meetclaire.clairescrusade.org
Meet Claire | Meet Claire
https://meetclaire.clairescrusade.org/author/meetclaire
Skip to primary content. Skip to secondary content. Author Archives: Meet Claire. When I was Five…. April 8, 2016. When I was five, I:. Joined my first baseball team. We were green. I played all positions. Went racing on my first ever go-cart ride. Got my ears pierced! Fell asleep on a raft in Lake Erie. Several times. It was so peaceful. Went shopping at Justice clothing store for the first time ever. I’ve officially graduated out of the T club. (5T and below, no more! I went bowling a few times. I saw ...
meetclaire.clairescrusade.org
Thank You! | Meet Claire
https://meetclaire.clairescrusade.org/2014/03/17/blessed
Skip to primary content. March 17, 2014. My very first notes on Rett. Were taken the next morning after having had received the news of Claire’s confirmed diagnosis. My sister graciously took all three kids for a few hours, so Sean and I could go to the library to talk in a quiet study room and research. What is Rett? What in the world do we do now? My mom. 🙂. The amount of prayers, love, support, encouragement, and advice/ help that we’ve received over the almost three years of this journey, from...
meetclaire.clairescrusade.org
July | 2015 | Meet Claire
https://meetclaire.clairescrusade.org/2015/07
Skip to primary content. Skip to secondary content. Monthly Archives: July 2015. Basic Overview Of Rett. July 19, 2015. We were recently asked to put together something that not only helps explain briefly. What Rett Syndrome is (see video below), but also shares from Claire’s perspective what it is like for her to live with Rett. What is making her sad or mad? What is she so excited about or what story does she want to share with you? Breaking the silence of Rett Syndrome. When I was Five….
meetclaire.clairescrusade.org
May | 2014 | Meet Claire
https://meetclaire.clairescrusade.org/2014/05
Skip to primary content. Skip to secondary content. Monthly Archives: May 2014. It’s Race Week! A Recap From the Original Start Line. May 16, 2014. It’s about that time again Cleveland Marathon weekend! Crossing that finish line was especially emotional. It must have been physically obvious I was losing steam in the last mile or so. Colleen jumped in to finish that last mile with me Col, I still owe you one for that. It was awesome. It sure did for me. Thank you, Lauren, for all that you’ve done to...
meetclaire.clairescrusade.org
January | 2014 | Meet Claire
https://meetclaire.clairescrusade.org/2014/01
Skip to primary content. Skip to secondary content. Monthly Archives: January 2014. January 31, 2014. 2014 has started off with some really cold temperatures around here, that’s for sure! Sick at home. Bucket, sheets and towels galore. Claire’s being a trooper! Last weekend at the hospital. Again, she’s quite the trooper! What activities can we do so that she can practice “driving” her wheelchair? How can we practice the vocabulary she’s working on in school, at home? Or possibly go sled riding? After gi...
meetclaire.clairescrusade.org
March | 2014 | Meet Claire
https://meetclaire.clairescrusade.org/2014/03
Skip to primary content. Skip to secondary content. Monthly Archives: March 2014. My very first notes on Rett. Were taken the next morning after having had received the news of Claire’s confirmed diagnosis. My sister graciously took all three kids for a few hours, so Sean and I could go to the library to talk in a quiet study room and research. What is Rett? What in the world do we do now? My mom. 🙂. The amount of prayers, love, support, encouragement, and advice/ help that we’ve received over the...
meetclaire.clairescrusade.org
It’s Race Week! A Recap From the Original Start Line | Meet Claire
https://meetclaire.clairescrusade.org/2014/05/16/its-race-week-a-recap-from-the-original-starter-of-the-start-line
Skip to primary content. It’s Race Week! A Recap From the Original Start Line. May 16, 2014. It’s about that time again Cleveland Marathon weekend! Crossing that finish line was especially emotional. It must have been physically obvious I was losing steam in the last mile or so. Colleen jumped in to finish that last mile with me Col, I still owe you one for that. It was awesome. We had one of the largest showings for charities involved with the marathon how awesome is that! It sure did for me. Thank you,...
meetclaire.clairescrusade.org
Aside | Format | Meet Claire
https://meetclaire.clairescrusade.org/type/aside
Skip to primary content. Skip to secondary content. Happy 4th Birthday, Princess Claire! Today we are celebrating another milestone for Claire she turned 4 years old! Wow happy, happy, happy birthday, Peanut! How are you, Charlie? Thanks for coming, Bri! Among other comments like Whooo hooo! And This is fun! Claire’s been feeling better, thank goodness! After going through recent tests, we know that Claire is not aspirating when she is eating. (yea! It is so hard to believe that my baby is FOUR today!
meetclaire.clairescrusade.org
A Year of Updates | Meet Claire
https://meetclaire.clairescrusade.org/2015/06/22/a-year-of-updates
Skip to primary content. A Year of Updates. June 22, 2015. It’s been a year since I wrote in Claire’s blog. This post is lengthy, so if you are still interested in reading about her updates, you may want to grab a cup of coffee or your favorite beverage! Stretching Claire’s legs with her knee immobilizers. And although it’s not perfect because sometimes she still has a hard time accessing the button, it helps bring a little more peace to our minds. The bubble tube helps Claire reorganize her senses.
meetclaire.clairescrusade.org
Happy 4th Birthday, “Princess” Claire! | Meet Claire
https://meetclaire.clairescrusade.org/2014/04/09/happy-4th-birthday-princess-claire
Skip to primary content. Happy 4th Birthday, Princess Claire! April 9, 2014. Today we are celebrating another milestone for Claire she turned 4 years old! Wow happy, happy, happy birthday, Peanut! How are you, Charlie? Thanks for coming, Bri! Among other comments like Whooo hooo! And This is fun! Claire’s been feeling better, thank goodness! After going through recent tests, we know that Claire is not aspirating when she is eating. (yea! It is so hard to believe that my baby is FOUR today! Finally, in PT...
SOCIAL ENGAGEMENT