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Living with ALS - HomePatient and Caregiver Perspectives on Living with ALS
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Patient and Caregiver Perspectives on Living with ALS
http://www.livingwithals.net/
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Living with ALS - Home | livingwithals.net Reviews
https://livingwithals.net
Patient and Caregiver Perspectives on Living with ALS
livingwithals.net
Caregiver Support Links
http://www.livingwithals.net/alssupport_017.htm
Cargiver Action Network http:/ www.caregiveraction.org/forum/. This site has a forum where you can ask questions of other caregivers; also has other resources you will find helpful. You have to join the network to participate. Http:/ www.caregiver.va.gov/support/support services.asp. This site is created for veterans, but you can access the information without becoming a member. Https:/ www.caring.com/support-groups/als-lou-gehrigs-disease. Patient and Caregiver Perspectives.
Caregiver Perspective
http://www.livingwithals.net/alssupport_011.htm
They think I have ALS , he said, Lou Gehrig s disease. Was my emphatic reply. There is no way why do they think that? After assuring me he did not want me to come home to be with him, we said good-bye and agreed to talk when I got home from work. I was able to dry my tears and prepare for the remainder of meetings I had to attend that day. Thus was the beginning of my journey through the valley of death with my husband and best friend. I had no idea what our future held. Patient and Caregiver Perspectives.
Caregiver Support Information
http://www.livingwithals.net/alssupport_014.htm
It took me 3 years to realize I needed help. I think that was because RL did not progress as quickly as some ALS patients, and I clung to the hope that he would never get to the point where we needed help. But that time has come, and I am sharing the things that have been most helpful to me. One of my best resources is books.reading other peoples' stories of the obstacles they encountered on their caregiver journeys. The books I mention on the next page are available on Amazon. Take care of yourself.
Living with ALS - Home
http://www.livingwithals.net/index.html
Patient and Caregiver Perspectives. It is also the story of my struggles as a caregiver, and how I have come to terms with providing support for my best friend and husband. I am sharing some of the things I have learned to help me deal with the heartache and stress, and the role that faith played. Our prayer is that this site will be a blessing and encouragement to someone walking through this valley of death. This is the story of RL (Patient) and Carol (Caregiver) Davis.
Patient Care Information
http://www.livingwithals.net/alssupport_003.htm
I had Hepatitis C a few years ago, so I don't tolerate medication well. Everything I take is a vitamin or natural supplement. Patient and Caregiver Perspectives. St John s Wort (natural anti-depressant). Carb powder (I use this because I'm not getting carbs in any other form.). Greens (kale, spinach, turnips, collards). You can add other veggies like carrots if you can tolerate them; they make me cramp. Slurred speech - I have speech software on my iPad which I use to speak publicly. Uncontrollable laugh...
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Out of the Blue Too: Please join me!
http://alsdon.blogspot.com/2014/08/please-join-me.html
Out of the Blue Too. Tuesday, August 05, 2014. The ALS walk in Fort Collins is Sept 21, Sunday. Registration is at 11 and the walk begins at noon. It's at the CSU Oval. Wear my Trailblazers team shirt or wear red. There's live music and lots of give a ways! Please join my awesome team! Also the ALS Association has been great to me and my family for over nine years so if you can donate, please do! The best thing is if you can't be in town that day you can join as a virtual walker! View my complete profile.
Out of the Blue Too: Many years ago - I wrote this for my father
http://alsdon.blogspot.com/2014/06/many-years-ago-i-wrote-this-for-my.html
Out of the Blue Too. Sunday, June 15, 2014. Many years ago - I wrote this for my father. Download the original attachment. I wanted to tell my dad how much I appreciated him and I wrote this when I was a young adult. You taught me to respect nature and the environment by setting the best example. You taught me not to sweat the little stuff when I broke the jeep brake cylinder trying to learn more about how cars work. You helped me with college calculus and understood when engineering was too much for me.
Out of the Blue Too: May I recommend books?
http://alsdon.blogspot.com/2014/11/may-i-recommend-books.html
Out of the Blue Too. Sunday, November 30, 2014. May I recommend books? I have read these books and wanted to recommend them to you. They aren't in any order. The Time Traveler's Wife. I loved her writing style. A must read! Her use words were incredible and I found myself rereading certain paragraphs again. Same Kind of Different as Me. A beautiful story about two men living worlds apart but destined to be together. Unbroken - A World War II Story. To Kill a Mocking Bird. View my complete profile. The He...
Out of the Blue Too: The meaning of the song Layla
http://alsdon.blogspot.com/2014/05/the-meaning-of-song-layla.html
Out of the Blue Too. Tuesday, May 20, 2014. The meaning of the song Layla. Layla by Derek and the Dominos. The three people involved are George Harrison, Eric Clapton and Pattie Boyd. She is Layla. When Eric met her she was married to George, it was love at first sight! She has beautiful blonde hair which is important later in my story. Eventually Eric and Pattie got married and he wrote this before their marriage. What'll you do when you get lonely. And nobody's waiting by your side? I love the meaning ...
Out of the Blue Too: My College Major
http://alsdon.blogspot.com/2015/03/my-college-major.html
Out of the Blue Too. Thursday, March 19, 2015. When I was first accepted into college at Colorado State University (CSU) my major was Forestry because of my love of the great outdoors. I love to fish, hunt, rock climb, backpacking and snow skiing. However I learned that PhD’s in Forestry was basically only doing meaningless tasks by emptying garbage bins in parks. That was in 1975. I didn't want that for my career. Washing dishes (oh yeah! I changed to Industrial Technology! When I married Hing I would b...
Out of the Blue Too: Ten Years with ALS!
http://alsdon.blogspot.com/2015/02/ten-years-with-als.html
Out of the Blue Too. Thursday, February 12, 2015. Ten Years with ALS! We were so young to live with this disease. We were in such a state of shock we decided not to say anything to our family. Fortunately my ALS doctor was extremely hopeful and compassionate. He is on the international ALS board and said don’t give up! Hing spent time researching ways to slow down my disease. For example our family went organic. More reason for hope! In late 2005 we started building an extension to our house off of the f...
Out of the Blue Too: The song - Walking in Memphis
http://alsdon.blogspot.com/2014/09/the-song-walking-in-memphis.html
Out of the Blue Too. Tuesday, September 23, 2014. The song - Walking in Memphis. Every time I listen to this song it reminds me of. My mind fills with fond memories of my wife and family went to the different places in this song. I put my memories phrases below the lyrics. Put on my blue suede shoes. And I boarded the plane. Touched down in the land of the Delta Blues. In the middle of the pouring rain. Won't you look down over me. Yeah, I got a first class ticket. But I'm as blue as a boy can be. Café I...
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livingwithallmymight.wordpress.com
Living and Loving With All My Might | Navigating My Life with Courage and Joy
Living and Loving With All My Might. Navigating My Life with Courage and Joy. Liebster Award from Warsaw’s Secret Fitness Blog! November 13, 2013. To Warsaw’s Secret Fitness Blog ( http:/ warsawssecret.wordpress.com/2013/10/05/liebster-award-from-don-charisma. For nominating me for a Liebster award! The Liebster Award is given to up and coming bloggers who have less than 200 followers. So, what is a Liebster? Here are the rules for receiving this award:. 1 Post the award on your blog. I have a double ute...
www.livingwithalocal.com
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livingwithaloveoneinprison.blogspot.com
Living With a Love One in Prison
Living With a Love One in Prison. Friday, April 11, 2014. 14 year-old sentenced to 6 years in jail for killing his mother's partner. Sunday, April 6, 2014. Former Rep. Jesse Jackson Jr. moved to Ala. prison. Friday, January 11, 2013. The community benefits when ex-offenders find jobs. Tuesday, October 9, 2012. FREE Book Catalog Sended to Inmate. Friday, September 28, 2012. Man cleared of murder, freed after 19 years in prison. Tuesday, September 18, 2012. SureShot Books sending books to inmates. Picture ...
livingwithalpersaveriestory.blogspot.com
Living With Alpers : Averie's Story
Living With Alpers : Averie's Story. Following the day to day happenings of a little girl living with a mitochondrial disorder. Averie passed away Sunday November 13th at 3:33am due to complications of her mitochondrial disorder. My beautiful princess is finally healed and in heaven with her brother :). Averie is a crazy, beautiful, smart energetic 7 year old who keeps everyone on their toes! Monday, November 14, 2011. Pictures of your balloon release are welcome 3. Links to this post. Even now she is re...
Living With Alpha 1
Living With Alpha 1. Getting back to running. Before I was diagnosed, my wife and I ran 5Ks. She started it, really. A bunch of her friends were into running and they convinced her to run a race. I volunteered to be her running buddy while training around the neighborhood. Things went pretty smoothly for our first race. I think our first time was somewhere around the 39 minute mark. It was definitely less than 40 minutes, which was our goal for the first race. It was one thing after another. My foot ...
Living with ALS - Home
Patient and Caregiver Perspectives. It is also the story of my struggles as a caregiver, and how I have come to terms with providing support for my best friend and husband. I am sharing some of the things I have learned to help me deal with the heartache and stress, and the role that faith played. Our prayer is that this site will be a blessing and encouragement to someone walking through this valley of death. This is the story of RL (Patient) and Carol (Caregiver) Davis.
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Click here to read about Ellie's Families and how we've helped them. W ho was Ellie? The Ellie Reynolds ALS Foundation provides people living with ALS and their caregivers with the day-to-day comforts they need to achieve a higher quality of life at little or no cost. As the illness progresses simple everyday tasks that we take for granted become difficult for the person living with ALS. 5/11: 10th Annual Golf Outing. 7/8: 5th Annual Ellie's Run. 10/6: 3rd Annual Motorcycle Ride.
loving beyond ALS | Just another WordPress.com site
Just another WordPress.com site. May 8, 2011. One of the really crappy things about the ALS diagnosis is that the disease progresses pretty quickly (in some cases) and there are no cures (yet) or medications that can slow it all down for more than a smidge (yet), so you are told to get your affairs in order and if you have something you want to do, do it. Now. Don’t wait. I am expecting some bitter-sweet times ahead as Will gets ready to launch into this next phase. March 9, 2011. Update on the drug trial.
livingwithalsbytomswift.blogspot.com
Living with ALS by Tom Swift
Living with ALS by Tom Swift. A Few Words In Closing. This is my last article for the St. James Epistle. I developed pneumonia in early January and I did not recover fully. By the time you read this, I may be dead. I realize that is blunt, but I want to be clear. Here are a few thoughts before I go. Why didn't God heal me? I am not afraid of dying and death. I am not afraid of dying because I am in hospice care. The caring and professional staff will make sure I die in comfort and dignity. I ...I feel sa...
The Films - Living With Alzheimer's Project
Living with Alzheimer's Film Project. Tell us Your Story. A new annual competition for short films about dementia. Grand prize: $5,000. Announcing Winners of 2016 Competition. Deadline Extended for 2016 Competition. Announcing Winners of 2015 Competition. Deadline extended for our current contest to 1/1/2017! Submit your film at https:/ t.co/CjxlKWhD7p. Listen to the winners of the Living With #Alzheimers. Film Competition announced on @TheTakeaway. About experiences of #Alzheimers. Directed by Zoë Smurr.
livingwithalzheimers.wordpress.com
The Many Faces of Alzheimers | Because No One Face Describes it All
The Many Faces of Alzheimers. Because No One Face Describes it All. April 11, 2011. Music Therapy and Alzheimer’s. While looking through other blogs, I came across a blog dedicated to Music Therapy. They had posted an article regarding a study done in Cambridge is 2009. I thought it was very interesting, so I thought I would share a bit of it! Any way here is the article…. To support the use of this intervention for the management of agitation (Ragneskog. 2006; 2008; Park, 2008). April 9, 2011. Being a c...
