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Stiftung für Menschen mit seltenen Krankheiten l Foundation for people with rare diseases - Startseite
Uuml;ber seltene Krankheiten ». Seltene Krankheiten können lebensbedrohlich sein und erfordern oft eine aufwendige diagnostische Abklärung. 80 Prozent der seltenen Krankheiten sind genetisch bedingt. Unsere Stiftung ». Die Stiftung fördert die Erweiterung und Ver-. Tiefung des Wissensstandes bei seltenen Krankheiten und strebt medizinisch-genetische Spitzenleistungen an. » Mehr. Helfen Sie mit ». Menschen mit seltenen Krankheiten brauchen auch Ihr Engagement! Raquo; Konzept für Seltene Krankheiten. Raquo...
Home - Rare Disease Foundation
Skip to main content. Guest ( Sign In. Family and Patient Support. The Health Ministers of Québec, Ontario, Alberta and BC: Put Kids Before Bureaucracy - Turn Heartbreak to Hope. Medical research is offering new hope to more than half a million kids who suffer from rare genetic diseases. Our provincial governments need to step up to the plate and make. Rare Disease Foundation - Genetic Testing Petition. From Rare Disease Foundation. Dear Caring Canadians,. The Face of Rare Diseases. July 21, 2015. Washin...
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Rare disease matters
Recognizing and understanding the value of patient-driven innovation. Why Rare disease matters. Patient-initiated research foundations: A source of funding, but more importantly a continuous source of inspiration. Closing a gap for rare diseases or simply a bridge too far. Dog head transplant by Demichow (1959). Attribution: Bundesarchiv, Bild 183-61478-0004 / Weiß, Günter / CC-BY-SA. To quote the famous 1997 Apple Think different Ad. Does this mean he is right and should advance with his venture? This w...
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Patient centered communications consulting for any business in rare disease space
Our direct patient experience can help you connect. Partnering with patients can reduce overall costs. Patient perspectives can guide strategy. Rare Disease Perspectives is a communications consulting firm directed to foster and create communications, relationships and trust between patients, patient advocacy groups and the industries involved with them. LISTEN TO LIVE TO LEARN. As such we at the BioPontis Alliance Rare Disease Foundation.
Plateforme Maladies Rares - Home
Since 2001, the Rare Disease Platform is a place that brings together over a hundred employees and many volunteers, mobilised to advance the fight against rare diseases and to improve the lives of patients and their families. Institut des maladies rares. Maladies Rares Info Services.
