findingjoyinsimplethings.blogspot.com

Finding Joy in Simple Things

Finding Joy in Simple Things. Friday, May 30, 2014. PWS Awareness Day 30: On Friends and Social Thinking. And I about peed my pants laughing when I noticed he was still wearing his fleece pajamas, long underwear and a sweatshirt. "It was COLD in Bolinas, Mom, like 50 or 60 degrees! The standard by which I measured "worth" and "success" started shifting. What I hope for Oscar is simple in expression though not necessarily in realization. I want him to live a happy, fulfilled life. I hope that he w...Envir...

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Finding Joy in Simple Things. Friday, May 30, 2014. PWS Awareness Day 30: On Friends and Social Thinking. And I about peed my pants laughing when I noticed he was still wearing his fleece pajamas, long underwear and a sweatshirt. It was COLD in Bolinas, Mom, like 50 or 60 degrees! The standard by which I measured worth and success started shifting. What I hope for Oscar is simple in expression though not necessarily in realization. I want him to live a happy, fulfilled life. I hope that he w...Envir...

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Finding Joy in Simple Things | findingjoyinsimplethings.blogspot.com Reviews

https://findingjoyinsimplethings.blogspot.com

Finding Joy in Simple Things. Friday, May 30, 2014. PWS Awareness Day 30: On Friends and Social Thinking. And I about peed my pants laughing when I noticed he was still wearing his fleece pajamas, long underwear and a sweatshirt. "It was COLD in Bolinas, Mom, like 50 or 60 degrees! The standard by which I measured "worth" and "success" started shifting. What I hope for Oscar is simple in expression though not necessarily in realization. I want him to live a happy, fulfilled life. I hope that he w...Envir...

INTERNAL PAGES

findingjoyinsimplethings.blogspot.com

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Finding Joy in Simple Things: PWS Awareness Day 16: Social Skills

http://findingjoyinsimplethings.blogspot.com/2014/05/pws-awareness-day-16-social-skills.html

Finding Joy in Simple Things. Friday, May 16, 2014. PWS Awareness Day 16: Social Skills. Last weekend, after Abe's crew practice and Ruby's soccer game, we packed the whole family (visiting grandparents included! Into the car and drove an hour north to Sonoma Valley to Oscar's friend Eli’s birthday party. Oscar had been talking about the party – a baseball game and swimming – for weeks. He couldn’t miss it. Oscar and Eli had bonded at school over their sports fanaticism. I made it, Eli! Paul expertly bob...

2

Finding Joy in Simple Things: PWS Awareness Day 15: Pushing Through

http://findingjoyinsimplethings.blogspot.com/2014/05/pws-awareness-day-15-pushing-through.html

Finding Joy in Simple Things. Thursday, May 15, 2014. PWS Awareness Day 15: Pushing Through. Yesterday morning, a friend texted me a hilarious exchange that she and her husband had over pre-dawn coffee about my blog posts. Not about the posts themselves, but the fact that I am managing to write them every day. The exchange was so funny that I started cackling. When I tried to read it aloud to Paul, tears streamed down my face and I couldn't finish. I had to keep writing. I had to post something. A writer...

3

Finding Joy in Simple Things: PWS Awareness Day 23: Coping and Support Groups

http://findingjoyinsimplethings.blogspot.com/2014/05/pws-awareness-day-23-coping.html

Finding Joy in Simple Things. Friday, May 23, 2014. PWS Awareness Day 23: Coping and Support Groups. Babies will get bigger and be fine, I thought. (Yes, I was naive, and my dear friends who had preemies will read this and be glad they didn't know me then.). She didn't downplay the stress of raising a child with PWS, but still I felt the tiniest bit of the fear dissolve. Laundry. Playgrounds. Potlucks. Her casual references to life beyond the diagnosis were a tonic that spread through my ...I agree compl...

4

Finding Joy in Simple Things: PWS Awareness Day 29: Yearning for Independence

http://findingjoyinsimplethings.blogspot.com/2014/05/pws-awareness-day-29-yearning-for.html

Finding Joy in Simple Things. Thursday, May 29, 2014. PWS Awareness Day 29: Yearning for Independence. And the same thing happened today. I overslept and woke in yet another panic, having forgotten about the trip. Oscar's van would be at the stop in twenty minutes and we still needed to round up the remaining items. The toothbrush, the meds (darn, the meds! Forgot to tell his teacher about the meds), the crocs, a flashlight, a hat, his book. Does Johnny know the plan? I yelled, following him onto the por...

5

Finding Joy in Simple Things: PWS Awareness Day 24: Hope in Pictures

http://findingjoyinsimplethings.blogspot.com/2014/05/pws-awareness-day-24-hope-in-pictures.html

Finding Joy in Simple Things. Saturday, May 24, 2014. PWS Awareness Day 24: Hope in Pictures. When Oscar was born and first diagnosed, all I could think about was the insatiable appetite. I had nightmares about the food-seeking monster I thought he would become. I envisioned him digging through garbage cans, unscrewing the locks off the cabinets, sneaking out of the house to steal food. Over and over to myself, trying to drown out the nightmares. Oscar, 15 months, pulling books off the shelf. I'm the mot...

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pwsgulley.blogspot.com

Amazing Adventures of Ayden Jane: September 2014

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Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Tuesday, September 30, 2014. Fine Motor and Written Expression. It has been fascinating to watch Ayden Jane work on learning to express her thoughts on paper. I was amazed both by how hard this process is for her and her perseverance to stick with it until the very end. Monday, September 22, 2014. Ayden Jane loved it! I just love that Mrs. C has Ayden Jane do the written work li...

pwsgulley.blogspot.com

Amazing Adventures of Ayden Jane: May 2015

http://pwsgulley.blogspot.com/2015_05_01_archive.html

Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Sunday, May 31, 2015. PWS Awareness month - wrap up. As this years edition of PWS posts come to a close, what is most on my mind is how much less I have to say about PWS at this point. Wait. Maybe it's not less as I have tons of information packed in this head of mine that has been acquired over the past 7 years. Maybe it's just different? The waiting to see which of the long list o...

pwsgulley.blogspot.com

Amazing Adventures of Ayden Jane: February 2015

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Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Saturday, February 28, 2015. Today was Saturday. It was a wonderful Saturday. It started like any other Saturday with Ayden Jane waking me up to ask if I could turn on cartoons for her to watch so she could cuddle up in bed for a bit before breakfast. (she still gets up early.) By 7:30 or 8 we were headed out to the kitchen and had a nice breakfast. While on the sideline I was talki...

pwsgulley.blogspot.com

Amazing Adventures of Ayden Jane: October 2014

http://pwsgulley.blogspot.com/2014_10_01_archive.html

Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Tuesday, October 21, 2014. Busy - Life's Theme. This fall is racing by. Ayden Jane is doing great in school and she is participating in several after school activities. She is one happy, busy little first grader. Thursday she has her other day of swim team. Instilling the idea of daily exercise has been a great benefit to Ayden Jane. Since she is a routine kid she does not feel ...

pwsgulley.blogspot.com

Amazing Adventures of Ayden Jane: July 2015

http://pwsgulley.blogspot.com/2015_07_01_archive.html

Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Thursday, July 30, 2015. Cranking up the Carnitine. So as usual, I was not satisfied with things going well. I needed to know if they could be even better! I did the math and decided I was going to go for a third dose of carnitine. It will put Ayden Jane at a total of about 46 mg/kg. Sunday, July 26, 2015. The added carntine has been just the ticket for Ayden Jane. Her energy le...

bringingupbagleys.blogspot.com

Bringing UP Bagleys: March 2012

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I hate to brag but,. no I don't! Although my life has been very hectic and overwhelming these days there is one thing I can always count on, the unconditional love and support of my husband. I am so in love with you Mitchell, more than ever before. Thank you for all that you are and all that you do for me and our family. You are my PERFECT match! A Mom Needing to Vent. It has been way to long since I have released these thoughts going through my head. I want so badly to be the mom my kids look at and say...

bringingupbagleys.blogspot.com

Bringing UP Bagleys: February 2011

http://bringingupbagleys.blogspot.com/2011_02_01_archive.html

I am so proud to be her mom, though I feel incapable most days. One Week and Counting. Ann Margret has been on Growth Hormone for one week. Surprisingly the shots are getting easier even at this point and she doesn't seem to be bothered much by them. We have seen some improvement in movement though minimal, its improvement. Subscribe to: Posts (Atom). View my complete profile. Mitchell (My Main Squeeze! Miles (My First Born! Ann Margret (Our Precious Gift! Amazing Adventures of Ayden Jane. A Leap Of Faith.

bringingupbagleys.blogspot.com

Bringing UP Bagleys: August 2011

http://bringingupbagleys.blogspot.com/2011_08_01_archive.html

Long Time No Post! It has been too long. A lot has been going on which explains my absence. I hope to update on everything that has been happening within the next few days (with pictures). Subscribe to: Posts (Atom). I am a wife, mom, nurse and most importantly a child of Jesus. I have a wonderful husband who puts up with more that he should and three amazing kids, which i am doing my best to "bring up.". View my complete profile. Mitchell (My Main Squeeze! Miles (My First Born! Diving Into the Waves.

bringingupbagleys.blogspot.com

Bringing UP Bagleys: January 2012

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I am so glad God chose us to be his parents and am excited to see what this year holds. I hope its less whining and more cleaning. hey, I can hope, right? Subscribe to: Posts (Atom). I am a wife, mom, nurse and most importantly a child of Jesus. I have a wonderful husband who puts up with more that he should and three amazing kids, which i am doing my best to "bring up.". View my complete profile. Mitchell (My Main Squeeze! Miles (My First Born! Ann Margret (Our Precious Gift! Diving Into the Waves.

bringingupbagleys.blogspot.com

Bringing UP Bagleys: November 2013

http://bringingupbagleys.blogspot.com/2013_11_01_archive.html

There must be a spiritual emphasis here. There is, upon pointing out this thought to my husband, God reveals this: when your eyes are focused away from the Son (light), evil (darkness) doesn't seem so evil (dark). Likewise, when we are focused on the Son (light) the dark is DARK. AND SCARY. While I'm glad that the light being covered on the beach revealed that it was safe to keep my spot by the ocean, I'm afraid at what dark paths I might be taking in life because my eyes aren't on Jesus. This is the man...

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Finding Joy in My Journey. Tuesday, January 17, 2012. For quite awhile my children believed that a mommy went to the dentist to have a baby. Makes sense if you think about it from their perspective: food goes in your belly; it gets there through your mouth. If you throw up food, that comes out your mouth. So of course a baby in your belly has to come out of your mouth. What kind of doctor looks in your mouth? A dentist. See? My belly, as is illustrated by our after-dinner conversation. E: Oh But hooow.

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Finding Joy in Ordinary Days

Finding Joy in Ordinary Days. Monday, February 23, 2015. Fourteen years ago, we were living in MO. On a chilly day in February, our precious Abigail Marie came into the world. She was a feisty baby and still is today! We went to the Oxford Exchange for a mini photo shoot and yummy lunch. Friday, January 17, 2014. Jonathan has had some great opportunities, as well. He has a leading role in Flapper and I am very excited to see him perform! I have waited for this since the last solo when he was 8! I have be...

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Finding Joy In Our Journey | Our Family's Journey through Brain Injury (Both Parents), our youngest son being born with Pierre Robin Sequence, and a recent diagnosis of Asperger's Syndrome for our older son.

Finding Joy In Our Journey. Our Family's Journey through Brain Injury (Both Parents), our youngest son being born with Pierre Robin Sequence, and a recent diagnosis of Asperger's Syndrome for our older son. Sam’s loose tooth! January 20, 2010. 8212; nicholacs @ 9:08 am. I laughed and laughed watching this, I really do have a crazy household! Click on the video link that’s highlighted at the bottom of this page! Sam’s First Loose Tooth! January 19, 2010. 8212; nicholacs @ 7:51 pm. Joshy is Potty Trained!

findingjoyinsimplethings.blogspot.com

Finding Joy in Simple Things

Finding Joy in Simple Things. Friday, May 30, 2014. PWS Awareness Day 30: On Friends and Social Thinking. And I about peed my pants laughing when I noticed he was still wearing his fleece pajamas, long underwear and a sweatshirt. "It was COLD in Bolinas, Mom, like 50 or 60 degrees! The standard by which I measured "worth" and "success" started shifting. What I hope for Oscar is simple in expression though not necessarily in realization. I want him to live a happy, fulfilled life. I hope that he w...Envir...

findingjoyinthedesert.blogspot.com

Finding Joy in the Desert

Finding Joy in the Desert. Friday, February 6, 2015. When I close my eyes I can still see you. I can feel your precious cheeks on my lips and I can smell the scent that was uniquely yours. I can hear your tiny squeak and I can feel the peace I felt when I first held you and the heartbreak that incurred when I placed you in a bassinet and said a final goodbye. What would we have done for your first birthday? Would you have enjoyed your first cupcake? Would I have such a longing for eternity or would I be ...

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Life is the Music

Life is the Music. Love is the Song. Wisdom comes from allowing what GOD teaches to guide us.". Friday, January 4, 2013. Dashing through the snow. In a two per-son sled. Ore' the hills we go. Laughing all the way! Oh what fun it is to ride. In a two/three per-son sled! And yes, this 9mo pregnant momma had to enjoy a few moments with them. To round out the end of each year, we celebrate Alivia's birthday - separate from Christmas. And I think she was too. :-). Happy Birthday Miss Alivia! T's always fu n.

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Finding Joy in the Journey...My life with infertility

Finding Joy in the Journey.My life with infertility. Wednesday, March 13, 2013. Life always gets in the way. Money is just money to me, I don't care. As long as I have my family and we can live comfortably I am happy but when I start to think that I could use that money we save to better our family and some irresponsible drug addict just gets pregnant to go on welfare, I start to get bitter! OK OK VENTING IS DONE! I can't wait for the day that I can experience those amazing things. I try my hardest n...

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FINDING JOY IN THE JOURNEY

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