We are a support group and charity concerned with the rare genetic condition aniridia – which causes a lack of irises (the coloured ring) in the eyes and poor vision from birth. For over 10 years Aniridia Network UK has been helping people with aniridia as well as their families, doctors and teachers to be…
http://aniridia.org.uk/
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Aniridia Network UK | Supporting people with aniridia and their families | aniridia.org.uk Reviews
https://aniridia.org.uk
We are a support group and charity concerned with the rare genetic condition aniridia – which causes a lack of irises (the coloured ring) in the eyes and poor vision from birth. For over 10 years Aniridia Network UK has been helping people with aniridia as well as their families, doctors and teachers to be…
aniridia.org.uk
Volunteers | Aniridia Network UK
http://aniridia.org.uk/volunteers
Supporting people with aniridia and their families. Running for fun and aniridia. How we spend the money you raise? Aniridia around the world. The services provided by Aniridia Network UK. Are only possible because of the time and effort given by the wonderful volunteers below and our trustees. We can always do more/better though. So if you can help, read about how you can volunteer. Has aniridia: Yes (familial). I really need help in 2014 though! Role: Communications and IT Officer. I am very keen on he...
Annual General Meeting | Aniridia Network UK
http://aniridia.org.uk/conference/annual-general-meeting
Supporting people with aniridia and their families. Running for fun and aniridia. How we spend the money you raise? Aniridia around the world. Presenters James Buller and others on the Trustee Board. The Annual General Meeting (AGM) is a formal meeting of the ANUK members. It is the official part of our Conference. The trustees will present a report on the work that has been carried out over the previous year. Thes include the financial records of ANUK, fundraising and other activities. Donate once or re...
How we spend the money you raise? | Aniridia Network UK
http://aniridia.org.uk/money
Supporting people with aniridia and their families. Running for fun and aniridia. How we spend the money you raise? Aniridia around the world. How we spend the money you raise? It is important to us that our members, donors and fundraisers understand how we use the money they have raised. Even though we are a small organisation we still have regular running costs, these include:. Address to make our website memorable and easy to find when searching the internet. We would like to make our annual meeting b...
Sessions | Aniridia Network UK
http://aniridia.org.uk/sessions
Supporting people with aniridia and their families. Running for fun and aniridia. How we spend the money you raise? Aniridia around the world. Included the sessions below. View the presentation slides. Many speakers do not have any slides. Mobility As Both A Profession and Person with Aniridia. Y Debbie, Rehabilitation Office and ANUK Mobility Adviser. By Maria Storesund, Programme Manager, Touch To See Book Clubs. We have wonderful interesting books for groups of people to enjoy together at book clubs, ...
Creche | Aniridia Network UK
http://aniridia.org.uk/creche
Supporting people with aniridia and their families. Running for fun and aniridia. How we spend the money you raise? Aniridia around the world. We provide a crèche at Conference. So children can play normally and delegates can easily hear the presenters. There is no extra charge. It is run by qualified staff from an agency. It is in a very close but separate room from where presentations are given. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:.
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Enlaces - Asociación Española de Aniridia
http://www.aniridia.es/Enlaces.html
ASOCIACIÓN ESPAÑOLA DE ANIRIDIA (A.E.A). Desde la Asociación Española de Aniridia trabajamos en Red con otras entidades. Federación Española de Enfermedades Raras, FEDER:. Compuesta por más de 200 asociaciones, desde FEDER trabajamos de forma integral con las familias con enfermedades raras a través de proyectos y servicios destinados a mejorar su calidad de vida a corto, medio y largo plazo. Entidad sin Ánimo de Lucro, fundada en enero de 2.012 en el marco del III Congreso del. Associació Discapacitat V...
Supporters
http://rdstaging.geneticalliance.uk/supporters
What is a rare disease? Rare Disease UK (RDUK) has over 2,000 registered supporters including academics, clinicians, industry, individual members and patient organisations. For more information and to join RDUK please click here. Our industry supporters for 2016 are: Aegerion, Alexion, Amgen, Amicus Therapeutics, Bio Marin, Biogen, Chiesi, CSL Behring, Genzyme, GlaxoSmithKline, Healx, Novartis, Pfizer, PTC Therapeutics, Raptor, Roche, Shire, Sigma-Tau Rare Disease, SOBI, UCB and Vertex. CDH-UK (Congenita...
Supporters
http://www.raredisease.org.uk/members.htm
What is a rare disease? Rare Disease UK (RDUK) has over 2,000 registered supporters including academics, clinicians, industry, individual members and patient organisations. For more information and to join RDUK please click here. Our industry supporters for 2016 are: Aegerion, Alexion, Amgen, Amicus Therapeutics, Bio Marin, Chiesi, CSL Behring, Genzyme, GlaxoSmithKline, Healx, Novartis, Pfizer, PTC Therapeutics, Raptor, Roche, Shire, Sigma-Tau Rare Disease, SOBI, UCB and Vertex. Alpha 1 UK Support Group.
James Buller, CV and Portfolio
http://www.jbuller.info/portfolio.php
User experience designer with 13 years' experience of digital communications. I spearheaded, designed and delivered this project for an interface to query over 265,000 Lottery grants. I led the user experience design class team on the loyalty and mobile payment extension to Foursquare project. I led on user experience and content strategy on a project to relaunch an intranet with a social network. These are the websites I have been involved with. The thumbnails link to full screenshots. My involvement: I...
What is keratoconus? | Keratoconus GB Living with Keratoconus
https://keratoconusgb.com/what-is-keratoconus
Keratoconus GB Living with Keratoconus. For people living with keratoconus, from people that really understand what living with KC is like. Keratoconus (from Greek: kerato- horn, cornea; and konos cone), is a degenerative disorder of the eye in which structural changes within the cornea cause it to thin and change to a more conical shape than its normal gradual curve. Keratoconus is not a blinding disease in the truest sense of the word. The earliest signs of keratoconus. Scarring at the apex of the cone.
kc | Keratoconus GB Living with Keratoconus
https://keratoconusgb.com/tag/kc
Keratoconus GB Living with Keratoconus. For people living with keratoconus, from people that really understand what living with KC is like. KERATOCONUSGB on Google join us now! Https:/ plus.google.com/u/0/b/102719296939938642652/102719296939938642652/posts. Join us on G. Hope to see you there! KERATOCONUS – LIVING YOUR LIFE TO THE FULL. KERATOCONUS- LIVE YOUR LIFE TO THE FULL! 1 Horse riding safari in South Africa. 2 Canyoning in Scotland. 3 Roller coasters in Florida. 6 Been in a BAFTA nominated film.
Link utili | Aniridia Italiana
http://www.aniridia.it/da-sapere/link-utili
Cos’è l’aniridia. Http:/ www.aniridia.eu/. AFI – Aniridia Foundation International. Http:/ www.aniridia.net/. ANUK – Aniridia Network United Kingdom. Http:/ aniridia.org.uk/. Asociación Española de Aniridia. Http:/ www.aniridia.es/. Http:/ associationgeniris.free.fr/. AWS Aniridie WAGR e. V. Germany. Http:/ www.aniridie-wagr.de/. Http:/ www.aniridi.no/. Http:/ www.aniridi.se/. Http:/ www.aniridia.fi/. Russian Inter regional support center for patients with aniridia Iris. Http:/ www.aniridia.ru/ru. Http:/...
Redditch Association for the Blind: Eye Conditions
http://redditchab.org.uk/eye-conditions.html
Redditch Association for the Blind. Supporting visually impaired people in the community. This page summarises various conditions that can cause sight loss. Each summary contains a link for more detailed information and help where available. Use the A to Z below to link down the page. W X Y . Z. Age-Related Macular Degeneration (AMD). RNIB information on Age Related Macular Degeneration. RNIB information on Aniridia. RNIB information on Best's Disease. A cataract is a clouding that develops in the lens o...
collagen cross linking | Keratoconus GB Living with Keratoconus
https://keratoconusgb.com/tag/collagen-cross-linking
Keratoconus GB Living with Keratoconus. For people living with keratoconus, from people that really understand what living with KC is like. Tag Archives: collagen cross linking. Three Different Protocols for CXL. Via National Keratoconus Foundation. Corneal collagen cross-linking (CXL) has been shown to be an efficient treatment option to slow or halt the progression of keratoconus. As the US keratoconus community waits patiently (? Accelerated CXL (A-CXL),. And conventional CXL (C-CXL). SOURCE: Three Di...
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Inicio - Asociación Española de Aniridia
ASOCIACIÓN ESPAÑOLA DE ANIRIDIA (A.E.A). La Asociación Española de Aniridia, fue creada el 15 de Junio de 1996, desde entonce, quiere ser punto de referencia tanto para profesionales, como para afectados, sirviendo de puente entre los dos colectivos e intercambiando información en ambas direcciones. Es una Ong sin ánimo de lucro, inscrita en el Registro de Asociaciones del Ministerio de Interior y en la Comunidad de Madrid. Colabora hoy, veremos mañana.". Colabora hoy, veremos mañana". Visita las siguien...
Aniridia Europe | Uniting the European Aniridia Associations
Affiliated member application form. Full member application form. The most noticeable symptom of aniridia is the partial or complete lack of an iris in both eyes. One of our mission objectives is to spread information and inspire research on aniridia. First Russian Congenital Aniridia Conference 2-4 July 2015, Moscow. May 8th, 2015. Report on Nordic Aniridia Meeting 2014 in Denmark. January 11th, 2015. Aniridia Summer 2015 – Invitation to youth camp in Italy. January 8th, 2015. To youth in the age of 15-...
| Aniridia Finland
Yhdistys Aniridia Finland r.y. Föreningen Aniridia Finland r.f. Alkukesän pohjoismainen Anirdiakonferenssi järjestetään Ahvenanmaalla 5-7. kesäkuuta 2015. Ohjelman löydät muutaman rivin päästä ja muu info tulee kotisivuille pian, mutta varaa aika jo kalenteriin! Luennoitsijana muun muassa silmälääkäri Päivi Lindahl. 8212;——-. Kevät tulee ja yhdistysaktiivisuus puhkeaa kukkaan lomien jälkeen. 8212;——-. Syksy lähestyy ja yhdistysaktiivisuus kasvaa kuin sienet sateella! 8212;——-. 8212;——-. Aniridia Finland ...
Aniridia Italiana | Il portale dell'associazione
Cos’è l’aniridia. Cos’è l’aniridia? Aniridia significa “senza iride”. E’ una malattia genetica rara. Che colpisce la vista ed è caratterizzata dalla formazione incompleta dell’iride (la parte colorata dell’occhio che circonda la pupilla). Anche altre parti dell’occhio, come il nervo ottico e la macula (la parte centrale della retina), possono non essere correttamente sviluppate. Le alterazioni della struttura dell’occhio possono provocare l’insorgenza di altre patologie oculari. Dal 22 al 24 novembre 201...
Aniridia Foundation International
Website Designed at Homestead List Your Business for Free. For some, your journey has just started, and others have a whole life full of experiences. Either way, you will be able to learn and share many things through Aniridia Foundation International. The core of AFI is centered on. You are not alone and we are here to help! We welcome you to join us and see how our team efforts can assist the low vision community, make advancements in research, improve patient care and one day, a cure. Jill Nerby was ...
Aniridia Network UK | Supporting people with aniridia and their families
Supporting people with aniridia and their families. Annual General Meeting 2015. Running for fun and aniridia. How we spend the money you raise? Aniridia around the world. We are a support group and charity concerned with the rare genetic condition aniridia. Which causes a lack of irises (the coloured ring) in the eyes and poor vision from birth. Our next conference will be in Newcastle in autumn 2015. It is a chance to hear from and ask questions in person to people interested in aniridia –. Enter your ...
Aniridia PL | Polska strona o Aniridii | www.aniridia.pl
Witamy na stronie poświęconej aniridii. Gdy dowiadujemy się, że nasze dziecko ma zdiagnozowaną aniridię. Rodzi się w naszej głowie wiele pytań, tym bardziej że choroba jest bardzo rzadka, a w naszym życiu nie spotykaliśmy żadnej osoby z podobnym przypadkiem. Wesołych Świąt Bożego Narodzenia. Wspaniałych świąt Bożego Narodzenia spędzonych w ciepłej, rodzinnej atmosferze, samych szczęśliwych dni w nadchodzącym roku oraz szampańskiej zabawy sylwestrowej życzy zespół aniridia.pl. Jednym ze sposobów po...
Аниридия.ру | Российское Межрегиональное общество помощи и поддержки аниридийных больных
Перейти к основному содержанию. Российское Межрегиональное общество помощи и поддержки аниридийных больных. Клиники в РФ и за рубежом. Первая Всероссийская Конференция по Врожденной Аниридии. Третья общеевропейская конференция по врожденной аниридии и WAGR синдрому. Проблемы глаза, связанные с аниридией. Плохое зрение и светочувствительность при аниридии. Проблемы роговой оболочки и хрусталика. Нистагм и косоглазие при аниридии. Как жить с аниридией. Ведущие клиники и разработки ученых по аниридии. Подро...
Seeing what cannot be seen... | The Struggle to Med School
Seeing what cannot be seen…. The Struggle to Med School. NEVER go back home…. May 5, 2009 in Random Thoughts. So hopefully, lets please just hope that I post again… it means im not stuck in some insane asylum. . till next time. Try and see how your words and actions are seen by those around you. Ithink you’d be suprised to see how things look to others. April 2, 2009 in Random Thoughts. Sometimes patience is a necessary evil). How many of them have gone to a town hall to have their ideas heard? I’m...
Асоциaция – Аниридия България | За Нас
Асоциaция – Аниридия България. Аниридия означава без ирис и е рядко генетично заболяване, засягащо зрението, характеризиращо се с непълното формиране на ириса на окото (оцветената част на окото, която обгражда черната зеница). Skip to primary content. Skip to secondary content. Очни проблеми свързани с аниридия. Слабо зрение и аниридия. НАРЪЧНИК ЗА ДОБРИ ПРАКТИКИ. 8222;Аз съм с аниридия“ – съветите на едно дете. Проект Изграждане на нови механизми за самопомощ при засегнатите от аниридия. Юли 27, 2015.
aniridiachangingperception.com
Aniridia Changing Perception (ACP)
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