lifewithcms.blogspot.com

Life with CMS (a parent's perspective)

Life with CMS (a parent's perspective). Saturday, June 11, 2011. The roller coaster has been his moving from house to house and I mean friend's houses not mine or his dad's. After a year, he has finally settled back in with his dad. I am still trying to push him to finish his highschool degree on line, but it looks like a GED is going to be his way to go.when he eventually realizes he needs to have something to move on in life. The Adoption Journey of Baby King. Links to this post. Saturday, May 1, 2010.

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Life with CMS (a parent's perspective) | lifewithcms.blogspot.com Reviews

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Life with CMS (a parent's perspective). Saturday, June 11, 2011. The roller coaster has been his moving from house to house and I mean friend's houses not mine or his dad's. After a year, he has finally settled back in with his dad. I am still trying to push him to finish his highschool degree on line, but it looks like a GED is going to be his way to go.when he eventually realizes he needs to have something to move on in life. The Adoption Journey of Baby King. Links to this post. Saturday, May 1, 2010.

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Life with CMS (a parent's perspective) | lifewithcms.blogspot.com Reviews

https://lifewithcms.blogspot.com

Life with CMS (a parent's perspective). Saturday, June 11, 2011. The roller coaster has been his moving from house to house and I mean friend's houses not mine or his dad's. After a year, he has finally settled back in with his dad. I am still trying to push him to finish his highschool degree on line, but it looks like a GED is going to be his way to go.when he eventually realizes he needs to have something to move on in life. The Adoption Journey of Baby King. Links to this post. Saturday, May 1, 2010.

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lifewithcms.blogspot.com

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Life with CMS (a parent's perspective): February 2009

http://www.lifewithcms.blogspot.com/2009_02_01_archive.html

Life with CMS (a parent's perspective). Thursday, February 5, 2009. First Major Hospital Stay (in our care). So, Brian came home to live with us forever on Oct. 9, 1993. My dream of a child had finally come true. We didn't know at the time that was actually happening). By the time I got home, Brian was very lethargic and pale. He was not moving much and M. told me had a hard time giving him the tylenol as we would put that directly in his mouth with a dropper, but Brian couldn't swallow it. We arrived an...

2

Life with CMS (a parent's perspective): Updating soon

http://www.lifewithcms.blogspot.com/2009/05/updating-soon.html

Life with CMS (a parent's perspective). Sunday, May 17, 2009. I will continue his journey with Congenital Myasthenia soon. The Adoption Journey of Baby King. Subscribe to: Post Comments (Atom). The Adoption Journey of Baby King. View my complete profile. Date: May 1, 2010. Age: 18 years old. Mestinon: 60 mg 4 x's a day, 180 mg time release overnight. Friday Fellowship - Renee Crosse. RA Sucks, Sero Negative RA Sucks Even More. Where laughter lives: The Riggs Family. All to the Glory of Him.

3

Life with CMS (a parent's perspective): November 2009

http://www.lifewithcms.blogspot.com/2009_11_01_archive.html

Life with CMS (a parent's perspective). Saturday, November 14, 2009. Jaw Surgery A Success. He said he feels great. We are going to lunch on Monday, we get pizza and salad, he gets soup.but that's okay, we are excited to see him after a week as the swelling was still there last week. I will be taking more pictures. Hopefully these I'll be able to post because as promised, I told him no swollen jaw pictures on the blog. He is so brave! The Adoption Journey of Baby King. Links to this post. I Love My life!

4

Life with CMS (a parent's perspective): Sorry so long

http://www.lifewithcms.blogspot.com/2011/06/sorry-so-long.html

Life with CMS (a parent's perspective). Saturday, June 11, 2011. The roller coaster has been his moving from house to house and I mean friend's houses not mine or his dad's. After a year, he has finally settled back in with his dad. I am still trying to push him to finish his highschool degree on line, but it looks like a GED is going to be his way to go.when he eventually realizes he needs to have something to move on in life. The Adoption Journey of Baby King. Subscribe to: Post Comments (Atom).

5

Life with CMS (a parent's perspective): May 2009

http://www.lifewithcms.blogspot.com/2009_05_01_archive.html

Life with CMS (a parent's perspective). Thursday, May 21, 2009. We had a good 5 months from Brian's coming home in January of 1992. However, in April we found out he had scoliosis. It was pretty severe, a 57 degree curve. I kept telling his pediatrician something looked wrong about his midriff (I had no clue! We were sent to see Dr. Lawrence Lenke at St. Louis Children's Hospital. They immediately put Brian in a back brace. Here he is about 4 years old playing with his cousins. The brace really did n...

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cmsluke.blogspot.com

Luke and Congenital Myasthenic Syndrome: Luke's OT therapy

http://cmsluke.blogspot.com/2011/01/lukes-ot-therapy.html

Monday, January 10, 2011. Because I've been a slacker blogger, I'm trying to catch up to some fun events that happened over these last few months. One in particular is Luke's progress in PT. (physical therapy). It's been amazing to watch and we are so thankful for his therapists. We are in awe of what they can get Luke to do! It's really pretty awesome. I call this video "Mountain furniture.and Luke". Andrea "The H family". Sac Louis Vuitton Pas Cher. Sac Chane pas cher. Chaussures Nike Pas Cher. 9 years...

cmsluke.blogspot.com

Luke and Congenital Myasthenic Syndrome: Goal for 2011.

http://cmsluke.blogspot.com/2011/01/goal-for-2011.html

Monday, January 10, 2011. Time of day: 3pm. Shirt of choice: His jammy top from the night before. Shoes: His monkey house shoes. Temperature outside: Have no clue. Age of kid: 5. Where is his sister? The million dollar question: What do I look like? Judgement: go ahead.I'm numb and exhausted.hey, at least I'm the historian here. Goals for 2011: Be a better mom. LOL! Andrea "The H family". Thanks for your sharing! I am operateing Wedding Dress Shops. And Christian Louboutin Shoes. Sac Chane pas cher.

cmskyla.blogspot.com

Carter Family and Congenital Myasthenic Syndrome: No Mestinon

http://cmskyla.blogspot.com/2008/06/no-mestinon.html

Carter Family and Congenital Myasthenic Syndrome. Monday, June 23, 2008. Posted by Neely and Sabrina. Andrea "The H family". Hi there, we also have video of Luke without mestinon and it was so scary. We were just holding him and he could not do anything. This medicine is just amazing. June 27, 2008 at 9:50 PM. Subscribe to: Post Comments (Atom). Mestinon: 60 mg 4-5 times daily. Melatonin: 3 mg 1 X nightly. General Health: General weakness, especially in the eyes. CMS Friends and Blogs we follow:.

cmskyla.blogspot.com

Carter Family and Congenital Myasthenic Syndrome: Mayo Monday

http://cmskyla.blogspot.com/2008/06/mayo-monday.html

Carter Family and Congenital Myasthenic Syndrome. Monday, June 23, 2008. Well, test one went as planned with a couple of additions we didn't know about initially. She actually had the EMG while on a dose of the new 3, 4 DAP (which is in pill form, and Kyla swallowed it! The doc, Dr. Krum, said he saw an improvement in muscle response during the test. Praise God! God is good. More later today. Posted by Neely and Sabrina. Subscribe to: Post Comments (Atom). Mestinon: 60 mg 4-5 times daily.

cmskyla.blogspot.com

Carter Family and Congenital Myasthenic Syndrome: Pictures from today's EMG

http://cmskyla.blogspot.com/2008/06/pictures-from-todays-emg.html

Carter Family and Congenital Myasthenic Syndrome. Monday, June 23, 2008. Pictures from today's EMG. Kyla at St. Mary's Hospital getting ready for the EMG. Kyla and Mom getting ready for the EMG. Sabrina got to go and watch them start the iv before she had to come to the waiting room with me while the doctors did the EMG. Recovery. Kyla was pretty groggy. Posted by Neely and Sabrina. Labels: http:/ bp2.blogger.com/ rzLjAwTZ0H8/SGACpd4jEqI/AAAAAAAAAC4/IK se4ofmJA/s320/DSCF0500.JPG. A long day at the Mayo.

cmskyla.blogspot.com

Carter Family and Congenital Myasthenic Syndrome: Pictures from the zoo on Wednesday

http://cmskyla.blogspot.com/2008/06/pictures-from-zoo-on-wednesday.html

Carter Family and Congenital Myasthenic Syndrome. Friday, June 27, 2008. Pictures from the zoo on Wednesday. Photo and video editing at www.OneTrueMedia.com. Posted by Neely and Sabrina. Subscribe to: Post Comments (Atom). Mestinon: 60 mg 4-5 times daily. Melatonin: 3 mg 1 X nightly. General Health: General weakness, especially in the eyes. Large muscle fatigue when activity is prolonged or in high heat. CMS Friends and Blogs we follow:. Moms thoughts in the morning. Pictures from the zoo on Wednesday.

cmskyla.blogspot.com

Carter Family and Congenital Myasthenic Syndrome: kyla turns 9

http://cmskyla.blogspot.com/2011/06/kyla-turns-9.html

Carter Family and Congenital Myasthenic Syndrome. Wednesday, June 8, 2011. Haven't blogged in so long. received a very emotional email from a mom of another precious kiddo with possible cms. Reminds me of what a precious gift we have. Here are a few pics from Kyla's 9th birthday. I am so thankful for hope. Posted by Neely and Sabrina. Subscribe to: Post Comments (Atom). Mestinon: 60 mg 4-5 times daily. Melatonin: 3 mg 1 X nightly. General Health: General weakness, especially in the eyes.

cmsluke.blogspot.com

Luke and Congenital Myasthenic Syndrome: Our first piano recital!

http://cmsluke.blogspot.com/2011/06/our-first-piano-recital.html

Tuesday, June 7, 2011. Our first piano recital! Many of you know that Luke and Hannah are in piano lessons. Luke/I have been in piano lessons for quite awhile and we decided to go ahead and put Hannah in the lesson mix on Thursdays. My children are so bright! If you turn up your volume you will quietly hear Luke playing. It's precious! Until next time.Practice, Practice! I call these pictures "Piano cuteness". I call the video "Piano perfection via Luke". Note: They bow before and after. :) Adorable!

cmsluke.blogspot.com

Luke and Congenital Myasthenic Syndrome: Snow day and recovering

http://cmsluke.blogspot.com/2011/01/snow-day-and-recovering.html

Tuesday, January 11, 2011. Snow day and recovering. Well, Lukester is feeling better. He has not coughed as much today and I totally give God the praise. Thank you for praying. We need a few more days of ABX in Hannah bow and I pray she feels better. Man.this has been 4 weeks of * *! That said, todays' theme is "Squirrel in the snow". Luke said this about a cajillion times! We bundled him up right outside the door while he played in the snow. Inside/outside fashionable wrapped in blankets. :). He loves s...

cmsluke.blogspot.com

Luke and Congenital Myasthenic Syndrome: Piano!

http://cmsluke.blogspot.com/2011/01/piano.html

Monday, January 10, 2011. House is spotless. All things are in place. Christmas lights are on. Food is bought. Presents are wrapped and most importantly.Laundry is done! YESit's true. AND THE DISHES! A very happy momma. We are slowly feeling better from our sickness and by God's grace and mercy.we will all be well on Christmas day! Sobehold, my sibling piano video. Love you blog family.May your Christmas be blessed. Andrea "The H family". Sac Louis Vuitton Pas Cher. Sac Chane pas cher. Live video of chan...

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Life with CMS (a parent's perspective)

Life with CMS (a parent's perspective). Saturday, June 11, 2011. The roller coaster has been his moving from house to house and I mean friend's houses not mine or his dad's. After a year, he has finally settled back in with his dad. I am still trying to push him to finish his highschool degree on line, but it looks like a GED is going to be his way to go.when he eventually realizes he needs to have something to move on in life. The Adoption Journey of Baby King. Links to this post. Saturday, May 1, 2010.

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