's about 3 days of stress for just one appointment. Crazy! There's something I n...

jo-liveyourlife.blogspot.com jo-liveyourlife.blogspot.com

Live Your Life: Changes

http://jo-liveyourlife.blogspot.com/2015/03/changes.html

Living my life with Cystic Fibrosis. Me and My CF. Donor Cards- Have You Got Yours Yet? Monday, 9 March 2015. So, the problem is is that whenever I know my Brompton appointment is in a few days I get stressed out. Usually the day before the appointment is when Alex, my family and even the dog notice it. This stressed out state will continue throughout the whole day of the appointment and calm down a day or 2 after it. So that's about 3 days of stress for just one appointment. Crazy! There's something I n...

jo-liveyourlife.blogspot.com jo-liveyourlife.blogspot.com

Live Your Life: April 2015

http://jo-liveyourlife.blogspot.com/2015_04_01_archive.html

Living my life with Cystic Fibrosis. Me and My CF. Donor Cards- Have You Got Yours Yet? Monday, 27 April 2015. First official Frimley appointment. Friday I had my first official appointment under Frimley Park hospital's care. I know it's not fair to compare the two hospitals because Frimley has such a small unit compared to the Brompton, but it was hard not to! Great parking, no queue times, people who had time for me, it was a welcome change :). I'm sure most people with CF would say the same thing.

meandmylife-boxergirl1978.blogspot.com meandmylife-boxergirl1978.blogspot.com

looking to the future and our hopes: a late update from me :0(

http://meandmylife-boxergirl1978.blogspot.com/2009/12/late-update-from-me-0.html

Looking to the future and our hopes. Tuesday, 2 February 2010. A late update from me :0(. How bad do i feel for not keeping things up to date,now i have remember my sign in details and am not to busy i might be able to get back to where i should be. Well since i last wrote anything a few things have gone on,back in december we saw our fertility. Here is a photo of me and tosh on the harbour in paphos.right off now,i will update once thursday have been and what will be happening. I am 31 year old,i live w...

meandmylife-boxergirl1978.blogspot.com meandmylife-boxergirl1978.blogspot.com

looking to the future and our hopes: March 2008

http://meandmylife-boxergirl1978.blogspot.com/2008_03_01_archive.html

Looking to the future and our hopes. Friday, 28 March 2008. A very damp and cold day. In june for the second time i am doing the race for life in memory of a great uncle and a grandad one who i never got to meet they both died from this cruel disease and at the present time my dad is fighting prostate cancer but thanks to the care he is getting in cyprus he is still here today,please help me by looking at my sponser page,here is the link: http:/ www.raceforlifesponsorme.org/ingalongman. The CF Trust Blog.

meandmylife-boxergirl1978.blogspot.com meandmylife-boxergirl1978.blogspot.com

looking to the future and our hopes: looking forward to the future

http://meandmylife-boxergirl1978.blogspot.com/2009/07/looking-forward-to-future.html

Looking to the future and our hopes. Sunday, 26 July 2009. Looking forward to the future. This is me and tosh on southend beach,after our walk we went and got some cockles and some crayfish tails and they where so scrummy,its ok when you buy them from shops but to me its not the same as having them fresh. Right i am off as have just had a big coughing fit followed by ventolin neb which gives me the shakes and i am getting hungry too feed me now xoxoxo. Subscribe to: Post Comments (Atom). The CF Trust Blog.

jo-liveyourlife.blogspot.com jo-liveyourlife.blogspot.com

Live Your Life: Donor Cards- Have You Got Yours Yet?

http://jo-liveyourlife.blogspot.com/p/donor-cards-have-you-got-yours-yet.html

Living my life with Cystic Fibrosis. Me and My CF. Donor Cards- Have You Got Yours Yet? Donor Cards- Have You Got Yours Yet? Having a donor card means that you are on the donor register and when you die, you give permission for up to 7 people in need to use part of your body. For example your heart, lungs, kidneys or body tissue. This 30 second application could save a life when you pass on. Http:/ www.uktransplant.org.uk/ukt/how to become a donor/how to become a donor.jsp. My sister's boyfriend Matt.

caloriesandcreon.blogspot.com caloriesandcreon.blogspot.com

Calories and Creon: Posh fish finger butties with mushy peas and potato wedges

http://caloriesandcreon.blogspot.com/2013/01/posh-fish-finger-butties-with-mushy.html

Thursday, 17 January 2013. Posh fish finger butties with mushy peas and potato wedges. To make fish finger butties:. Preheat the oven to 200C/180C Fan/Gas 6. Break 100g of ciabatta (preferably tow days old) into bits and put into a processor with the grated zest of 1/2 an unwaxed lemon, 1/2tsp smoked paprika, a good pinch of cayenne pepper and a pinch of salt. Whizz into fine crumbs. Put in a shallow dish. Cook for 15-20 minutes until crisp and golden brown. To make mushy peas:. To make the potato wedges:.

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The CF Trust Blog

Tuesday, 16 February 2016. Wind, wind and more wind. Last week in Oxford, the Cystic Fibrosis Trust brought together. GI) health experts from across Europe to look at the digestive complications that many people experience with cystic fibrosis. Along with the scientists and clinical staff, people with CF and their carers were represented. Below one of those parents, David Turner QC, gives us and insight on the research 'sandpit'. Her idea was brilliantly simple:. Add a dash of inspiration. The aim of the...

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