livingwithalsbytomswift.blogspot.com

Living with ALS by Tom Swift

Living with ALS by Tom Swift. A Few Words In Closing. This is my last article for the St. James Epistle. I developed pneumonia in early January and I did not recover fully. By the time you read this, I may be dead. I realize that is blunt, but I want to be clear. Here are a few thoughts before I go. Why didn't God heal me? I am not afraid of dying and death. I am not afraid of dying because I am in hospice care. The caring and professional staff will make sure I die in comfort and dignity. I ...I feel sa...

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Living with ALS by Tom Swift | livingwithalsbytomswift.blogspot.com Reviews

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Living with ALS by Tom Swift. A Few Words In Closing. This is my last article for the St. James Epistle. I developed pneumonia in early January and I did not recover fully. By the time you read this, I may be dead. I realize that is blunt, but I want to be clear. Here are a few thoughts before I go. Why didn't God heal me? I am not afraid of dying and death. I am not afraid of dying because I am in hospice care. The caring and professional staff will make sure I die in comfort and dignity. I ...I feel sa...

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Living with ALS by Tom Swift | livingwithalsbytomswift.blogspot.com Reviews

https://livingwithalsbytomswift.blogspot.com

Living with ALS by Tom Swift. A Few Words In Closing. This is my last article for the St. James Epistle. I developed pneumonia in early January and I did not recover fully. By the time you read this, I may be dead. I realize that is blunt, but I want to be clear. Here are a few thoughts before I go. Why didn't God heal me? I am not afraid of dying and death. I am not afraid of dying because I am in hospice care. The caring and professional staff will make sure I die in comfort and dignity. I ...I feel sa...

INTERNAL PAGES

livingwithalsbytomswift.blogspot.com

1

Living with ALS by Tom Swift: The Great Dance

http://livingwithalsbytomswift.blogspot.com/2012/11/the-great-dance.html

Living with ALS by Tom Swift. I woke up and did not know where I was. It was cold. It was dark. I was curled up on a forest floor. I shivered a little. I got up, brushed the dirt and leaves off my clothes, and looked around. I saw a light a long way off through the trees and headed in that direction. I stopped as if struck by lightning. I could walk! I could lift my arms and work my fingers! I said, "Hello," tentatively and shouted, "I can talk! My daughter, Emma, and friends in Haiti. Citizen-Times news...

2

Living with ALS by Tom Swift: March 2012

http://livingwithalsbytomswift.blogspot.com/2012_03_01_archive.html

Living with ALS by Tom Swift. I Have ALS but ALS does not Have Me. The following article first appeared in the Asheville (NC) Citizen-Times newspaper on 4 March 2012.). Amyotrophic Lateral Sclerosis (ALS) attacks the nerves that lead to voluntary muscles. When the nerves die, the muscles they control wither away to uselessness. The illness ended the career of Lou Gehrig, the great New York Yankees' first baseman. It is also known as Lou Gehrig's disease in the United States and Canada. With friends at St...

3

Living with ALS by Tom Swift: I Love St. James Episcopal Church

http://livingwithalsbytomswift.blogspot.com/2012/08/i-love-st-james-episcopal-church.html

Living with ALS by Tom Swift. I Love St. James Episcopal Church. The following article was first published in the St. James Episcopal Church newsletter,. And is used here by permission.). I invited a friend to church recently. It wasn't hard. You should try it sometime. She came to worship with me. I was able to look at our church anew through her eyes. This is what I saw:. The Service of the Eucharist: We heard the great story of God's creation of the universe and ourselves, our falling away from God, a...

4

Living with ALS by Tom Swift: A Life or Death Decision

http://livingwithalsbytomswift.blogspot.com/2012/10/a-life-or-death-decision.html

Living with ALS by Tom Swift. A Life or Death Decision. The result of my breathing test at my August ALS Clinic visit was poor. It was so poor that the time has come for me to decide if I will extend my life by getting a tracheotomy or refuse the tracheotomy and die within the next year. I knew this day would come, but when it did, I felt like I had been hit in the stomach. What is my quality of life and what will it be on a ventilator? How much am I willing to endure to live longer? What is best for me?

5

Living with ALS by Tom Swift: A Few Words In Closing

http://livingwithalsbytomswift.blogspot.com/2013/01/a-few-words-in-closing.html

Living with ALS by Tom Swift. A Few Words In Closing. This is my last article for the St. James Epistle. I developed pneumonia in early January and I did not recover fully. By the time you read this, I may be dead. I realize that is blunt, but I want to be clear. Here are a few thoughts before I go. Why didn't God heal me? I am not afraid of dying and death. I am not afraid of dying because I am in hospice care. The caring and professional staff will make sure I die in comfort and dignity. I ...I feel sa...

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aaronwinborn.com

How to Get Wealthy Beyond Your Wildest Dreams in Two Easy Steps | Aaron Winborn

http://www.aaronwinborn.com/blogs/aaron/how-get-wealthy-beyond-your-wildest-dreams-two-easy-steps

Skip to Main Content Area. How to Get Wealthy Beyond Your Wildest Dreams in Two Easy Steps. Submitted by aaron on Sun, 2013-12-01 17:11. But I'm not here today to tell you about that. I'm going to lay out my two step plan to have glorious wealth, and take it with you at the end. Another disclaimer: I am not a professional financial advisor, and you can take what I offer with a grain of salt. Secondly, possibly you would like to leave a legacy? The last reason that it's not a good idea to tie up too much ...

aaronwinborn.com

【国内正規品】 - www.aaronwinborn.com

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Skip to Main Content Area. Goodbye, my Son. My friend. Submitted by Victor Winborn on Wed, 2015-03-25 16:54. Your journey to heaven or hell or oblivion or reincarnation or whatever it is that death holds. This is the Antechamber of the Mystery. Brent Weeks, The Way of Shadows. As many of you know, Aaron chose to take the path of coming back to this life in the same body that he inhabited here as Jeffrey Aaron Winborn. In other words, he chose to have his body frozen (cryonics) and hopes to have it re...

aaronwinborn.com

Holiday Cheer from the Pfeifer-Winborn Family | Aaron Winborn

http://www.aaronwinborn.com/blogs/aaron/holiday-cheer-pfeifer-winborn-family

Skip to Main Content Area. Holiday Cheer from the Pfeifer-Winborn Family. Submitted by aaron on Sun, 2014-12-07 16:18. A morning of making ornaments with the girls. As the Pfeifer-Winborn household swings into gear this morning, holiday cheer is palpapal in the air. Ashlin wanted to start making the ornaments yesterday, and Sabina is a whirling Dervish in her excitement! And I'm going to pause a moment while my lovely nurse Nichole scratches my head. Ahh, the simple pleasures of life are the best. There ...

aaronwinborn.com

Happy Halloween | Aaron Winborn

http://www.aaronwinborn.com/blogs/aaron/happy-halloween

Skip to Main Content Area. Submitted by aaron on Thu, 2013-10-31 22:38. Shiver me timbers, it's Trick or Treat night, which for the first time since we've moved to this blooming city, falls on Halloween. The first year we moved to Harrisburg, when Ashlin was four, Halloween was on a Tuesday, I believe, and the Thursday before, we were all getting ready to go out to dinner, when the doorbell rang, and a cute princess held out a basket and said, "Trick or Treat.". I was the hit of the neighborhood! Some li...

aaronwinborn.com

Helen Keller with ALS | Aaron Winborn

http://www.aaronwinborn.com/blogs/aaron/helen-keller-als

Skip to Main Content Area. Helen Keller with ALS. Submitted by aaron on Sat, 2013-10-12 22:35. We have an amazing group of volunteers, who help to make our lives just a little bit more tolerable in the face of the devastation caused by my having ALS. They are coordinated by a smaller group of co-captains who meet occasionally at our house. This afternoon, they met, and asked me as part of the agenda, how was I feeling. I said that I was feeling fine. But they are noticed by the families. It turns out tha...

aaronwinborn.com

Victor Winborn's blog | Aaron Winborn

http://www.aaronwinborn.com/blog/3061

Skip to Main Content Area. Goodbye, my Son. My friend. Submitted by Victor Winborn on Wed, 2015-03-25 16:54. Your journey to heaven or hell or oblivion or reincarnation or whatever it is that death holds. This is the Antechamber of the Mystery. Brent Weeks, The Way of Shadows. As many of you know, Aaron chose to take the path of coming back to this life in the same body that he inhabited here as Jeffrey Aaron Winborn. In other words, he chose to have his body frozen (cryonics) and hopes to have it re...

aaronwinborn.com

Drupal Guilds Discussion Today! | Aaron Winborn

http://www.aaronwinborn.com/blogs/aaron/drupal-guilds-discussion-today

Skip to Main Content Area. Drupal Guilds Discussion Today! Submitted by aaron on Fri, 2010-09-10 10:53. This is probably late notice for many of you, but I'm going to give a presentation. Today (Friday, September 10) at 5 GDT (12 EDT), about an hour and a half from this posting. The presentation will be recorded, along with a slide show, and I'll make sure to post about it again after that if you miss the meeting. A subset of Open Guilds. Over the past twelve years. Here's an embedded slide show. Living ...

aaronwinborn.com

Pirates Aren't Afraid of the Dark | Aaron Winborn

http://www.aaronwinborn.com/blogs/aaron/pirates-arent-afraid-dark

Skip to Main Content Area. Pirates Aren't Afraid of the Dark. Submitted by aaron on Thu, 2014-02-06 21:45. The power went out last night, while Sabina and I were playing pirates. She wore a patch on her eye, and I had my eye closed, and we were both shouting, "Arrh! The first fiction I've read featuring bitcoins, and it's a doozy, written by the author of such post-singularity works as Accelerondo, Singularity Sky, and Glass House. I highly recommend this sequel to Saturn's Children, and you don't ha...

aaronwinborn.com

User account | Aaron Winborn

http://www.aaronwinborn.com/user/password

Skip to Main Content Area. Username or e-mail address: *. The Society for Venturism. Has chosen me as the recipient of its charity for this year, to hopefully offer me cryonic preservation when the time comes. And this month, Longecity, an excellent forum for the discussion of issues related to extending the lifespan of humans, has offered up a matching grant of up to a thousand dollars. Living with ALS by Tom Swift. Patrick the incurable optimist. Spam: The other white meat. Built a New Widget!

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Click here to read about Ellie's Families and how we've helped them. W ho was Ellie? The Ellie Reynolds ALS Foundation provides people living with ALS and their caregivers with the day-to-day comforts they need to achieve a higher quality of life at little or no cost. As the illness progresses simple everyday tasks that we take for granted become difficult for the person living with ALS. 5/11: 10th Annual Golf Outing. 7/8: 5th Annual Ellie's Run. 10/6: 3rd Annual Motorcycle Ride.

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loving beyond ALS | Just another WordPress.com site

Just another WordPress.com site. May 8, 2011. One of the really crappy things about the ALS diagnosis is that the disease progresses pretty quickly (in some cases) and there are no cures (yet) or medications that can slow it all down for more than a smidge (yet), so you are told to get your affairs in order and if you have something you want to do, do it. Now. Don’t wait. I am expecting some bitter-sweet times ahead as Will gets ready to launch into this next phase. March 9, 2011. Update on the drug trial.

livingwithalsbytomswift.blogspot.com

Living with ALS by Tom Swift

Living with ALS by Tom Swift. A Few Words In Closing. This is my last article for the St. James Epistle. I developed pneumonia in early January and I did not recover fully. By the time you read this, I may be dead. I realize that is blunt, but I want to be clear. Here are a few thoughts before I go. Why didn't God heal me? I am not afraid of dying and death. I am not afraid of dying because I am in hospice care. The caring and professional staff will make sure I die in comfort and dignity. I ...I feel sa...

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The Many Faces of Alzheimers | Because No One Face Describes it All

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