hypotonicworld.blogspot.com
Sunshine in a Hypotonic World: What is Rett Syndrome?
http://hypotonicworld.blogspot.com/p/rett-syndrome-abridged-version.html
Sunshine in a Hypotonic World. Living in the world of Rett Syndrome, celebrating all the little victories, taking life one day at a time and trying to keep a sense of humor about it all. What is Rett Syndrome? What is Rett Syndrome? I'm glad you asked! There is a lot I could tell you about Rett Syndrome ( honestly, there is a whole lot more that I am still learning. And I'm going to share with you some of the most important facts about Rett Syndrome:. Here's what Rett Syndrome means to me:. It means bein...
girlpower2cure.org
Volunteer for Girl Power 2 Cure | Help Us Cure Rett Syndrome
http://www.girlpower2cure.org/how-to-help/volunteer.aspx
What is Rett Syndrome? Your POWER can do amazing things! Divas' Day Out hosted by Mamamelia.com. Saturday, September 17th, 10am-4pm (different shifts available). Amelia Island, FL 32034. Sign up online to volunteer through SignUp.com. Or contact Jen Tucker: jen@gp2c.org - 904.277.2628. Stay tuned for more event details at: www.mamamelia.com/divas-day-out. Current Ongoing Volunteer Opportunities:. Email us if you want to help! Current need: February, March, April, May 2017. Meet all of our girls here!
girlpower2cure.org
Girl Power 2 Cure - Rett Syndrome Family Support
http://www.girlpower2cure.org/what-we-do/family-support.aspx
What is Rett Syndrome? Great stuff for rett families! RettGirl.org is the EVERYTHING RETT SITE created as a resource for Rett Syndrome families. We hope everything on this site helps your RettGirl fight a stronger fight against Rett Syndrome. Check out the product reviews, tips from other families, doctor and therapist listings, and even our own little Rett-"bay" where you can find/sell/donate used items. It is also a place for you to submit your own ideas and products! See a sample card and order YOURS].
girlpower2cure.blogspot.com
Girl Power 2 Cure: September 2013
http://girlpower2cure.blogspot.com/2013_09_01_archive.html
Monday, September 30, 2013. 31 Tweets for Rett Syndrome. Get your Twitter accounts tweeting this month for Rett Syndrome Awareness Month! If you don't have an account, get one. Even if it's just for the month. Here are 31 Tweets for Rett - one for each day of the month. What do the symbols mean? Means that you are adding that term to the search feature so everyone can pull up that phrase and see what has been posted. Means you are directing it to someone's twitter wall. October is not just for #breastcan...
girlpower2cure.org
The Purple Card - Rett Syndrome Awareness
http://www.girlpower2cure.org/how-to-help/thepurplecard.aspx
What is Rett Syndrome? You'll never know the power of the purple card until you try! It is a great way to share your Rett Syndrome story anywhere! Imagine, you won't have to explain all about it in front of your daughter ever again! TRUE STORY: (see more PURPLE CARD stories below). So, we stopped trying to call it a business card, or a Rett card, or an awareness card. it is now just THE PURPLE CARD. BONUS: If you sign up for a free web page on Girl Power 2 Cure ( see examples. GET YOUR CARDS TODAY! I don...
alivincent.com
Ali Gives | BIBI Lifestyle
http://alivincent.com/pages/ali-gives
Diet Bet with Ali ∨. LIVE BIG with DietBet. Super Bowl Survival 101. Which Meal Plan Is Best For You? Throughout the years since Ali won The Biggest Loser. That if we all simply choose to do something in this moment we will beat childhood obesity, make healthy eating more affordable and CURE. For choosing to make a DIFFERENCE one moment at a time! We are committed to making Rett Syndrome. As well as support Rett families with resources, fundraising help and awareness tools. WHO DOES GIRL POWER. Baby girl...
girlpower2cure.blogspot.com
Girl Power 2 Cure: September 2014
http://girlpower2cure.blogspot.com/2014_09_01_archive.html
Monday, September 15, 2014. 3rd Annual Purple Card Giveaway. Our Purple Card goes in every Christmas card - that way family and friends can check out her link and learn more! Our Purple Card is sent home to all of our daughters classmates to help introduce her to her peers and their families along with a letter from me. It has been an amazing way to start building relationships at school.". Open to everyone worldwide! Two (2) winners will be drawn at 10 pm EST on Wednesday, September 17, 2014. If you are...
girlpower2cure.org
What is Rett Syndrome?
http://www.girlpower2cure.org/who-we-are/rett-syndrome.aspx
What is Rett Syndrome? What is Rett Syndrome? What is Rett Syndrome? Debilitating neurological (movement) disorder that predominantly affects females. Baby girls are born "normal" but begin to lose acquired skills between the ages of 1-3 years old. Caused by a single gene mutation that leads to underproduction of an important brain protein. The leading genetic cause of severe impairment in girls - most cannot speak, walk or use their hands. As prevalent as Cystic Fibrosis, ALS and Huntington's. Amidst th...
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